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angst2amity

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by angst2amity

  1. angst2amity
    Look at this. I have severe Vitamin D deficiency and high blood calcium. Open Original Shared Link
  2. angst2amity
    Hi - I live in Holt and I have no idea what is going on with my body. Apparently any wheat, gluten, or sugar gives me migraines (new) and am being treated for a system fungal infection after two sinus surgeries, 5 trillion antibiotics, steroids, etc. I can only eat chicken and rice products and raw vegetables - all this happened in the last 3 months....
  3. angst2amity
    eleep glad you got through! If I can ever get better, I am flying to an island off of Puerto Rico where a family member lives. Have to fly in several planes but the last one will be a 5 seater so I can only bring 1 carryon total luggage. I am have BIG dietary problems and I am not sure what I will find there to purchase. There weren't many stores...
  4. angst2amity
    I wanted to check in... No Lyme antibodies. No neutrophils. High Glucose count in Cerebral Spinal Fluid. What the heck? I know it probably wasn't Igenex but I don't know anything or what direction to even take. It is very frusterating to be a medical zebra. Boo Hoo
  5. angst2amity
    Hi Sara, I have had the worst 6 months of my life due to my sinuses. My primary doctor put me on antibiotic after antibiotic and I didn't get better, I took myselft to an ENT and he found the problem right away on the CT scan and cleaned out my right sphenoid sinus (scope surgery)- it is right directly behind my nose/right eye. Of course he left something...
  6. angst2amity
    Sometimes my dentist can pinpoint it to where my nerves enter my jaw bone. They get pinched when there is inflammation in my head from allergies (of which I am not sure), sinus infections, colds, etc. When that is the problem ati-inflammatories and muscle relaxants seems to help me.
  7. angst2amity
    No one can explain my fever after sugars or gluten problem in the medical field. Just wondering how common this is. Seems to be an auto-immune response but the MDs make it sound like it can't be true. Tired of being the crazy fever lady. Thanks.
  8. angst2amity
    You guys are so funny - it really is a soap-opera! And no one says "hey get off the internet!" to you because I think this is the place you go where doctors and loved ones say "I haven't a clue" but they aren't the ones that have to live this way. I think that I have researched just about everything possible before finding this site. Read lots...
  9. angst2amity
    Thanks for your help. I have become much worse since the last post. One of my doctors is actually looking at Lyme Disease which can sometimes cause all of the above - plus I think I went gluten-free and ended up eating a lot of corn & rice - now I think my whole problem may be with corn!! I have a Celiac test in the works, LD test in the works, and...
  10. angst2amity
    Here is a big question for you all, which I am sure you've covered before, but I haven't heard the answer... If you have lyme disease, and you have a major episode(s) from late stage neuro-LD which causes you to have all sorts of complications including becoming gluten-intolerant, if you can rid your body of Lyme, Mercury, Candida, Allergans, will everything...
  11. angst2amity
    Hi, I had my own ebay store for awhile - I was bored. Made enought to by a 38 foot camper and then quit - didn't feel like being a customer service rep forever. My ID is surplusmomma. Here is a great place to but things in bulk and resell. Lots of times they have free shipping and you can always just buy one case at a time. Things that sold very well...
  12. angst2amity
    CarlaB I feel the same about Mensa, but admit it - it was fun to be able to join! I looked at the pictures the other day - enough to make you want to scrub your insides with steelwool. I have been doing a haphazard salt/C for a while - but the C gives me terrible canker sores. I have the grossest floaters all of the time lately. Rachel I...
  13. angst2amity
    Rachel & other Medical geniuses, I stole that lab form off of the university site - they indicated it was a mail-away test, I am just hoping it is to Igenex. But if anyone was going to show lyme, I think I will right now. So many neurological problems, on steroids on antibiotics, doing worse everyday. Lost 10lbs in about 4 days. Quit my job,...
