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Eriella

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Everything posted by Eriella

  1. Eriella
    Hello, First of all, it does get better and easier. It sounds like you aren't getting the right combination of foods and that you are getting glutenated from the surrounding gluten in your kitchen. You can't eat anything that has touched gluten and you should have separate pots and wooden spoons. Also, you need to make sure that you don't use the same...
  2. Eriella
    I agree. You completely have the right to be a pain in the neck when it comes to your health and the doctors have the responsibility to give you that information in a timely manner. I would continue calling as soon as the center opens every day to see if you can get an answer. My GI and GP do paperwork at lunch time and after hours, which means that by you...
  3. Eriella
    In answer to the original question-- my doctors were far from the best and when I told them "bread" made me sick they told me to take disgusting stool softeners, so I followed my mom's advice and stopped eating bread and stopped having GI issues. Then, after making 1500 sugar cookies from scratch and spending all night crying on the floor from the stomach...
  4. Eriella
    I agree-- the treatment is simple and something you can do yourself. My thoughts are that having dealt with so many incompetent doctors, I would not recommend going to a doctor who doesn't have at least some experience with gluten issues. If the one at Georgetown has experience, save the time and go there. If you get the dx, that is all you need (and you...
  5. Eriella
    Hello-- First of all, unless you were eating 4-6 slices of bread a day (or the equivalent) for 4 months or more, it is highly unlikely to test positive. So you could have celiac disease still. I would go 100% gluten free for 2 months, if your symptoms go away you have a gluten intolerance. You can do the genetic test at a later point to figure out if it...
  6. Eriella
    Hello, The doctors at Columbia are fantastic, and I would recommend listening to their advice. However, Georgetown is a great school and medical facility. I do not know how experienced they are in celiacs, and pediatric celiacs. Columbia does. I know you would hate to wait and see your son suffer, so see how early you can get in. If you can get an appointment...
  7. Eriella
    One of my co-workers was nice enough to bring in iced coffee to the office. I know their coffee is gluten free, but this was a pre-made mix with milk and sugar in it. Does anyone know if it is safe? I looked online and it doesn't give any nutritional information and there is no phone number to contact WaWa. I've emailed them, but I was hoping for an answer...
  8. Eriella
    My acne/ allergy spots cleared up now that I have been gluten-free for a while. This is especially true if you had constipation issues, because you would have built up toxins inside of your body which make it react with the acne. Good luck with yours!
  9. Eriella
    Dairy!! That is what causes mine.
  10. Eriella
    Your symptoms do sound familiar. If you have constipation problems, it won't clear up in just two weeks, especially if it is severe. Try going off of gluten for a month, making sure that you eat at least 10 servings of fruits or vegetables and drinking lots of water. Also try to say on the 4 Foods diet (rice, vegetables, fruit, and lean grilled meat/eggs...
  11. Eriella
    These sound very familiar... Because your blood work came back negative, it means a couple of things: you do not have a problem with gluten, your body doesn't produce antibodies to the gluten, but absolutely can't have it (me); or the test was wrong. The easiest way to find out is to go 100% gluten free for 60+ days to see how you feel. There is no risk of...
  12. Eriella
    Whether you notice your symptoms easing right away depends on what they are and how sensitive you are. My overall state of self improved within 24 hours (but it could also be that I got my test as I was starting a 3 day weekend after a stressful week ), neurological symptoms (ADD-like and brain fog) went away within a few days, my energy level increased...
  13. Eriella
    I am horrible ball of hormones on pasta, as is my sister (who we think is has it, but our family doesn't produce antibodies). I am addicted to it, and I find that Tinyada is just as good as regular pasta. I have even served it with friends and family who get half way through the meal before realizing that if I am eating it, it must be rice pasta. I made...
  14. Eriella
    Mine was about 10 days... and I was so certain it was positive because immediately after the test I stopped eating gluten and within 24 hours I felt better, and by the end of the week I had a normal bowel movement!!! Then the nurse gave me the same wonderful information you got: normal-- or specifically 0. I literally broke down on the phone asking how it...
  15. Eriella
    To quote my mother: "if it makes you sick, why are you eating it?" If your daughter feels better off of gluten, keep her off. It won't become an issue until she is in college and needs a diagnosis to get an acceptable meal plan-- and that is a long way off!!! First of all, you are not malnourishing your child as long as you are feeding her a balanced diet...
  16. Eriella
    Gluten affects me for a long time-- up to 3 weeks! Make sure that there is no hidden gluten in your diet-- shampoo, lipstick, utensils..., then I would suggest going off of dairy as well. I have dairy issues that didn't show up until I was gluten-free for about 2 1/2 months. Because lactase (the enzyme that digests milk) is produced by the villi in...
  17. Eriella
    Romantic meals (or even non-romantic good food) are easier than what I would have thought. My bf's parents are foodies and have managed to make really good food, normal food everytime I come over. Some of my favorites are: Surf and Turf (steak and lobster are yummy and gluten-free) Chicken pasta: boil a bag of Tinkyada penne, while cooking saute an...
  18. Eriella
    There is no right or wrong answer. Because the test is Thursday, stay on full gluten until the test, when they will do a skin biopsy and possibly run blood work. I would also call your primary care physician and see if they can order a "Celiac Blood Pannel". They should know what that is, and may be able to run the test without you coming into the office...
  19. Eriella
    Well the best thing is to brainstorm and come up with questions. The main thing is figuring out what foods your daughter can/will eat and how to make sure she gets the nutrients that she needs. Make up a list of 20 of her favorite food and all of the foods that she won't touch. Also write down her typical meal plan so the nutritionist will get an idea of...
  20. Eriella
    This is what everyone at my office is on: 1st thing in the morning-- 20 oz of water and 2 pieces of fruit (I like a peach and a banana) Breakfast-- coffee or tea and high fiber muffin (Karen B's recipe is Namaste spice cake mix with 10 oz shredded carrots, chopped walnuts, and raisins) Snack-- 12 oz milk and handful of almonds Lunch-- 1 serving...
  21. Eriella
    EDIT: I am getting conflicting information: I have found several websites that say that there is not a generic form. I'll continue to look to see what the confusion is.
  22. Eriella
    Well, I am not a medical professional, but imho, if you have truly been 100% gluten free (check your prescriptions), and are not better, then go back on gluten and see how you feel. Or, the opposite approach, go off of any non-life or death medication (that includes birth control and tylenol) and eat a basic 4 Food diet (rice, meat, vegetables, and fruit...
  23. Eriella
    My doctors have some gems: - We found what is causing you the pain! It's an ovarian cyst! (But my pain is 8 inches above my ovary!) - It's just stress induced constipation. Take stool softeners every day and you'll be fine. Some people just get constipated (I hadn't had a bowel movement in 2 1/2 weeks and the xray showed poop throughout my intestines...
  24. Eriella
    Here are a few of my suggestions: - apples, carrots, pretzels, and peanut butter - bean dip and guacamole with tortilla chips - lunchable-esque meals with rice crackers, meat, and cheese - thermos with leftovers - salad - tuna/chicken salad with crackers - sandwiches on corn tortillas or gluten-free bread - gorilla munch and buy the milk - trail...
  25. Eriella
    Welcome to the board!
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