Budew

Never heard of these connections, and proven connections are even harder to find. Celiac and related diseases have only been able to identify in our lifetime. I think I have Milk Soy Protein Intolerance, no test for that yet, so the doc will have to take my word. Trust your instinct, nothing is too weird to mention, ask questions! Welcome to the gluten...

I have been asking that question for 5-6 years. Finding things that helped some like B-12 injections, eliminating all grain, iodonized salt, eliminating nightshades, regulating sylicilates, but still quite ill. I am posting today because I have hope again. I think milk proteins are the culprit. The delayed reactions made it hard to see the connection,...

Thanks I'll give it a try.

I need a suppliment. Doc suggested Brewers Yeast, I checked it is not an option for celiacs. He is reluctant to give injections. I check food sources and because of other dietary limitation that won't be enough. Can we take pills? I don't do well with pills. Are ther capsules?

Ravenwood is right on target. I finally did a spectracell analysis to check for absorbtion. Not covered by insurance but only $75. Has really given me direction and peace of mind. Good luck.

I start the B-12 injections today. Sure hope this clears the fog and fatigue. Nice to see it makes a noticable difference in you folks. I as suprised that this treatment went on for years for some, and that folks seem to be looking for an oral alternative. Why not just do the shots?

Thanks for the article, very timely for me. Regular blood panels show everything is okay, but I did a spectracell ananysis a couple weeks ago. The doc called with the results yesterday, "No wonder you feel bad" I am unable to metabolize B-12, C, E, and selenium. I begin injections today. I hope this works because the pain and the mental deterioration is both...

For the last year I have had several suppliments suggested by my doctor. All except l-glutamine, coQ10, and probiotics have made me ill. A couple weeks ago I did a spectracell analysis. Doc says I am missing the trinsic factors that make the body able to utilize the vitamins and minerals. Normal blood tests showed adequate levels but when checked, the...

I am thinking of adding soy to my diet. The best tofu I have ever had I have always gotten at resturants. Puffed, commercially flash fried. I found it in a huge asian market in Austin TX. I can find it online but not a vendor. Anyone know where to get it?

Thanks for the support and information. I read the salicylate link and bought the celiac disease. I have cleaned up my environment and eat a very low salicylate diet. Its helped some of the pain and reduced flushing. I read about Lectins too. I cut back for several months. I am adding some legumes and seem to be tolerating them well. Being free of nightshades...

I am from the US. I am into my seventh year off suffering since becoming gluten free. Through elimination I feel I can correlate rice and corn to migraines. Now that I have been completely grain free for 6 months, the medical community now blames my suffering of diet defieciencies, they are encouraging me to add grains. I am full of fear, every grain I have...

Jenny- Bummer sometimes isn't it! Glad to hear you are a fighter! Me too! Really gets me when I start to lose the will to continue the fight, but everytime, someone comes along says the right thing and I am fighting again. I can identify with not wanting to eat. Watching the scale works for me. If I drop below 110 I push myself to increase calories...

I am so glad Rice Guy is attending to this thread. I have gotten some good advice from him lately. I do want to say get the info and post it. I was where your friend is. I felt too ill to help myself. I had lots of caring prople but had to really do this alone. For several years I was just to sick to care. Death became a focus. It had to be bettter than...

Sorry to hear about your friend. Most of us have had other problems as well. Do you know about what she eats? Tests done? Does she ever get relief? Tell us more. Hang in there! You are a good friend. Budew

Thanks for the sources. I'll check them out. Budew