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VioletBlue

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Everything posted by VioletBlue

  1. VioletBlue
    I'm still working on letting go of the anger. It's been a bumpy ride, being fine for awhile and then something happens to remind me of what I can't have or can't easily do and the anger comes back. It comes back with less and less force each time, but it's still very much there. Yes, I was relieved to have an answer, but that relief doesn't make my life...
  2. VioletBlue
    I'm tired of the freaking dreams. I know it's a type of anxiety dream. But do they ever stop? I dream all the time about accidentally eating gluten. I chow down a piece of bread or a cracker or something and then go "Opps, I can't eat that, it has gluten in it" and then I panic in the dream because I know the gluten is going to make my life miserable...
  3. VioletBlue
    Mmmm, I envy you. You're close to the water. There have to be one or two fish markets, or asian markets? Asian markets often carry the freshiest fish. There was a Ranch 99 market in N. Hollywood where I lived for several years where some of the fish was still moving when they turned it out onto the table, LOL. Do you have a Ranch 99 market near you?...
  4. VioletBlue
    I tried the apple vinegar but could not stomach the smell. The taste was not the problem for me, but the smell was too much. I tried apple cider vinegar pills and those worked without the issue of smell. They were not a miracle for me, but they did help. Unfortunately I couldn't handle the malic acid content in the end and they started burning all the...
  5. VioletBlue
    Diarrhea is not my most obvious symptom of accidental glutening. Neurological emotional/psychological, motor problems and GERD are how it's most likely to show up for me. Not everyone reacts exactly the same way to gluten, and your reactions can change as the damage progresses. Your reaction may depend on how much gluten you get, what kind of gluten and...
  6. VioletBlue
    There are a couple threads in the Related Disorders & Research room regarding Dermographia. That may be what you're talking about? In my case it started just before I was diagnosed. Someone suggested it might be related to damage to the mylen nerve sheath. It could be stress. It could be an allergic reaction. I don't know. I'd never heard about...
  7. VioletBlue
    I'm told it can take anywhere from six months to a year or more to get all the gluten out of your system. On top of that, Celiacs are more likely to have other food intolerances and allergies which can cause similar symptoms. Every instance of glutening can take weeks in my case to get over. So it may well be that every time you eat gluten you re-set the...
  8. VioletBlue
    My hair started to thin in my twenties. I'm 45 now. It is embarrassing and I've tried Rogain in the past before I was diagnosed with only moderate success. I gave up on vain a couple years ago. There's just no way I could be. It's obvious I have very thin hair and all the hair care fluffing volume products in the world can't begin to disguise it...
  9. VioletBlue
    The body throws off most excess B vitamins so not to worry about that: Open Original Shared Link Iron is another story, you can overdose on it, but I'm taking huge doses of an iron complex and have yet to even approach normal. From everything I've read and experienced, getting vitamin and mineral levels back up to norm is tough initially. I've been at...
  10. VioletBlue
    Hi Steve. Would the sulfur be in the form of MSM? I've been reading up. Fortunately I have some Chondroitin/MSM tablets from the pre-Celiac diagnosis days. I was taking them to ease the joint pain I was having. Well, I no longer have the joint pain, but I bought a two for one deal on the tablets. They're still in date and gluten free. The dose is ...
  11. VioletBlue
    I've mostly used salmon for sushi, in part because we've got limited options up here. Well, and I love raw salmon. The wild salmon is tough to work with, but has a different flavor than farm salmon, just a little wilder tasting and not as uniform a texture. Occasionally Vons will have a good piece of tuna that doesn't cost an arm and a leg. Tuna really...
  12. VioletBlue
    I started a similar thread here a while back about Dermographia. I had little response except sympathy, LOL. I have been suffering from Dermographia for awhile now. Antihistamines have no effect, unless I take them in very high doses. But the high doses make me extremely physically uncomfortable and drowsy so I've chosen to live with it for now. I have...
