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SillyBoo

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SillyBoo

  1. SillyBoo
    I cannot eat eggs, dairy, or soy. I'm in the midst of an elimination diet right now, and sadly (but not unexpectedly) reacted to corn. Nightshades are also suspect, but I haven't put them to the test yet. However, after avoiding them completely for the past 3 weeks, the joint pain is gone. I will miss potatoes and tomatoes the most. :-( When I first got...
  2. SillyBoo
    While I totally agree with the other responses about needing to take your celiac diagnosis seriously, I would like to add another perspective on how to move forward: Dealing with Celiac requires a change of mindset. As awful as it seems right now, you are fortunate to have discovered the cause of your misery. And you have the incredible blessing of having...
  3. SillyBoo
    I agree with Monklady - potlucks are from the devil! I used to try to take something and participate, but then there's the issue with cross-contamination. That meant that I had to be first in line (looking like a total piggy) or skip eating, even what I brought. Now I either bring my own food or eat before I go. I focus on the socializing, not the food. If...
  4. SillyBoo
    Thanks!
  5. SillyBoo
    Does anyone have any tricks for getting past the symptoms in less time?
  6. SillyBoo
    I use the Whole Foods 365 brand Rice Milk, and haven't had any problems with it.
  7. SillyBoo
    It's important to communicate REALLY well with your hubby. It can be so hard for others to truly comprehend what's going on, and especially to grasp how long it takes to recover and become fully functional again. I was diagnosed 3 years ago. Initially my husband seemed very supportive and helpful, but after a while he perceived my lack of energy as lack of...
  8. SillyBoo
    Yes, it is quite likely related to the celiac. I went through something very similar (at age 51!), as the worst of my symptoms were neuro. My memory was horrible, forgetting things like the day of the week, hesitating when I introduced myself to someone (because I had to remember my name), and all sorts of work-related and family-related details. After 2...
  9. SillyBoo
    Going off of gluten does, indeed, lessen the "brain fog" and increase mental clarity. Before I was diagnosed 2 years ago, I had a job that required very high-level critical thinking skills, and got to a point where I really couldn't do my job very well. Over time, my mental skills have mostly recovered. On good days, I really am back on top of my game. There...
  10. SillyBoo
    Yes, gluten makes me extremely sleepy. But I found that sleepiness also results from eating anything else to which I have developed a sensitivity, subsequent to the gluten, such as dairy, soy, beans, nightshades, and chocolate. You might want to check out what other foods may be causing the problem, in addition to continued sleuthing into possible sources...
  11. SillyBoo
    Oh, my gosh! I have had those since I was a kid, too, but never had a clue why. Of course, my doctor was equally clueless. I am now 52, and gluten-free for a year and a half. Mostly, they are gone. In fact, right now I have none at all (Yippee!!!). I found it helpful to also cut out all dairy.
  12. SillyBoo

    ARCHIVED Need Physician In Boulder, Co

    SillyBoo replied to CJS's topic in Doctors

    I have only seen a Family Practice doc, Anna Rooney, in Boulder about Celiac. I was going downhill for a long time, and finally went to see her when I was too ill to work. I hadn't even considered Celiac since my symptoms were not predominantly GI-related, but she did! She diagnosed me based on the blood tests and response to a gluten-free diet. I am extremely...
  13. SillyBoo
    I found that my heartburn and reflux disappeared in the first month or so after going gluten-free. However, that was one of the last symptoms that appeared for me before I was diagnosed. The longer-standing problems seem to take longer to resolve, in my experience. Was this a primary symptom for you? If your reflux persists, you might consider checking...
  14. SillyBoo
    I guess I'm a bit more of a rebel than some. I would definitely take my entire meal in to the restaurant, and basically dare them to do something about it (in a very polite way, of course ). Last summer, I was attending a birthday party for my MIL at a restaurant, and they were quite fine with me bringing in my own food because they didn't want to...
  15. SillyBoo
    I know that there are quite a few gluten-free vegetarians, but please don't get discouraged if it's difficult at first. When starting a gluten-free diet, it is very helpful to keep it simple -- whole foods, cooked veggies, limiting yourself to very safe foods. Hopefully, you will be among those who can do that without meat, but if not, you can almost surely...
  16. SillyBoo
    I do understand your frustration. It is really tough at first, especially if you do as recommended and keep your diet very simple for the first few months. But the benefits are definitely worth it, in my opinion. I was so relieved to find out what was making me feel like I was dying. It could have been much worse news! And although the diet is challenging...
  17. SillyBoo
    I'm just under 5'8". I think my celiac was probably triggered when I was in high school, after I had already gotten tall (but not diagnosed until age 51 ).
  18. SillyBoo
    Shortly after I stopped eating gluten, I started getting intense cravings for protein. I ate HUGE quantities for a long time -- both protein and carbs. Now that I have been gluten-free for more than a year, I am eating a more normal quantity. I assumed that my increased consumption was in response to my body finally starting to absorb nutrients. THere was...
  19. SillyBoo
    I went to a Naturopathic doctor shortly before I got my celiac diagnosis, and got tested for food intolerances. That was very helpful - from there, I did some testing for myself, and the list was pretty accurate. The amazing thing was that after cutting out gluten, I noticed my reactions to these other intolerances much more. I concur with the idea that...
  20. SillyBoo
    I am very sympathetic! My family members are also very resistant. I spent decades feeling borderline sick and got labeled as a hypochondriac by my family. Now that I know what caused all of that, and am finally starting to feel better, most of my family dismisses my celiac as my latest diet fad. Except for one brother, who took my advice and put his 2...
  21. SillyBoo
    What great suggestions! I would love to teach online - I will look into that. Any suggestions on where to start? I am doing some contract work now, but struggle with it. I think the biggest issue for me is that 2 of my current projects are with my former employer, so I am staring my demons in the face on a regular basis. Hopefully, the daily confrontation...
  22. SillyBoo
    When I left my job several months ago, I looked into private insurance, to see if it might be less expensive than going with my husband's plan at work. I went through an insurance broker who also has Celiac. She researched like crazy, and came up empty-handed. She said that with a Celiac diagnosis I was "uninsurable". So, the kids and I are on hubby's group...
  23. SillyBoo
    Thanks so much to all of you for your stories, suggestions, and understanding! It all helps. I actually work in Public Health, so it was a huge surprise that I got so little support during my illness. I like the popcorn and flu analogy - maybe that is responsible for at least some of my disgust. And, just like the chicken and rice I ate right as my severe...
  24. SillyBoo
    I would love to hear from others who have had career interruptions from Celiac. My work suffered horribly for close to a year and a half before diagnosis. After establishing myself as a very valued professional, my performance started to slip, exacerbated by the "supervisor from hell" who was eager to discredit me anyway. Rather than trying to assist...
  25. SillyBoo

    ARCHIVED Poll

    SillyBoo replied to L.A.'s topic in Coping with Celiac Disease

    I don't eat out at all. Ever. I tried it 3 times - same place, same thing all 3 times. It's a restaurant where our local Celiac support group goes for meals. But the 3rd time I got so sick, and I haven't been back since (that was at least 6 months ago). I also rarely eat anything at someone else's house, or that someone else made. The consequences are too...
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