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JEM123

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Everything posted by JEM123

  1. JEM123
    Hi, I am also VERY sensitive to gluten and react horribly! My first signs are bone and muscle pain immediatley after coming in contact with gluten. I also get really bad brain fog and GI issues. These symptoms can last up to 7 days. I never eat gluten on purpose so when I do react it's from CC issues. I agree with the previous poster...find somewhere...
  2. JEM123
    Hi, I have been experiencing the same EXACT symptoms you listed. Did you ever find out what was wrong? I have been gluten-free for 8 months and this just started. My doctors cannot find any anwers..it is quite frustrating. Any feedback will be greatly appreciated. Thank you very much. Jem
  3. JEM123
  4. JEM123
    I reacted badly with Amy's gluten-free cheese pizza with the rice crusts. There are quite people in another forum I belong to that have glutened by other products mostly the mac and cheese and enchilada bowl. I don't chance Amy's anymore.
  5. JEM123
  6. JEM123
    Hi, Aven is oats.
  7. JEM123
    Hi, I use McCormick spices because they list all ingredients. I use their curry spice often and never had a problem with it. The packaged curry sauces I have found many wheat in them. Thanks
  8. JEM123
    Hi, I just recently purchased the Oreo cookie falvored pudding and saw nothing suspect in the ingredients. Is there something I'm missing? Kraft lists all gluten containing ingredients. Thanks
  9. JEM123
    Hi, You say you are drinking Red Bull? Is that the beer? Beer is a big no no if it is.
  10. JEM123

    ARCHIVED Blunted Villi

    JEM123 replied to nate78's topic in Coping with Celiac Disease

    Hi, I had the same diagnosis you had "blunted villi". My first round of blood tests came out negative for celiac disease. My GI doc was not happy with blood tests and had me retake them. This time he sent them to Prometheus Labs in California. There are less than a handful of labs in the U.S. that can give you accurate results when it comes to celiac...
  11. JEM123
    Hi, I also belong to Delphi site and we try to update the list monthly. We all send in "confirmed products" as we get them. We have a very dedicated person that puts them all together. Open Original Shared Link go to above website and enter as a guest then click on confirmed product lists. They are listed by month. This is also a great site to be...
  12. JEM123
    Be very careful in regards to cosmetics especially with lipsticks and chapsticks. Many times when the ingredients state Vitamin E it could be wheat germ oil. Do some research, it's worth a healthy and symptom free life. Also, hand creams like Aveeno are based on oats. As we all know there is a strong contamination issue with oats as they are processed...
  13. JEM123

    ARCHIVED Bone Pain

    JEM123 replied to Rider4Life's topic in Coping with Celiac Disease

    Hi Rice Guy, I was so happy when I saw your reply! I started getting bone pain about 2 weeks after going gluten free. Most days it's awful. I'm taking 1300 of calcium and about 300 mg of magnesium a day. You also mentioned B12. What doses are you taking of the B12 and magnesium? I would really appreciate your help on this! Deperate here.. Thank you...
  14. JEM123
    I'm also laughing because when my GI doc asked me what nationality my parents were I answered Italian. He responded well celiac disease is strongly linked with a European background. My response to him was..You are telling me...an italian that I can no longer have pasta...bread....cutlets..pastries??? What's left to eat? lol He laughed too.. Jem
  15. JEM123
    Viola I'm with you on this one! Under no circumstances should one ingest gluten once diagnosed with celiac disease. Even if one has no symptoms when ingesting gluten damage is being done to you intestines. In the long run the health crisis you face are not worth the cheating. I would find another another doctor immediately. This doctor doesn't seem to...
  16. JEM123
    Same here....Clay colored poop = gluten!
  17. JEM123
    Two things can lead to a doughy crumb topping...over working the crumb mixture or the margarine/butter not cold enough. I use butter falvored crisco. I keep it refrigerated until the second before I use it. Try this and see if it helps. Good luck
  18. JEM123
    I also have aches and pains especially in the knees, lower back and hips on a daily basis. If I should ingest gluten this pain intensifies something incredible. Aleves and other meds just take the edge off. I am convinced this is due to celiac disease. Has anyone found anything that helps? Also, does this go away after gluten-free for awhile? I have...
  19. JEM123
    Hi Sonja, I am of the understanding that most damage caused by gluten is found in the upper intestines. An upper endoscopy is usually the "golden diagnosis". My blood test results the first time around came back negative, my gastro doc saw blunting of my villi through the endoscopy. He retested my blood and this time sent it to a specialized lab in California...
  20. JEM123
    Hi Amber, The fries and the hash browns both contain gluten. They state it in thier ingredients. Go to Happygirl's reply and check the website she listed from McDonalds. McDonalds in the U.S. does have dedicated fryers only for french fries but wheat is added as part of the potatoe processing.
  21. JEM123
    Hi, I have a fibroid tumor that causes a lot of what you desrcibed. The external ultrasound did not show the fibroid. I insisted that something was not right and they did a internal ultrasound using a wand vaginally. The tech doing the ultrasound did it from the same machine that she was performing the external one from. It is not uncomfortable or painful...
  22. JEM123
    When I first went gluten-free I went out and bought all the supplies I needed and did hours and hours of research on my newly diagnosed celiac disease. One day I was eating dinner when I looked at my vitamin label and saw spelt! OMG...I had been glutening myself without even knowing. Also, two other sources of hidden gluten is Fu which means wheat in...
  23. JEM123
    My husband is very supportive of my celiac diet. He even eats the same foods as I do around the house. He has changed many habits in his life that may cause me harm such as cross-contamination. He takes this as serious as I do. We are very lucky to have each other because no matter what we will always be there for each other. My son also seems to be...
  24. JEM123
    I realize that you are very upset and you have every right to be. My advice to you is to go back to your mom's home and not cause any waves at this time. Remember this is your cousin's wedding and it's not fair for her to suffer any consequences because of what has happened beyween you and your mom. There is a time and place to deal with everything in...
  25. JEM123
    Marghe Benvenuta! I am also an italian who has celiac disease. It is an awful curse to take away gluten from us. Our meals are totally based on wheat. Pasta...Pizza...pastries..and the list can go on. I am very surprised that you are unable to find a good gluten-free bread in Italy. Italy is one of the top leading countries that has been diagnosing...
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