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Russ H

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Russ H last won the day on December 7 2025

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  1. icon Russ H reacted to an article: Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food
  2. Russ H started following Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It , Positive biopsy , Gluten intolerance and coughing fits and 4 others
  3. Russ H
    What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility...
  4. icon Scott Adams reacted to a post in a topic: Thoughts? Non-endoscopic Celiac diagnosis in two year old
  5. Russ H
    Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough. Case Report: A case of cough, lymphocytic bronchoalveolitis...
  6. icon Russ H reacted to an article: A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)
  7. icon cristiana reacted to a post in a topic: Severe severe mouth pain
  8. icon Russ H reacted to a post in a topic: Severe severe mouth pain
  9. Russ H
    Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
  10. icon Russ H reacted to a post in a topic: Anti-endomysial Antibody (EMA) Testing
  11. icon Scott Adams reacted to a post in a topic: Anti-endomysial Antibody (EMA) Testing
  12. icon Russ H reacted to a post in a topic: Thoughts? Non-endoscopic Celiac diagnosis in two year old
  13. Russ H
    I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
  14. Russ H
    The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much...
  15. icon Russ H reacted to an article: New Study Finds Hidden Stomach Disorder in 1 in 10 People with Celiac Disease (+Video)
  16. icon Russ H reacted to an article: When "Low" Celiac Blood Tests Still Point to Celiac Disease
  17. icon knitty kitty reacted to a post in a topic: Shingles - Could It Be Related to Gluten/ Celiac
  18. icon Scott Adams reacted to a post in a topic: Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
  19. icon Scott Adams reacted to a post in a topic: Shingles - Could It Be Related to Gluten/ Celiac
  20. icon cristiana reacted to a post in a topic: Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
  21. Russ H
    I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles...
  22. icon Russ H reacted to a post in a topic: Shingles - Could It Be Related to Gluten/ Celiac
  23. Russ H
    BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
  24. icon Russ H reacted to a post in a topic: Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
  25. icon Russ H reacted to a post in a topic: Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
  26. icon cristiana reacted to a post in a topic: Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
  27. Russ H
    For people who can tolerate oats, Marks and Spencers sell a nice loaf: https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
  28. Russ H started following Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
  29. Russ H
    This is the test KelleyJo is referring to: Blood-Based T-Cell Diagnosis of Celiac Disease
  30. Russ H started following Guinness, can you drink it? and Coeliac UK Research Conference 2025
  31. Russ H
    There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
  32. icon Scott Adams reacted to a post in a topic: Guinness, can you drink it?
  33. Russ H
    There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain...
  34. icon Scott Adams reacted to a post in a topic: KAN-101 Treatment for Coeliac Disease
  35. Russ H
    I don't live in the US, but based on this thread, I wouldn't risk it: https://www.reddit.com/r/glutenfree/comments/1n2ehw8/cracker_barrel/ This app is helpful: https://www.findmeglutenfree.com/
  36. Russ H
    I missed that. Good summary.
  37. Russ H
    This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval. Anokion Announces Positive Symptom...
  38. Russ H
    I hadn't heard of patatin before. Apparently, it is similar in structure to and cross-reactive with latex. People who react to latex may also react to chitinase, which is found in many vegetables as a defence mechanism against invertebrate pests. Maybe this is what you are reacting to. Chitinase is found in many plants including wheat and maize. https...
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