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Karwei5

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Karwei5

  1. Karwei5
    I am asking about my son who had celiac and Down syndrome. He has had a rash we have been trying to control for 2-3 months. Doctor at first thought it was eczema, the steroid cream did very little to help it. I changed his soaps to dove. still very little relief. Then I tried an otc antihistamine and that did reduce the itchiness and spots. After 10 days...
  2. Karwei5
    He is eating eggs over easy bagel cream cheese I thought it was the eggs of the amount of caffeine or greasy he drinks but if he eats later he is ok It is a bit of problem with him having to get to school on time I hate to give him cereal for breakfast as that won't stick with you long and he would be hungry again before lunch He likes if I...
  3. Karwei5
    My son was diagnosed a year and half ago. We have had our ups and downs with keeping his food gluten free. He has Down syndrome and has to rely on others to read labels (he is 20 years old now) Basically it is me(mom) Dad and his teacher that are responsible for his food. This spring his Dad gave him beef sticks with gluten and he was getting rice...
  4. Karwei5
    Just adding in that my son has a positive blood work and negative biopsy. The Dr said he didn't have celiac disease and see ya! 5 years later he finally showed visible damage and was puking everyday for 2 months. If your DD is sick I would go gluten free regardless of what the Dr says. Karol mom to Billy 20 years old Down syndrome Hypothyroid and Celiac...
  5. Karwei5
    I have been tested by saliva and have adrenal fatigue. ( I do not have celiac disease my son does) My thyroid tested ok. My Dr also tested all my hormones and I was lacking in progesterone. My alternative md prescribed me progesterone, Licorice root and panax gensing. I was on the licorice root for only 3 months then he took me off of that and switched...
  6. Karwei5
    That made my son so sick. He has gastritis too. I restricted his diet more and he was better last week Th-Sun. Sunday night I made him a cheese crusted pizza. They are very greasy. A little over an hour after that he was in so much pain and sick. A couple of weeks ago he got really sick later after a hot dog. Greasy foods was one of my suspects. I wasn...
  7. Karwei5
    I am still having issues with my son. He was diagnosed in January by biopsy. His main symptom was throwing up everyday and multiple times along with pain and grumbling. He got the sickest after eating chocolate at Halloween. At that time he could not eat any chocolate w/o throwing up and a lot of pain. We started him on the gluten free diet. I did not...
  8. Karwei5
    I think it would be best just to go completely gluten-free all at once. We started with chicken rice, mixed veggies. We made a stir fries a lot. I just added more water to make more juices instead of using a soy sauce. Egg salad w/ gluten free crackers and lettuce cheese meat roll ups are a staple too. He didn't like corn tortillas very much. good Luck...
  9. Karwei5
    My problem with this company is that they very aggressively market to parents who have children with Down Syndrome and it very much does not cure or repair or anything else for Down Syndrome. There may be evidence it helps with other things but I don't agree with their marketing on parents that may be struggling with a Down syndrome diagnosis. If there...
  10. Karwei5
    My son had very high numbers on his blood test.TTG 156 and then a neg. biopsy. 4 years later got sick and missed over 2 months of school and got a positive biopsy. Diagnosing can be tricky. Karol
  11. Karwei5
    Mannatech is not my favorite company. Their marketing techniques are questionable. I would look at other companies that have similar products. I don't think they have the science to prove anything they claim. That is only my personal opinion. Karol
  12. Karwei5
    I found Noodles and Company there and it is close by so the teacher is running over to get him something there for dinner. He did get sick after lunch yesterday but is doing good now. ADDED: Billy got a #1st place in the long jump!! Awesome!! His team got 4 in the relay. It was really hot but it all worked out well and he is home...
  13. Karwei5
    I would not change his diet if youare going to a Gi. If he wants any testing done the results will br messed up. I have a cook book with goldfish cracker recipes and alot of other recipes kids would like. It is The Kid-Friendly Food Allergy Cookbook by Leslie Hammond and Lynne Marie Rominger Karol mom to Billy
  14. Karwei5
    Thanks, we are in Illinois. He did the standing long jump this afternoon. We were not ableto see that because we work. Sat. he has free. Then Sunday he will do a relay. We will be able to get down to see that. Billy is loving being away form Mom and Dad for the weekend. he especially is looking forward to the dance they have. Lots of girls to impress...
  15. Karwei5
    I am still new to this and not an expert by any means but our experience was our son had a high Ttg(156) and a neg biopsy 4 years ago. the Gi Dr in a large hospital and he was even in a magazine with his accomplishments told us no villi damage no celiac disease. Don't change his diet and see ya. No follow up care or anything. It took 4 years for the intestinal...
  16. Karwei5
    My son is 19 and has Down syndrome. He was just diagnosed in Jan. This is the first trip I have had to send him on. He is going to state Special Olympics. I packed a bunch of food for breakfast lunch and snacks. They are able to go to get take outs for him for supper. So far I have figured out Culvers chicken cashew salad is ok. I am still looking...
  17. Karwei5
    My son is going to Normal Illinois this weekend and I need to know if there are restaurants that serve gluten free items there? Thanks, Karol mom to Billy
  18. Karwei5
    Have/did you have both Celiac disease and gastritis. How was your recovery. Did the gastritis make you recovery harder? My son has both along with a moderate hiatal hernia. He did get glutened about a month ago when he got into pretzels. But I still have problems with him throwing up. I can not consistently get him healthy and reliable to not throw...
  19. Karwei5
    Another snack idea is a baked potato with chili and cheese if those things are with in his other dietary acceptable lists. My son is recently diagnosed so I don't have any good advice as he got into a bag of pretzels about a month ago. He got pretty sick. good luck Karol mom to Billy
  20. Karwei5
    I don't have any info about this but I have a couple of friends that have kids w/ Hirschsprung's and they are doing fine. They did have to have surgery but all is well with them now. If that is what you find it will be ok. It is awfully scary thinking about Hirschsprung's but if you have to deal with it you will be able to do it. Karol mom to Billy ...
  21. Karwei5
    I am not sure. Billy's Dad was helping him order. The one Billy got seemed to have soy to me. Seemed like a soy sauce type. I don't know what the other option was. I wonder if you took in your own sauce and told them you dietary needs they could use yours? I am not sure about health regulations with that though. It would be worth a try to check it out...
  22. Karwei5
    They said not to order the other things off the menu but eat at the Asian Market Bar. That is where you pick the rice, veggies and meat and they cook it at the "bar" You watch them cook it. Then they have 2 sauces. The sauces are not left on the "bar" they will ask you which one you want and bring it out for you. You have to let them know you want it...
  23. Karwei5
    We went to a Stir Crazy restaurant yesterday. Open Original Shared Link After playing at an arcade, Gameworks in Schaumburg, IL. and stopped at the Woodfield Mall. We were getting hungry as we were there longer than we expected. Looking around as to where we could take my son to eat. We haven't been out to eat much after his diagnosis in January. My...
  24. Karwei5
    Thank you for mentioning the Lays contamination problem. I was having problems with my son again and he has been eating Lays potato chips. I was also buying him ham and cheese at the deli but stopped that because I thought that was the problem. I will still not buy form the deli again. I am going to stick to pre -packed meat and cheese. We are still...
  25. Karwei5
    When your GI DR. says he(my son) can't have celiac as he doesn't look malnutritioned even after reports of a high blood test(154) 4 years previous(and a neg biopsy) and being high risk w/ having down syndrome and yes he did have a distended stomach. Good thing he accidently found it w/ a scope alongwith gastritis and a hiatal hernia. At least I had...
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