DebJ14
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DebJ14 reacted to a post in a topic:
Diagnosed gluten allergy but not Celiac
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Finding gluten free ingredients
DebJ14 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
As my doctor said, you don't have to eat breakfast food for breakfast. I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting. In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna. For dinner I have pork, shrimp, chicken, lamb... -
ShariW reacted to a post in a topic:
Newly Diagnosed
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Scott Adams reacted to a post in a topic:
Newly Diagnosed
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Newly Diagnosed
DebJ14 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was tested for nutrient deficiencies and Thiamine was not my problem. The doctor uses the Spectracell Test for Micronutrient Deficiencies. I was deficient in Carnitine, Magnesium, multiple antioxidants, D, Selenium, B12, B6 and a long list, just not Thiamine. -
Beverage reacted to a post in a topic:
Newly Diagnosed
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Newly Diagnosed
DebJ14 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Migraines ran in my family, on my father's side. All of my female first cousins on that side, and our grandmother suffered from Migraines. Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007. The dermatitis herpetiformis... -
Scott Adams reacted to a post in a topic:
Finding gluten free ingredients
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Scott Adams reacted to a post in a topic:
Newly Diagnosed
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Finding gluten free ingredients
DebJ14 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
I did well on gluten-free, but continued to have issues a year down the road. Testing for food allergies and sensitivities revealed severe IgE allergies to yeast and dairy as well as food sensitivities to 23 other foods. I got better after taking out those foods, but it was not until the doctor recommended I go completely grain free did all my issues resolve... -
DebJ14 reacted to a post in a topic:
Finding gluten free ingredients
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Newly Diagnosed
DebJ14 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Personally, I would get a new GP. Advice to continue eating gluten, even after a Celiac disgnosis, is ridiculous. Clearly the GP knows nothing about the disease. That advice could be dangerous to your health. I too found out by accident. I was searching for help with ulnar neuropathy. The first doctor took xrays of my elbow and hand. Surprise, surprise... -
Our son was put on Minocycline for his acne. It did not solve the acne problem. He developed drug induced lupus and pericarditis from it and missed an entire year of high school. He literally went from playing football to bedridden in a couple of weeks. His PCP tested him for genetic antibiotic resistance and he cannot take any drug in the Tetracycline...
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DebJ14 reacted to a post in a topic:
Newly diagnosed, struggling
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Scott Adams reacted to a post in a topic:
Does anyone here also have Afib
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Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies. It tests the intracellular levels of the nutrients, not blood levels. When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests. I have a genetic inability to process...
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Scott Adams reacted to a post in a topic:
Does anyone here also have Afib
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It was a long road to get to this point, but we have discussed many times that if my husband had not seen the remarkable transformation in my health with just diet and supplements, he never would have accepted the advice of this cardiologist. He would have thought he was a quack and found another doctor. As it was, he was leery of seeing this guy, but his...
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Scott Adams reacted to a post in a topic:
Fodzyme
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larc reacted to a post in a topic:
Does anyone here also have Afib
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I had an Elisa blood test for 90 Antigens run looking at IgG4 and there were 23 foods on the list that I reacted to. Some reactions were mild, some moderate and some severe. My yeast numbers were off the charts so they also did traditional allergy testing for IgE on both brewers and bakers yeast, They came back super positive, so all yeast is out. The...
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My husband has had occasional A fib since 1986. He spent years on Digoxin and Quinidine, with no reduction in the number of episodes. Then, he was put on Verapamil as a pill in the pocket and did fine for about 5 years until it stopped working for him. Then he went on Flecainide as a pill in the pocket. His first 2 cardiologists had him on a "heart healthy...
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knitty kitty reacted to a post in a topic:
Getting sick much more often
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I had the exact opposite thing happen. Prior to my diagnosis and introduction of the gluten-free diet, I was sick all the time. My file at the ENT was so thick because it was one upper respiratory infection, one sinus infection, one ear infection after another. Year after year after year. I have only been sick once in 18 years and I know exactly who gave...
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Good luck to you. I would not get past that first slice of bread. I would be vomiting and have diarrhea within 30 minutes and it would continue for hours and I would feel like I was hit by a truck for days. My functional medicine doctor told me to stop taking Calcium and to significantly up my Vitamin D, add K2, lots of Magnesium, some boron and collagen...
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Royal Caribbean Only, Please
DebJ14 replied to AuntieAutoimmune's topic in Traveling with Celiac Disease
We are off next week on our 9th RCCL cruise since our diagnoses. I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free. Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu. Instead of having... -
Enegy level extremely low
DebJ14 replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My iron was not low, but my B-12 levels were extremely low. I had zero energy. I had micronutrient testing and I was put on a boatload of supplements. Everything recovered pretty quickly except for my D, B12 and antioxidant levels. The doctor ordered genetic testing and found that I have a genetic inability to process all three. Thus, my dosages were... -
Toddler Diagnosis?
DebJ14 replied to CatLady15's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
They will have to put him back on gluten in order to get accurate tests results, so all the progress may be lost for a while. My grandson was 2 1/2 years old when he, his father, and his mother, were diagnosed. He was not even on the chart for height or weight and had not been on the chart since he was 12 months old. The first month he went gluten...