SillyBoo
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Latest Celiac Disease News & Research:
Everything posted by SillyBoo
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ARCHIVED How Many Of You.....
SillyBoo replied to NoSugarShell's topic in Coping with Celiac Disease
ONe of the last things i gave up was my Aveda Liquid Gel for my hair. I really liked it, and kept thinking it couldn't make a difference since I didn't put it in my hair until after my shower, and I washed my hands right away. I was so wrong! I tested it out by stopping and starting use again, and cutting it out completely really made a difference. Boo hoo... -
Unless I see documentation from the company indicating that they no longer use barley, I'm not willing to try it. The Whole Foods 365 brand rice milk is gluten free, and tastes fine. We use that all the time without any problems.
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ARCHIVED Celiac-when Family Members Refuse To Get It
SillyBoo replied to angel42's topic in Coping with Celiac Disease
Gosh, she sounds like my mom! I haven't seen my mom since I got diagnosed last fall, so I haven't yet dealt with eating with her. But she is majorly in denial about my Celiac. I think that part of it is that she is unwilling to consider that she might be the one from whom I got this genetic gift. I have known for decades that I had issues with food, but... -
I doubt that I have completely stopped snoring since going gluten-free, but I know that I snore much less, and not as loudly as before. My snoring used to wake my husband often, and he frequently complained that he couldn't get a decent nights sleep because of my snoring. I haven't heard a single complaint since going gluten free last October! It makes...
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I found that when I am stressed, I not only have worse reactions to cc, but also need to simplify my diet. Stress seems to require me to go back to my very simple diet that I had during the first couple of months after diagnosis. The treats that I had done alright with for a while (occasional chocolate, raw veggies, beautiful salads, and more), were suddenly...
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I agree that a simple diet is best in the beginning. I can't tolerate eggs or peanut butter either, but found that in the first months after going gluten-free I craved protein. So, I ate LOTS of baked chicken and fish. As was pointed out, this really is doable in a toaster oven. I also couldn't eat beans, dairy, raw veggies, gluten-free crackers & cookies...
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I started out trying to separate gluten and non-gluten items in the kitchen, since I have 3 gluten-eating family members (hubby and 2 teenage daughters). However, I found that it didn't work for me. I really needed a completely gluten-free house. My husband and daughters have ample opportunity to eat gluten outside of our house. We have many other things...
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ARCHIVED Dreading Telling My Mil
SillyBoo replied to goldyjlox's topic in Coping with Celiac Disease
It's amazing how determined people can be to prove you wrong. I think it must be tied up with some strong emotional attachments to food or something. In addition to my mother's antics (slipping in the offending foods), we also experienced this during one of the few times we ever left our girls with someone else. I was off having a colonoscopy (intestinal... -
ARCHIVED Bruises Easily...anyone Else?
SillyBoo replied to Cat5's topic in Related Issues & Disorders
One thing I forgot to mention about the bruising and nosebleeds: I had no idea that these problems were related to Celiac until they got better over time once I went gluten-free. I was astounded to discover how many seemingly unrelated symptoms were all a part of Celiac. Cat5, I hope that as you start to heal over the next several months, you too will... -
ARCHIVED Bruises Easily...anyone Else?
SillyBoo replied to Cat5's topic in Related Issues & Disorders
Before I was diagnosed with Celiac 10 months ago, I bruised very easily and also had frequent nosebleeds (real gushers). After going gluten-free, the bruising got better and the nosebleeds stopped. It took 4-6 months. I have been supplementing with probiotics, fish oil, B12 and a stress-B everyday. I really think it helps a lot. Not only do I bruise less... -
ARCHIVED Dreading Telling My Mil
SillyBoo replied to goldyjlox's topic in Coping with Celiac Disease
I think the letter is wonderful and a very positive approach to dealing with your MIL - just one thing to think about before you send her something like that: Are you really willing to eat what she bakes? Do you think she will be strict in her no-gluten, no cross-contamination efforts? I know that my own mother has proven her unwillingness to meet my... -
ARCHIVED Is Anyone Here Rh-negative?
SillyBoo replied to Ellenor Whitty's topic in Related Issues & Disorders
Chalk up another one. I, too, am O- and have celiac. Very interesting! -
I also found it difficult to work a regular full-time job. I was diagnosed last fall, while out on medical leave (I couldn't work at all at that point). I ended up quitting my job after a few very frustrating months back at work. My brain fog and fatigue, although better once off gluten, interfered too much for me to do a good job. So, I am now doing consulting...
