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Russ H

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Russ H last won the day on April 18

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  1. icon Russ H reacted to a post in a topic: Celiac and dermatitis herpetiformis has taken Me from Me
  2. icon Russ H reacted to a post in a topic: Coeliac and Thyroid?
  3. icon Russ H reacted to a post in a topic: Coeliac and Thyroid?
  4. icon knitty kitty reacted to a post in a topic: Blood results
  5. icon Scott Adams reacted to a comment: Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
  6. Russ H started following Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video) and Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
  7. Russ H
    I hadn't heard of patatin before. Apparently, it is similar in structure to and cross-reactive with latex. People who react to latex may also react to chitinase, which is found in many vegetables as a defence mechanism against invertebrate pests. Maybe this is what you are reacting to. Chitinase is found in many plants including wheat and maize. https...
  8. Russ H
    The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific...
  9. icon Scott Adams reacted to a comment: Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
  10. icon Russ H reacted to an article: Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
  11. Russ H
    Data from NHS England shows that most people are diagnosed between the ages of 40 and 60, with the mean age of diagnosis 45. For those diagnosed later in life, I wonder at what age the condition actually begins? Blood screening suggests that most people with the condition are not diagnosed, and that is likely because they have no symptoms or because...
  12. Russ H
    Yes, that seems to be the gist. Quantifying residues in fermented foods and drinks seems to be difficult. There are no tests for total gluten, just immunoassays, which generally detect a single epitope. There are estimated to be approximately 50 sequences that evoke a T-cell response of which nearly half are unknown and have no test. Gluten fragments...
  13. Russ H started following Blood results and Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem
  14. Russ H
    Rather than create a new thread, I thought I would post to this one as it is on topic. The paper linked below is quite comprehensive regarding the state of knowledge of the safety of hydrolysed barley gluten. The final section gives a good summary. Barley based gluten free beer – A blessing or an uncontrollable risk?
  15. Russ H
    That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac...
  16. icon knitty kitty reacted to a post in a topic: Blood results
  17. Russ H
    Do you know what the lab's standard range is for the IgA tTG2 result? The Endomysial IgA basically tests for the same antibodies as IgA tTG2 but it uses an older, less sensitive method and the result is positive/negative rather than quantitative. Hence, it is possible to show raised IgA tTG2 antibodies without getting a positive test for Endomysial IgA antibodies...
  18. icon Scott Adams reacted to a comment: Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
  19. Russ H started following Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
  20. Russ H
    There is information regarding this here: https://www.coeliac.org.uk/information-and-support/coeliac-disease/once-diagnosed/prescriptions/
  21. icon Russ H reacted to a comment: Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
  22. icon Russ H reacted to a comment: The Gluten-Free Detective: How to Track Down Hidden Contamination in Your Own Kitchen
  23. icon knitty kitty reacted to a post in a topic: symptoms.
  24. icon Russ H reacted to a post in a topic: symptoms.
  25. Russ H started following Does Celiac disease affect blood pressure? , symptoms. , False tTG3 Test? and 2 others
  26. Russ H
    Although sensitivity to gluten varies between individuals, multiple research studies suggest that consuming up to 10 mg of gluten a day is safe for most people with coeliac disease. Wheat flour contains approximately 10% gluten by weight, so this is equivalent to 100 mg of flour, or a piece of wheat bread the size of a small pea. There is a case report of...
  27. icon Russ H reacted to a post in a topic: symptoms.
  28. icon AButtiglieri reacted to a comment: Psychiatric and Neurological Manifestations of Celiac Disease in Adults
  29. icon AllyJR reacted to a post in a topic: Confused about my results
  30. Russ H
    There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives. The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
  31. icon knitty kitty reacted to a post in a topic: Confused about my results
  32. Russ H
    The problem with a a multiple screening test like this is that it is likely to generate at least one result that is outside the normal range in a healthy person leading to futile investigations. The pathogenesis of dermatitis herpetiformis makes it unlikely that someone would have raised IgA-tTG3 but not raised IgA-tTG2. Suspected dermatitis herpetiformis...
  33. Russ H
    There is a good paper here on causes of seronegative villous blunting. The most common is seronegative coeliac disease. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
  34. Russ H
    Sorry but I have to dash for an appointment so little time just now. Your signs and symptoms and response to a gluten-free diet sound like seronegative coeliac disease. Seronegative coeliac disease, Coeliac UK.
  35. Russ H
    ohmichael, do you know that you've reacted to gluten? We all get ups and downs in health - a mild viral infection one week and maybe an unset stomach another time. It is easy to ascribe the symptoms to gluten exposure even when that is not the cause of the symptoms. I would wait and see if it happens again before giving up your job, especially if you don...
  36. Russ H
    People with coeliac disease tend to have lower systolic blood pressure. However symptoms vary greatly between people and there are multiple cases in the literature of hypertension in people diagnosed with coeliac disease that gradually reverses on a strict gluten-free diet.
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