April in KC

This is a very old thread, but I haven't been on the boards for several years. I logged on to look for more info on this. My husband and I both have Celiac Disease. We have three gluten-sensitive kids, and one of them also has PANDAS. I have met two other parents whose children have both Celiac Disease and PANDAS. They're both autoimmune conditions; I...

You're sweet - my husband and I both have Celiac, and we hope when our sons grow up, they find such sympathetic girlfriends. Find out whether she wants you to attempt to cook for her at first, or if it will just make her feel nervous and pressured. Better yet, offer to cook WITH her, i.e. you'll cook if she hangs around to supervises. We do get so...

If you're going shopping in a typical store (not a health food store with a special gluten-free section), here are some things to look for: Breakfast * Chex Cereals - there are five kinds that are gluten free. They will say gluten free on the box if they are gluten free. Lunch * Progresso Soup - if you do a search here, you can find out which Progresso...

Sorry for posting something technical, but since I'm not a doctor, I wanted to go with a somewhat trustworthy source. Open Original Shared Link I'm sure there are better sources, but the abstract for this clinical research seems to imply that the inflammation from Celiac Disease itself can be partly to blame for cancers. I do think some of the increased...

Welcome! Sounds like you could definitely be gluten sensitive. Yes, barley contains gluten, and yes, I think your old bread machine might have glutened you. The quantity of gluten Celiacs can safely consume is estimated by some as 20 ppm (parts per million) and by others as none at all! Unfortunately, the human immune system can be very sensitive...

I went gluten free three years ago. I have Celiac Disease (30-lb weight loss) and DH, but some of my worst symptoms were neurological - dizziness, brain fog, stumbling, headaches, etc. When I first went gluten free, I felt great, but when I got accidentally glutened, the symptoms were terrible - I would fall asleep hard and have trouble talking/being coordinated...

For years, my husband's symptoms were not very definite, but he definitely had "GI issues." He never thought he could tie it to a specific food, and he never knew when he was going to get sick. After going completely gluten free, he no longer gets sick. If he gets glutened by accident, his worst symptoms are always the morning after. It took going...

Vitamin A deficiency can cause skin bumps almost identical to keratosis pilaris. Night blindness is another symptom of vit A deficiency.

There are little "disposable" blood sugar kits you can buy at Wal-Mart (probably other pharmacies) for about $25 or less, much less expensive than a nicer permanent meter with memory. They have a limited number of test strips, but they do the trick if you just want to test your blood sugar for about a week. You should test first thing in the morning...

Hi Fiore - I have read that a low-oxalate diet may help some women with vulvodynia. If you haven't already given this diet a try, you might scan the "high oxalate" foods on this list and avoid them: Open Original Shared Link (Please note that this list does not show a distinction between gluten free and non-gluten free foods.) I'd also encourage...

I showed my dermatologist my thin, splitting/peeling nails, and she mentioned that Biotin (B7) helps some people, especially if their nails were not always like that (for some it's hereditary). I take a Kirkman multivitamin, but it only provided 15% of the RDA on Biotin. I recently added a 1000 mcg lozenge sublingually. It will take a few months for the...

I guess I'm on both sides of this one. I found it very helpful to lessen iodine exposure for about six months after going gluten-free. It helped my DH go away and stay away. I would get noticeble flares after salty food or seafood. After avoiding iodine for some time, I developed some minor thyroid issues - I was starting to feel a lump when I swallowed...

Marcia, I haven't tried salt loading, but I'll read up on OI and salt loading to see what it's about. My orthostatic hypotension is really minor...it happens a lot, but usually just causes me to feel funny and lose vision for a little while. I've noticed that inhaling/exhaling restores eyesight very quickly - the lights always come back on the exhale breath...

Ding-ding-ding! Vitamin E was probably WHEAT germ oil.

I had a lot of fatigue and insomnia issues prior to going gluten-free, and things got better but also really weird for about a year after going gluten free. I'm about 2 years in now - still have some issues, but overall things are better and better. I don't pull as many late-nighters now, don't take as many naps. RLS seems gone unless I'm glutened. I...