gfpaperdoll
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Latest Celiac Disease News & Research:
Everything posted by gfpaperdoll
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ARCHIVED Enterolab Results
gfpaperdoll replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your son is double DQ1 as I am & most everyone in my family. That is the gluten intolerant gene & if you are double DQ1 it has been my experience with the people that I know that it comes with neurological symptoms & a lot of other food "allergies". In addition to that we get all the usual wide array of celiac problems. I think that the medical... -
ARCHIVED Help! Worse All Of A Sudden!
gfpaperdoll replied to trishydee's topic in Coping with Celiac Disease
I would go back for medical tests, complete blood work up, first thing to rule out cancer or anything else...RIGHT AWAY Then I would look at what you are eating. Have you added in anything new, or you eating replacement grains? oats? Then I would go grain free & also dairy free. I would immediately go to your "safe" foods, & soft foods, cut... -
If you have two celiac or gluten intolerance genes (to be politically correct here ) you pass one to each of your children. If you only have one gene you have a 50% chance that each child will get that gene. For people that tests for the genes & do not go thru Enterolab.com where they test for the gluten intolerance genes also, & you think you...
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Celiac is more common that you can ever imagine. Read some of Dr Fine's statistics & there are some of us that think that is even understated. In my family it has skipped no one, although they all have their heads stuck in the sand & refuse to acknowledge it. & among my friends there are a lot that have it. Just the other day at work I...
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ARCHIVED Celiac Disease And Mental Illness
gfpaperdoll replied to ASwinger's topic in Coping with Celiac Disease
I suggest going grain free & dairy free in addition to gluten free. Take a B12 everyday for the rest of your life, exercise - outdoors if possible, in addition to all the other things like getting blood work done to check all your vitamin levels, also, some people forget that it is VERY important to sleep in a completely darkened room, I use black... -
ARCHIVED Everything's Negative!
gfpaperdoll replied to horsegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yes, fibro symptoms are hard to distinguish from Celiac, I would say that if your fibro does not improve on the gluten free diet, check into oxalates. which also causes fibro like symptoms. Good luck with the gluten-free, let us know what the doc says. -
ARCHIVED My Story
gfpaperdoll replied to mike07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is more & more information on MS and the gluten free diet, there used to be some threads on this in the brain talk forum with links to articles, it is a little complicated but celiac or gluten intolerance or whatever you want to call the ill effects of eating gluten, does & can cause lesions on the spine and the brain that are or resemble MS... -
ARCHIVED Could This Bloating Be From A Gluten Intolerance?
gfpaperdoll replied to Spatchie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are doing a gluten elimination you need to also eliminate dairy & soy at the same time. because you could also be reacting to those in combination with the gluten & most people that quit eating gluten will automatically double their dairy intake, dairy also has that little thing that gives your brain an opiate effect & makes you just crave... -
ARCHIVED Can Anyone Help Me Get Off Inexium?
gfpaperdoll replied to Rosey's topic in Coping with Celiac Disease
Eat Right for Your Blood Type is a book about the Lectins in food & how that affects your digestion of that food depending on the reaction of each blood type. It also goes into the information on each blood type, it has been awhile since I had biology, so I liked the refresher on that. It is not a Gluten free book, although the author does go into... -
ARCHIVED Skepticism From Family
gfpaperdoll replied to Janniec6's topic in Parents, Friends and Loved Ones of Celiacs
Jan, your son has a positive diagnosis, he does not NEED a biopsy, he does need to be gluten free & it sounds like you are finding out about that. I personally do not think that a biopsy is needed (unless you want one) because if you have a positive blood test that is good enough. I also totally support Dr Fine & Enterolab.com & the information... -
ARCHIVED Can Anyone Help Me Get Off Inexium?
gfpaperdoll replied to Rosey's topic in Coping with Celiac Disease
Rosie, Read the book "Eat Right for your Blood Type". -
ARCHIVED Everything's Negative!
gfpaperdoll replied to horsegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Definitely Test Thru enterolab, you will get a more realistic results from them, as it can be positive after one year gluten-free. Also get the gene test, you probably have the gluten intolerant gene or genes, DQ1 or DQ3, & yes they do know that there are at least one or more "celiac" genes that have not been discovered yet. dietary trial for us DQ... -
Hi Grey, you might have gotten at least one DQ1 from your mom. If she has two gluten genes you got one from her, if she only had one "gluten" gene you had a 50% chance of getting that one. Same thing for your dad. Let us know what his tests turn out to be... Since you can have corn, my experience has been that you should not be eating any other grain...
