Russ H
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Russ H last won the day on December 7
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Russ H reacted to an article:
When "Low" Celiac Blood Tests Still Point to Celiac Disease
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knitty kitty reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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Scott Adams reacted to a post in a topic:
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
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Scott Adams reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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cristiana reacted to a post in a topic:
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
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Shingles - Could It Be Related to Gluten/ Celiac
Russ H replied to Ginger38's topic in Related Issues & Disorders
I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles... -
Russ H reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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Russ H reacted to a post in a topic:
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
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Russ H reacted to a post in a topic:
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
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cristiana reacted to a post in a topic:
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
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Russ H reacted to a post in a topic:
Coeliac UK Research Conference 2025
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Russ H started following Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
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Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
Russ H commented on Scott Adams's article in Latest Research
This is the test KelleyJo is referring to: Blood-Based T-Cell Diagnosis of Celiac Disease- 8 comments
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Russ H reacted to a comment:
Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
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Russ H reacted to a comment:
Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
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Russ H reacted to a comment:
Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
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Russ H reacted to a comment:
Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
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Russ H started following KAN-101 Treatment for Coeliac Disease , Coeliac UK Research Conference 2025 , Guinness, can you drink it? and 1 other
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There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
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Scott Adams reacted to a post in a topic:
Guinness, can you drink it?
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Guinness, can you drink it?
Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain... -
Scott Adams reacted to a post in a topic:
KAN-101 Treatment for Coeliac Disease
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Scott Adams reacted to a post in a topic:
KAN-101 Treatment for Coeliac Disease
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This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval. Anokion Announces Positive Symptom...
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Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
Russ H commented on Scott Adams's article in Autumn 2025 Issue
I hadn't heard of patatin before. Apparently, it is similar in structure to and cross-reactive with latex. People who react to latex may also react to chitinase, which is found in many vegetables as a defence mechanism against invertebrate pests. Maybe this is what you are reacting to. Chitinase is found in many plants including wheat and maize. https...- 25 comments
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Blood results
Russ H replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific... -
Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
Russ H commented on Scott Adams's article in Autumn 2025 Issue
Data from NHS England shows that most people are diagnosed between the ages of 40 and 60, with the mean age of diagnosis 45. For those diagnosed later in life, I wonder at what age the condition actually begins? Blood screening suggests that most people with the condition are not diagnosed, and that is likely because they have no symptoms or because...- 50 comments
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Yes, that seems to be the gist. Quantifying residues in fermented foods and drinks seems to be difficult. There are no tests for total gluten, just immunoassays, which generally detect a single epitope. There are estimated to be approximately 50 sequences that evoke a T-cell response of which nearly half are unknown and have no test. Gluten fragments...
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Russ H started following Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem
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Rather than create a new thread, I thought I would post to this one as it is on topic. The paper linked below is quite comprehensive regarding the state of knowledge of the safety of hydrolysed barley gluten. The final section gives a good summary. Barley based gluten free beer – A blessing or an uncontrollable risk?
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Blood results
Russ H replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac...