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Russ H

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Russ H last won the day on April 18

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  1. Russ H
    That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac...
  2. icon knitty kitty reacted to a post in a topic: Blood results
  3. Russ H started following Blood results
  4. Russ H
    Do you know what the lab's standard range is for the IgA tTG2 result? The Endomysial IgA basically tests for the same antibodies as IgA tTG2 but it uses an older, less sensitive method and the result is positive/negative rather than quantitative. Hence, it is possible to show raised IgA tTG2 antibodies without getting a positive test for Endomysial IgA antibodies...
  5. icon Scott Adams reacted to a comment: Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
  6. Russ H started following Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
  7. Russ H
    There is information regarding this here: https://www.coeliac.org.uk/information-and-support/coeliac-disease/once-diagnosed/prescriptions/
  8. icon Russ H reacted to a comment: Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
  9. icon Russ H reacted to a comment: The Gluten-Free Detective: How to Track Down Hidden Contamination in Your Own Kitchen
  10. icon knitty kitty reacted to a post in a topic: symptoms.
  11. icon Russ H reacted to a post in a topic: symptoms.
  12. Russ H started following Blood Tests showed positive for celiac / Endoscopy confirmed no evidence of Celiac , symptoms. , False tTG3 Test? and 5 others
  13. Russ H
    Although sensitivity to gluten varies between individuals, multiple research studies suggest that consuming up to 10 mg of gluten a day is safe for most people with coeliac disease. Wheat flour contains approximately 10% gluten by weight, so this is equivalent to 100 mg of flour, or a piece of wheat bread the size of a small pea. There is a case report of...
  14. icon Russ H reacted to a post in a topic: symptoms.
  15. icon AButtiglieri reacted to a comment: Psychiatric and Neurological Manifestations of Celiac Disease in Adults
  16. icon AllyJR reacted to a post in a topic: Confused about my results
  17. Russ H
    There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives. The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
  18. icon knitty kitty reacted to a post in a topic: Confused about my results
  19. icon knitty kitty reacted to a post in a topic: Confused about my results
  20. Russ H
    The problem with a a multiple screening test like this is that it is likely to generate at least one result that is outside the normal range in a healthy person leading to futile investigations. The pathogenesis of dermatitis herpetiformis makes it unlikely that someone would have raised IgA-tTG3 but not raised IgA-tTG2. Suspected dermatitis herpetiformis...
  21. icon ohmichael reacted to a post in a topic: Curious if I should quit my job
  22. icon Scott Adams reacted to a post in a topic: Confused about my results
  23. Russ H
    There is a good paper here on causes of seronegative villous blunting. The most common is seronegative coeliac disease. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
  24. icon AllyJR reacted to a post in a topic: Confused about my results
  25. Russ H
    Sorry but I have to dash for an appointment so little time just now. Your signs and symptoms and response to a gluten-free diet sound like seronegative coeliac disease. Seronegative coeliac disease, Coeliac UK.
  26. Russ H
    ohmichael, do you know that you've reacted to gluten? We all get ups and downs in health - a mild viral infection one week and maybe an unset stomach another time. It is easy to ascribe the symptoms to gluten exposure even when that is not the cause of the symptoms. I would wait and see if it happens again before giving up your job, especially if you don...
  27. Russ H
    People with coeliac disease tend to have lower systolic blood pressure. However symptoms vary greatly between people and there are multiple cases in the literature of hypertension in people diagnosed with coeliac disease that gradually reverses on a strict gluten-free diet.
  28. Russ H
    There is not enough information to assess the likelihood of coeliac disease. You'll have to chase this up with the quack. The lab should provide antibody titres and a reference range. They might just have done an EMA test, which is negative/positive and antiquated - a proper IgA-ttG2 test would be more helpful.
  29. icon Russ H reacted to a post in a topic: UK Member Looking For Help - Recent Test
  30. Russ H
    I developed a heart arrhythmia and on several occasions had to wear a 24 hour Holter monitor. Among other things, I had premature atrial complexes (PACs) and occasional AFib. I was very fit at the time, running and cycling. This completely disappeared following my diagnosis and following a strict gluten free diet. I haven't had a single episode since, in...
  31. icon Russ H reacted to a post in a topic: Does anyone here also have Afib
  32. Russ H
    I have read research indicating differing reactions to various oat cultivars, however, nothing suggesting that some contain gluten - do you have a source for that?
  33. Russ H
    That's the thing - about 1% of the population have coeliac disease: if it were 10%, the social burden would be so high that gluten would be removed from general consumption.
  34. icon Russ H reacted to a comment: Gluten-Free at Taco Bell: A Celiac's Guide to the Menu (+Video)
  35. Russ H
    Hi Cosyfeyre and welcome to the forum. Hashimoto's thyroiditis can cause moderately raised levels of tissue transglutaminase antibodies (as can other autoimmune and inflammatory conditions). This could explain the weak positive shown for tTG IgG. It is certainly worth following up. Some people can react to gluten without having coeliac disease, and many...
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