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Grey, are you taking B12? You might need to get some B12 shots also, are you getting enough protein & carbs everyday? I hope you find those Mission Brand White Corn Tortillas because they are really a quick, cheap, carb that goes with a lot of stuff. Just ask your grocery to order them for you, most grocery stores will do that. Get to know your...
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ARCHIVED What Do I Thow Out, What Do I Do, Will I Get Better?
gfpaperdoll replied to F.deSales's topic in Coping with Celiac Disease
You might want to take a B12 everyday You will need to learn to bake gluten free, you do not need to be doing anything with wheat flour as the stuff poofs up & gets on everything. I have a gluten-free house & bake for my office - they love everything!! Banana bread is easy to convert & I have a carrot cake recipe posted here & lemon... -
ARCHIVED My Dx
gfpaperdoll replied to Kelleigh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here is a link to the Gluten Intolerance Group Open Original Shared Link -
ARCHIVED My Dx
gfpaperdoll replied to Kelleigh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi welcome to the board, looks like you have double DQ1 genes, same as me & my family. There is a double DQ1 thread on the "Coping With" forum, you might want to also post your symptoms, questions etc there. Us double DQ1's like to get to know each other. Do you have any other auto immune illnesses? Is your family from Ireland & England orginally... -
ARCHIVED Dear Colon
gfpaperdoll replied to melmak5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might try going dairy free, it worked for me -
White potatoes are in the "Nightshade" family. You might skip them for the time being, this does not mean that you cannot try them again later... try using sweet potatoes, you can bake them or fry them in extra light olive oil like french frys or bake them in the oven (french fry cut) with a little olive oil & fresh herbs. Sounds like you might have...
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ARCHIVED Soaps, Shampoo, And Other Personal Care Products
gfpaperdoll replied to radgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think this is so funny that because one is 60 years old that a young person would assume that one is uneducated and a housewife!!! I can also type, in the dark while blind in one eye !!! Actually I have never been a housewife but I wish I had been. I am fairly well educated & have worked with some of the greatest people in this country. They say... -
ARCHIVED Is This Possible
gfpaperdoll replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Could you post again if you get to be 5' 11" ? Maybe I could say you got thicker shoes Sorry, I just love a funny, Really guys grow later than girls, I think guys can still attain height until they are about 21, not sure that is just what I have always known, re guys in my family going off to war etc & then growing taller. You could have... -
when you read some of the books you will find that a diet of no grains is recommended. I can only state my own experience here, but I cannot tolerate anything except come rice or corn & I try not to eat those on the same day. sorghum flour makes me really sick, crampy, D, headache, I have missed work a few Mondays from trying to eat my own homemade...
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ARCHIVED Biopsy Needed If Blood Test Is +?
gfpaperdoll replied to Tripletmomma2000's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is exactly the problem with using biobsy as a dxd. You have to be half dead before the damage shows up, of course if you had not insisted on the test they would have never tested you again, & then you would have gone downhill fast or more likely gotten cancer etc... I suggest to test your sons thru Enterolab.com & get the gene test so they... -
ARCHIVED Neurological Symptoms
gfpaperdoll replied to Nan 70's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Whn you clean out the kitchen be sure to throw away the flour, canister and all, if you pour it out - you will get sick... -
ARCHIVED Online Celiac Testing A Scam?
gfpaperdoll replied to AnneM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have been watching this for 3 years now, I happen to have been dxd thru Enterolab & a lot of people in my family & friends. & I have seen that now some M.D.'s are actually using them. I am sure it will be like anything else, the medical community is going to be divided on this. Dr Fine in conjuction with a couple other doctors have a new...