  14. angst2amity
    Hey I don't know if it is related but a lot of my recent symptoms came after a Pneumovax 23 Valent. The actual vaccine made me tremor and shake as well as my arm swelled up. PS I am not anti-vaccine and have had my children vaccinated, my doctor convinced me that vaccines prevent more deaths than they cause problems. Many of my friends are against...
  15. angst2amity
    Does this sound like Igenex? Laboratory: Special Testing Referral Laboratory: _DCH COE Code: SENDOUT Synonymns: Borrelia burgdorferi Antibody by Western Blot Lyme Disease Confirmatory Test Container: Red top tube or SST tube Normal Volume: 3 ml serum Minimum Volume: 1 ml serum Offsite Collection Collect specimen...
  16. angst2amity
    Oh, I feel so stupid! Thanks for mentioning the can-opener! Hmmmm...no wonder I can react to foods that have no gluten in them. Sheesh.
  17. angst2amity
    Make sure your wife is taking extra folic acid - talk to the doctor about that. I know it is one of the things not absorbed well by a celiac gut and is very necessary in pregnancy. I am fairly new to this board but I think Ursula is right - if you eat meats, vegetables, fruits, and nuts if tolerated should keep the blood sugar steady. A lot of the nutrients...
  18. angst2amity
    Rachel, So it looks like Lyme Disease? Wow, I have so many of the same symptoms - and a ENT just said lets look at Lyme, guess he is faster than other Drs. I don't know which lab he is using but he is from a big University. I have been learning this about Lyme and have known about Candida - I was just wondering if I gave them a good dose...
  19. angst2amity
    TWO MAJOR THINGS: 1. You can buy a brace for sports that you bite into when hot and it will fit to your teeth for like $5. I can't wear my $400 piece of plastic cause too many teeth are missing now. 2. I just read some new research that says eating ice is a "PICA" - remember when you were pregnant and they asked if you craved eating weird things...
  20. angst2amity
    My kids are 8, 5, & 3. I have been getting a lot of get well cards! Maybe corn is the missing piece, I don't know - seems to be everything. How long have you been gluten-free? When did you learn about corn? Here I am in my life just going fairly smoothly. Had hundreds of ear infections as a kid- but that seemed to have gone away. Lost a few...
  21. angst2amity
    Those were some of the first of mine to go. After about 4 root canals in the same tooth, I had the first one extracted. I told the puller "I could just kiss you!" If I had to do this all over again - and I have - I usually let them RC a tooth once and if it goes bad, I pull it. I have lost several teeth and I plan to get implants because as you lose more...
  22. angst2amity
    Hi There, Just spent lots of time in the hospital. Now they say it wasn't a fungus in my sinus but "foreign matter", my husband thinks that it was packing from a previous surgery and it had a bacteria mixed into it. I am really, really sick now. Nothing makes sense. My Dr. is going to send me to Mayo Clinic. Quit my job today. Getting tested for...
  23. angst2amity
    Hi there, New and going crazy. I PMd CarlaB because I see she is here with Lyme Disease. She said some helpful things and told me to read this posting. I have been reading for hours. I have many of the same symptoms as Rachel and others - mostly all of these symptoms are new and devistating. But I kept reading and I said "oh, oh, its the corn...
  24. angst2amity
    I tried organic whole grain millet today and had a "intolerance" response. I am beginning to realize that perhaps my villi are gone so I can not tolerate any sugars or starches but I had my usual new response. Intense headache, 99.1 fever, flushing, whole body sweat almost 1/2 later exactly. Anyone normally have a problem with millet? I did an isotonic...
  25. angst2amity
    I have been struggling with very intense recent gluten intolerance and sugar intolerance surrounding chronic fungal non invasive sinusitis. The ENTs say - "I have no idea what you are talking about!" I thought the fungus was feeding on sugar and making me crazy. But the sugar intolerance is just a part of Celiac. I found this post from 2005, look.....
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