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SUZ42

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Everything posted by SUZ42

  1. SUZ42
    I just wanted to share what I did for a pumpkin pie crust. I crushed a bag of gluten free ginger snaps and mixed it with melted butter. I spread it in the pie plate and otherwise did the pie filling as always. I use the recipe on the Libby's pumpkin can. I also have just made a "pie" with the filling, no crust. I cook it as directed on the can. Everyone...
  2. SUZ42
    Does anyone have restaurant suggestions for Cocoa Beach and St. Augustine Florida? Thanks in advance Suze
  3. SUZ42

    ARCHIVED Joints Ache!

    SUZ42 posted a topic in Coping with Celiac Disease

    My hip has been hurting (almost constant sharp pain radiating to knee) for about a month. I have a bad back so it does hurt off and on for years. But today most of my joints ache/weak. Shoulders, elbows, wrists, ankles, neck. Especially my wrists. Now I'm wondering if the hip is related. These aches are new. I made a huge mistake and was most likely...
  4. SUZ42
    Just a heads up about a drug manufacturer. Watson Pharmaceuticals is not a gluten free facility! I spoke with a pharmacist there this morning and she said "we don't test any of our products for gluten." I take a generic fiorinal that is manufactured by them. I have been getting a reaction similar to a gluten reaction from other sources - increased heart...
  5. SUZ42
    OK, I believe I glutened or caseined myself a week ago. I am still sick! How long can this last???
  6. SUZ42
    I also get mouth, or should I say tongue, irritations. I have a geographic tongue and when I get a trace amount of gluten - such as second hand beer from kissing, my tongue gets circles and ridges and it is tender. This is always my first and sometimes only sympton of being glutened.
  7. SUZ42
    I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid...
  8. SUZ42
    The Anhieser Bush Redbridge beer is gluten free. It is sorghum based. It actually tastes good. I don't know if bars/rest carry it, but it is at my local ABC package store and it doesn't cost anymore than the other beers.
  9. SUZ42
    I fell extremely lucky in finding my current partner (the first since being diagnosed and hopefully the last ). She found out on our first date and has been very thoughtful ever since. When she cooks us dinner she really goes the extra mile looking for foods/recipes that don't have any gluten. And at resteraunts she is more concerned than I am, actually...
  10. SUZ42
    I have been "fighting" a vaginal yeast infection for a little while now. Had my 2nd treatment on Monday. Could being glutened cause a vaginal candidiasis? I have been glutened twice accidently in August. And my new partner is a beer drinker. Without brushing teeth between beers and kissing, etc, could this be causing my problems? Any ideas??? I can...
  11. SUZ42
    Terrible stomach pains/cramps and incredible nausea were my most distressing physical symptoms. I would also litterally have to eat every 2 hours because of the intense hunger. Yet I lost weight. I had to tell the doc it is the actual stomach, not my intestines. When I would say stomach, the docs would automatically think I was talking about abdomen....
  12. SUZ42
    Is this daily? Thank you, it does help.
  13. SUZ42
    I used to take B12 1000mcg monthly by injection, but decided to skip it last month in hopes that I didn't need it anymore. Well, I think I do. The exhaustion finally hit me yesterday. I would like to try the pill form before going back to the shots. I've been doing the shots since 2004. Anyway, I remember a thread about B12, and wonder if the folks who...
  14. SUZ42
  15. SUZ42
    You certainly won't be alone in asking for the gluten-free foods. My adult dtr and I are going to be at Disney World the week of June 17th! I emailed (the person to e-mail is in earlier posts about DW. I can't remember her e-mail address now.) I was e-mailed back resteraunts and foods available at all the parks and our resort we're staying at. I did...
  16. SUZ42
    Thank you for the replies. I'm starting with the shampoo/conditioner. I threw them away yesterday. BTW - it was Suave volumizing NOT Salon Selectives. The meds will have to wait until I go back to the Doctor 7/3. I will ask for the Protonix. And if I'm not doing better I'll ask about increasing the Cymbalta back up to 60mg. The rotten thing is I...
  17. SUZ42
    I've been gluten-free since 3/18. And feeling good most days. But in the past few days/week, maybe, I've been feeling like I did "before". Sad/down in the dumps, argumentative, cold, sleeping a lot, lower leg discomfort, abd discomfort, bloated/gassy and the brain fog, oh my. Anyway, I did three things at the same time around May 10th. 1. Started...
  18. SUZ42
    I had all of the above except diarrhea - mine is constipation, plus some other problems. But I did not have severe abdominal pain. You can have Celiac disease without presenting any symptoms. Some haven't had any GI probs but have depression. In otherwords, no two people with Celiac have the very same symptoms. Personally I would forgo the biopsy and...
  19. SUZ42
    Thank you everyone! I will give it a try. I think I'll start with the premade frozen crust though. I never was a big bread eater but reading your responses has made me hungry for it.
  20. SUZ42
    I'm really wanting a pizza and a sandwhich or garlic bread. It's been about 9 weeks now and it's sounding pretty good to me. I was looking around the gluten free mall pages and was wondering about the Chebe brand. Are they any good? I am kind of leary about buying this stuff on line, but I live in a small town with no other options, really. Any brands...
  21. SUZ42
    DQ 3 (8) is a Celiac gene. I'm paraphrasing here, but: It is quite rare. Only abt 9 % of DQ 3 Celiacs carry this gene. It is found in peoples of Southern European/Mediteranean dissent (spelled wrong). I got this info from a couple places, I think EnteroLab was one of them. Suzanne
  22. SUZ42
    DQ 3 (7) DQ 3 (8)
  23. SUZ42
    I am a nurse and I work in a large rehab center. The nurse managers are providing B/L/D tomorrow for nurses day. They asked why I didn't sign up when the other nurses in my office did. I explained, "I have Celiac." Since they are nurses, I didn't have to go any further. Some of these already knew. Their response was, "Well, you can come watch everyone...
  24. SUZ42
    It is much cheaper through EnteroLab!
  25. SUZ42
    I am wondering if eating casein can cause symptoms like gluten can? I have been gluten free and really try not to eat casein. The only time I do is with butter (on a potato), coffee cream and milk chocolate, and these are not daily. But the other day I got so sick with bloating, pain, gas. I reread my journal and the only thing I did differently the day...
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