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JennyC

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  • Gender
    Female
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    Portland, OR

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  1. Hi JennyC,

    Noticed you are looking for a chocolate cake recipe,

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    Here's a link to one I developed and posted on the Irish Site

    It even has photo's so you can see what it should be like !

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    Open Original Shared Link

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    My favourite is the version with the chocolate - coffee buttercream !!

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    Hope this is of some use to you.

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    Best Regards,

    David

    I just found your post, thanks for the recipe! :)

  2. My son has celiac disease, but I have not been tested yet so I don't know if I have it. There was a link to an article posted here a while ago that stated that gluten was found in breast milk, even in healthy mothers. I know that was a problem with my son. He was a large baby and for the first four months he was a pretty big baby, then his growth drastically slowed. He also spit up constantly. I would keep breastfeeding and watch for improvement in your baby as you go gluten free. I would also avoid giving her gluten, like Cheerios, to see if it makes a difference. If you do see an improvement in your daughter then I would keep both of you a gluten free diet, at least until she is old enough to be tested which is usually 24 months. I hope that both of you get better soon. :)

  3. At my son's appointment all the GI wanted to do was listen to me explain his symptoms and order a biopsy. (My son already had positive blood tests.) He would not discuss treatment until he got a positive biopsy. He's not the greatest doctor in my opinion. <_< Since we had already started the gluten free diet and I refused the gluten challenge we did not get along too well. ;)

  4. I'm nearly five months in with my son...has it really been that long?! :P It's not bad at all now. I have a good idea of the good specialty foods and I know the safe brands. We also eat much better. It was hard at first though! My first three gluten free dinners were complete flops--I let my son eat french fries instead and tried not to cry. :rolleyes: But now I have learned how to make just about anything gluten free. I make a much wider variety of food now. Before I was a meat & potatoes (or Pasta Roni) kind of girl, but now I make all kinds of food!

  5. My best experience is from my son's current pediatrician. She was not his doctor at the time and had only seen him twice, but when she reviewed his charts, listened to his symptoms and examined him he referred us for celiac testing! I never went back to his old doctor, who offered no help whatsoever regarding his symptoms. When I asked him about my son's distended malnourished-looking belly he said some kids are just like that. And to stop his diarrhea he told me to stop giving him so much juice, even though I had just told him that I give him 1-2 servings a day. Sorry for rambling, I'm just so grateful for his new pediatrician, I feel like she saved his life.

    Well the worst comment, other than demanding the gluten challenge, was also by my son's wonderful pediatrician. My son was sick with a horrible stomach bug and she was giving me advice on his diet. She told me to feed him bland food, then she said "well, he eats like that all the time." <_< I was mildly offended. I told her that my son eats everything that he ate before and much more, but gluten free! :D

  6. I called Bob's Red Mill today and I asked them about their products that do not have they gluten free symbol, such as corn meal, and they said that those non-labeled products could be made on lines shared with gluten. The gluten free labeled products are made in a gluten free room. I just thought that I would pass on the information. I have been buying all my grains from Bob's Red Mill. I will call some of the mainstream companies to ask about their practices.

  7. I'm a college student. I just finished my B.S. in molecular/microbiology and I'm starting a biochemistry/molecular biology M.S. program in the fall. I am fascinated my immunology, virology, and molecular disease. I am proud of what I do because I have high hopes for the future. I also have a son that is almost four. I'm taking the summer off to be a stay at home mom. It's so nice to be able to stay home and not feel like I should be doing something else--like studying! My son and I are getting lots of gluten free baking experience this summer, and I'm really enjoying this quiet time with him before I start grad school.

  8. My nearly three year old daughter is gluten and casien sensitive. We have known since she was about 18 months. the word gluten is something she hears everyday (well, nearly) and she understands that gluten will hurt her. She knows the difference between baby wipes and alcohol wipes and that an alcohol wipe is what we use when we are out to make sure her hands have not picked up gluten or to clean a surface with to make sure it is free of gluten. If she sees something or is offered something by someone who doesn't yet get it and I tell her it has gluten she knows she can't have it and why. She is very accepting of that, so far.

    Another thing you might want to consider if you have pets is putting them on gluten free foods. We changed our dog and cat food because it was so difficult to keep them from getting an occasional lick in or to keep her from picking up a piece of food or their dish.