  13. VioletBlue
    You can also get a type of double vision effect if the curvature of the contact lens isn't right. I went through four pairs of lens before getting the right curvature last time. I'd look up at the Moon at night and there would be a second ghost image beside the moon. The better the curvature got the less the ghost image. Some doctors seem to have a hard...
  14. VioletBlue
    I think Celiac Disease can be a watershed moment in someone's life. I can't offer practical advice about how to navigate your life because I live a very different life. One of the things I've come to realize is that life cannot be the same anymore; no getting around that. I think though that this realization is going to mean something different to...
  15. VioletBlue
    This is just a thought. As your eyes get older their ability to focus tends to be effected. If you find yourself doing close up work like reading a book or looking at a computer screen and then gaze across the room your eyes won't be able to refocus as quickly as they once could. It can take several minutes to refocus. The eyes are like every other part...
  16. VioletBlue
    I've lost count of how many times I've had a meltdown in the supermarket. Once it was because I discovered Vons stocked gluten free items. I cried for joy. Then I had another meltdown when they remodeled the store and removed all the gluten free items. Another meltdown when the store was out of CF Diet Coke, the only soda I drink. Then there was a go...
  17. VioletBlue
    Do you suffer from anemia? Have you had recent blood tests to determine vitamin and mineral levels? I don't know your history, or how bad it's been for you, but Celiac can deplete crucial vitamin and mineral stores. The pins and needles, the twitches, the skin, the fatigue, even the paranoia could be a matter of vitamin deficiencies caused by the Celiacs...
  18. VioletBlue
    Does anyone else suffer from this? It's a form of hives. It's present pretty now 24/7 and eliminating foods, changing diet, switching laundry detergents - nothing seems to help. The doctor seems to think it's stress causing it. I've tried a couple different anti-histamines with no effect. It's just annoying and people look at me funny. I try and remember...
  19. VioletBlue
    But one has to wonder what is the downside of playing with the body's natural processes like that? What's the trade off in suppressing any part of the system from working the way it's designed to? I'm sorry but I just don't see the point in playing western medicine's trade off game anymore. I don't want to take a drug and ten years down the road find...
  20. VioletBlue
    I use Pantene hairspray and hair care products. The hairspray appears to be fine. I use the humidity formula since it leaves my hair the softest. I've used a couple different formulas of theirs without a problem. You need to read the labels. I believe they have a conditioner with gluten in it, but the majority of their formulas are safe. Violet
  21. VioletBlue
    I'm in Big Bear in San Bernardino County south east of Los Angeles. I've taken to making my own sushi. There's a sushi place in town but it's so expensive. Discovered making sushi isn't all that hard really. I'm picky about the fish I use, but homemade sushi has become a staple. I don't bother with restaurants much. I can't have corn or anything...
  22. VioletBlue
    In place of wine coolers I've taken to mixing wine with soda water or flavored soda water. It's a cheap version of a wine cooler. Just make sure the flavored water is gluten-free. violet
  23. VioletBlue
    I was taking maximum strength over the counter Zantac every night prior to going off gluten. I tried Prilosec at one point with zero effect, LOL. I went on the gluten-free diet in December 06. It took three or four months of the gluten-free diet before I could stop with the Zantac. I think the small intestine needs time to heal from the gluten damage...
  24. VioletBlue
    I don't know about most people. I can only tell you about me. Most importantly I stopped gaining weight when I went gluten free. I'd been steadily gaining weight for a couple years prior to that. I had probably been an active Celiac for 10 years prior to diagnosis. The bloating also stopped so clothing suddenly fit much better. There are no more...
  25. VioletBlue
    The safest ice cream I've found is Hagan Daaz vanilla or chocolate. The chocolate had a total of either five or six ingedients, no preservatives or flavor enhancers. Ruffles potato chicps have potatoes oil and salt with zero trans fat. Fritos have ground corn corn oil and salt. I look for the shortest simplest ingredient list I can find.
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