DebJ14
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Latest Celiac Disease News & Research:
Everything posted by DebJ14
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Worsening symptoms post diagnosis
DebJ14 replied to mBird99's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your intolerance to lactose may actually be an intolerance or allergy to the protein casein that is found in dairy products. My doctor told me that the protein casein is very similar to the gluten proteins. Try cutting out ALL dairy and see if it helps. I also have to agree that it takes a while to master the gluten-free diet. My doctor went one... -
Recurrent Aphthous Stomatitis Points to Anemia and Celiac Disease
DebJ14 commented on Scott Adams's article in Skin Problems and Celiac Disease
I had these ulcers in my mouth all the time from early childhood until I was diagnosed at the age of 54. My dentist was shocked when I went for a check up and did not have any in my mouth. I explained about the gluten connection. Sadly, this University of Texas trained dentist had no knowledge of this. I took him several medical journal articles to review... -
After I was diagnosed I had a gluten reaction after eating eating gluten free bread. I knew it was gluten-free because I made it myself. It turns out that I am highly allergic to yeast, both brewers and bakers. So, nothing that contains yeast for me. As for other comments about a thiamine deficiency - after I was diagnosed I underwent the Spectracell...
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I always had low B-12 on blood work and was diagnosed with B-12 anemia on multiple occasions. After heavy supplementation after diagnosis the levels improved, but not to where the doctor thought they should be. Genetic testing showed a genetic mutation that leads to low B-12.
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Nausea and Vomiting Are Key Symptoms of Gluten Exposure in Celiac Patients
DebJ14 commented on Jefferson Adams's article in Latest Research
Same here. I vomit within 30 minutes of ingesting any gluten and also have the chills and sweat profusely. My daughter in law gets a migraine within 30 minutes. -
You could also have other food allergies or sensitivities. After being really vigilant for a year one Thanksgiving I felt like I did before going gluten-free. The doctor had me come in the next day for blood work. It turned out that my first gluten free Thanksgiving extravaganza was just poison for my system. The gluten free stuffing contained yeast - off...
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I see that you were newly diagnosed. Have you been tested for nutrient deficiencies? I had chronic constipation for years resulting in assaults to my rear. Once the nutrient deficiencies were identified and I was put on large doses of magnesium and antioxidants, including Vitamin C, the constipation went away. Many of my Vitamin and mineral deficiencies...
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I have been glutened 3 times in the past 5 years, all on cruise ships. In each case I was assured it was my gluten-free meal, even after questioning the waiters. In all 3 cases I barely made it back to the cabin before projectile vomiting and explosive diarrhea started. The last episode, in early November 2019, had me in the bathroom for 4 hours. After...
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Exactly what I was diagnosed with!
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My tilt is a form of gluten ataxia.
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You will probably get nowhere with the gastro regarding the other tests for food allergies and sensitivies and the epigenetic testing. You will need to find a good functional medicine practitioner for that. Many of my symptoms from the food intolerances were the same as before I went gluten-free. I call it my tilt, but I could not walk a straight line...
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Official biopsy results in
DebJ14 replied to Keight's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So glad you found out. It only took me 54 years to get a diagnosis and the reason I initially saw the doctor was for an orthopedic problem. After a thorough physical he said that was the least of my problems and he was 99% sure I had a gluten problem. He sent me straight to the lab. The results were off the charts positive, but due to other health issues... -
Mine lasted months. I got relief when my doctor suggested a 5 day water fast. At the end of the time, all my aches and pains were gone. He said it was because it might not just be gluten causing the inflammation. So, giving your body a rest from all inflammatory food helps it to heal. I have made intermittent fasting part of my daily routine and usually...
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I am so sorry you are dealing with this. Sounds like my story about 11 month after going gluten-free/CF back in 2007. I was feeling great until Thanksgiving rolled around. As I prepped the gluten-free Thanksgiving dinner the day before the holiday, I was of course tasting everything to make sure the seasoning was OK. As the day wore on I felt worse and...
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ARCHIVED Anyone Thought Of Making A Packet For Doctors And Patients?
DebJ14 replied to Offthegrid's topic in Coping with Celiac Disease
When I got my results back my doctor sat down with me for an hour and went over the specifics of the diet. He gave me a really good explantion of how the gluten attacks the body as well as web references where I could learn more about gluten free eating. He also gave me a list of restaurants in our area with a gluten-free menu, a list of food items that... -
ARCHIVED Can I Develop New Food Allergies?
DebJ14 replied to CandaceJ's topic in Coping with Celiac Disease
You might want to see about getting an IgG4 antigen specific blood test done. The one I did recently tested for 90 different foods. In addition to being gluten intolerant, I react to milk, beef, pepper, chocolate, vanilla, tea, cinnamon, blueberries, cranberries and yeast plus a bunch of others. When I removed the offending foods all of my remaining symptoms... -
ARCHIVED I Think I'm Going To Eat Gluten On Purpose!
DebJ14 replied to LoriG's topic in Coping with Celiac Disease
I completely agree with idea of checking for other food intolerances. It is a toss up which is worse, my reaction to gluten, corn or dairy. Also I would recommend testing for nutritional deficiencies with something like the Spectracell test. If your gut is damaged then you are probably not absorbing nutrients which will make you fatigued. Magnesium, iron... -
My son was on Plaquenil when he was (mis)diagnosed with Lupus. It made his stomach issues worse. When they realized his diagnosis was wrong it was the first drug they pulled. The doctor said it was potentially very damaging. I had never heard of it being prescribed for Celiac. That may not be an FDA approved use of the drug. Have you considered other...
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Your problem may not be gluten alone. Many of those intolerant to gluten also have problems with dairy (either lactose intolerant or casein allergy or both) or soy or other grains such as corn. I was immediately better after going gluten-free, but continued to have problems. I had the Allergix IGg blood test for 90 different foods and they came back positive...
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If you are interested in really getting down to brass tacks with the lifestyle management then I can recommend Town Center Wellness in Sugar Land. Dr. Osborne is a Chiropractor, but is also the only board certified nutritionist in Ft. Bend County. He is big into testingfor nutritional deficiencies and monitoring progress. He has completely turned my life...