    Accidents will happen. Plan on it. A few days ago we were visiting a friend. I was in the other room and Aimee was with my friends young teenage daughter. I came to check on her and she was sitting on the floor feeding their little dog bites of dog food! You just roll with it and try to be prepared. I explained to the young girl that the dog food had gluten in it so Aimee couldn't touch it and explained to Aimee that our dog food was gluten free but theirs had gluten in it so she couldn't touch it. We had alcohol wipes on hand for just such an emergency so I washed her up in the bathroom with soap and followed up with the alcohol wipe in case we missed any gluten or in case their soap had gluten.

    Crazy, ain't it? :rolleyes:

    I'm curious why you use alcohol wipes when there is soap and water around. Everything I know about alcohol is that it's an anti-bacterial. Gluten is not alive, it is a protein, and the best way to get rid of gluten is to use the force of scrubbing with soap and water to get it off. I'm not trying to be offensive, just wondering if you know something I don't. :)

  9. I don't like them either, but they have kid-sized yogurt drinks that my son actually will drink. The yoplait ones are too big and rather gelatinous in texture and have kind of a chalky taste.

    I just keep my fingers crossed that he'll be less picky once he feels better. But it hasn't happened yet!

    Have you tried the Tillamook yogurt drinks? That might be a tastier option. I believe that all Tillamook yogurt flavors are gluten free, except if they have any obvious ones, but I don't know about the drinks. If their products are carried in your area, it might be worth it to call them. Just trying to throw out an idea.

  10. I thought I read that those with a first degree relative with celiac disease have a 20% chance of having the disease. Either way, I don't think anyone would claim to have the genetics totally worked out. What is known is that there are multiple genes involved, and I think they are all recessive. Each of your children has the same likelihood of developing Celiac disease. However, the chance that all of them will have it is pretty small, but nonetheless very possible.

  11. Thank you for all the encouragement!

    I'm confused about something~I've done quite a bit of reading in the past week. I'm reading info regarding the accuracy of the new blood tests available. If I understand correctly, the new blood tests are extremely accurate, and there are no guarantees with the biopsy. I've read that is some of the posts today~

    My physician with current blood work results is saying celiac and gluten free diet.

    At some point with new advances the gold standard does change.

    I'm very new to this, so please understand especially when it comes to my kids, I question EVERYTHING!

    Thanks~

    Jan

    The blood test used most frequently now is the Ttg. There are not false positives, but it is possible that there are false negatives. The biopsy is still the "gold standard" to most doctors, but that is slowly changing as blood tests are getting more accurate. There are many studies that show that blood work and dietary response are enough to diagnose celiac disease. That's what my son's pediatrician thought and she had me start him on the gluten free diet immediately. When I made it to the pediatric gastroenterologist one month later he refused to treat him without a biopsy. I could not bear to give my son gluten again, so we did not do the biopsy. Things would have been different if he would not have started the gluten free diet so early, but I feel confident in my decision. If you desire a universally accepted diagnosis, then go for the biopsy. You should do what is best for your family, and at your son's age maybe you should consider getting him involved in the decision. It is his body and he will have to deal with this disease for the rest of his life. Remember that if your family decides against the biopsy now, you can always do it at another time.

  12. I bought a 25 lb bag of Bob's Red Mill gluten-free flour 4 months ago when we first went gluten free. I don't care for it, and I would really like to get rid of it. Over half of it is left. If anyone wants it please let me know. I will ship it to anyone on the west coast. I am not charging anything for it, but I would like $15 for shipping. I don't know how much shipping will be, but I have lots of flour left. It would be well worth your money! I also have some of the baking mix, and some other mixes. All of it went directly from the original package to a clean glass jar. I plan to ship it in large Zip-lock bags. We are very careful about cross contamination at my home! The first person to PM me and is willing to send me a check for shipping can gladly have it. I can ship it UPS on Monday.

  13. Oh wow, I've never heard of Bell & Evans! We don't have a Whole Foods nearby but I should be able to find it at the places we do have. I'm so new to this and my son is such a picky eater. We did a trial gluten-free diet for a very short period (before we had labs to back up our suspicions), but gave up because he wouldn't eat. This time we have labs and we need to try it for the long haul and I'm desparately trying to find something he likes. Even the ones my mom and I tried to make failed. He likes that spongy, processed texture like that of Tyson.

    Thank you!

    Go to their website and you can find a nearby store. My son is also picky eater. He said my nuggets that I made were "yucky." :P I hope your son will eat them.

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