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ARCHIVED Glutened At Hair Salon
SillyBoo replied to ginghamkim's topic in Coping with Celiac Disease
I don't think it's far-fetched at all. I had problems with a gluten-containing hair product (not spray), which I assume got into my system when I washed it out or from touching my hair and then my mouth, or just from contact with my pillow. It's hard to know. Many people have reactions from being in a bakery, pizza restaurant, or other place with wheat... -
ARCHIVED Gluten Free Dining In Downtown Denver
SillyBoo replied to sullystaub's topic in Gluten-Free Restaurants
I wouldn't trust Chipotle (mentioned above). Whether or not they change gloves or use a separate press for the corn tortillas, there is still a huge cc issue with the spoons. Ever watched them make those burritos? They spoon out the beans, meat, whatever, touching the spoon to the flour tortilla, then plop the spoon right back into the containers. No thanks... -
Annie, is it the Joico K-Pak Reconstruct that you used? Just curious if you're having difficulty with the same stuff that I'm using. It doesn't have any obvious gluten in the list of ingredients, but who knows??I'm still having a tough time recovering after 7 months gluten-free, and wonder if I, too, am getting glutened by something like this.
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ARCHIVED 10 Things I Hate About Celiac
SillyBoo replied to Mtndog's topic in Coping with Celiac Disease
Here's my biggest: Having to quit my amazing job because my employer didn't understand the nature of this illness (particularly the effects pre-diagnosis), and was unwilling to accomodate my needs.BTW, I worked in public health, yet still no understanding... -
ARCHIVED Need To Expand Diet
SillyBoo replied to SillyBoo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for these helpful suggestions. I never thought about fermented salads. Hmmm... And cooked veggies in a salad might be the way to go for now. It's really good to hear a success story on adding foods back, although I do realize that my timeline may differ. -
ARCHIVED Need To Expand Diet
SillyBoo replied to SillyBoo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for these great suggestions! I must admit that wilted salad has no appeal, but I could certainly make a salad of cooked beets and other cooked veggies, I suppose. And sweet potatoes are wonderful - thanks for the reminder. I will be very happy to let my family know that I MUST splurge on lobster when I'm getting down! I hadn't even thought of that... -
ARCHIVED Need To Expand Diet
SillyBoo replied to SillyBoo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm sorry to hear that your diet is even more restricted than mine! I try to tell myself "it's only food". And really, I'm ok with that. But I can't help wondering if healthy cravings (such as salad) indicate a nutritional need. It's not as though I'm craving things with gluten (pizza, cake, cookies) that I know I don't need. I would think the lack of fatty... -
ARCHIVED Need To Expand Diet
SillyBoo posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been gluten-free for more than 5 months. I feel pretty good as long as I severely restrict my diet - no dairy, soy, eggs, nightshades, legumes, spicy foods of any kind, or RAW VEGGIES. I eat fruits, cooked veggies, poultry, fish, rice, and occasionally nuts, buckwheat, and corn. That's it. Now that spring is here, I am craving salads, but I know... -
ARCHIVED Anti Social When Glutened?
SillyBoo replied to Slackermommy's topic in Coping with Celiac Disease
I also get antisocial when glutened. Part is just feeling too crummy, but the main part is that I cannot communicate coherently. It's difficult to understand what people are saying, and harder still to respond. This has recently contributed to having to quit the job I have had for 5 years, so it's not just that I miss social events. It truly sucks! I think... -
ARCHIVED Question About The "other" Allergies Shown By Enterolab
SillyBoo replied to Gentleheart's topic in Related Issues & Disorders
I can't anwer your question about the permanence of these allergies, but I currently cannot eat any of those proteins. And I'm not too friendly with most legumes right now, either. I can't imagine doing this as a vegetarian! What a challenge! I was vegetarian for many years, but would really be stuck right now without chicken and turkey. For those who... -
ARCHIVED Gluten And The Brain (more Info)
SillyBoo replied to Nancym's topic in Publications & Publicity
I have had a similar experience - I feel as though my brain is back. Although, it is still a bit elusive at times (gluten-free less than 4 months), my brain is functioning much better than it had been for at least a few years. I'm hoping it will continue to improve. But I still have other wierd neurological effects - not sure when or if I can expect those... -
ARCHIVED Good Example Of A Little Bit Of Knowlege Being Dangerous
SillyBoo replied to mamatide's topic in Publications & Publicity
For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!