rsm

I am self diagnosed. My daughter went gluten free and her IBS went away so I tried it. After one week it became clear that dairy was also a problem so I am now gluten and dairy free 2 and half years. I would not go back! I now have Igg kappa MGUS which is a precursor to Multiple Myeloma. I find it interesting that the cancer is directed at the gluten antibody, not coincidental. Live healthy, don't eat gluten if it makes you ill.

I just found your post, bad timimg i know. These symptoms could be Myeloma. I'm being checked right now.

The best reasons may come later. I am self diagnosed, 51 years old, 1.5 years gluten free and dairy free. 25 years of horrible IBS made it worth the switch. I am now looking at a possible case of Multiple Myeloma, a cancer that works on the IgG and IgA antibodies just like celiac.

Stay away from gluten, it can affect your long term health in ways you never imagined!

Lactose is a major offender. I had to give up dairy about 6 days into my gluten free diet. Even some oils and other foods may be a problem. Keep track and you can weed out the offenders. For me, no gluten, no dairy, no cottonseed oil. 18 months, I feel much better, not 100% yet but getting there. It takes times. Hang in there.

I even take lactaid with some of my medications that are lactose coated. It helps.

I'm lucky I can tolerate soy, soy ice cream, not bad. Try it!

the first week was heaven, then up's and downs for a good six months. Hang in there! (16 months now.)

No! Never intentionally, I've been glutened by restaurants a few times when I wasn't supposed to be glutened but I have never cheated. 16 Months so far, yes pizza and cinnamon rolls call to me but I always remember the end of the story!

U.S. Blood-type Distribution

O+ 38 percent of population

A+ 34 percent of population

B+ 9 percent of population

O- 7 percent of population

A- 6 percent of population

AB+ 3 percent of population

B- 2 percent of population

AB- 1 percent of population

There are way more Os and As out there

No wonder we B's are in the minority!

Gave up gluten 15 months ago, within a week I was lactose intollerant in an extreme way. I still can't have dairy.

B+ looks like the B's are in the minority here!

I have a baked potato and chili from Wendy's. Choices are very very limited. I'm gluten and dairy free which further limits. I do like the laura bars or almonds. I keep a can of almonds in each vehicle.

I found that lactose was a real problem for me after I gave up gluten. I am still gluten and dairy free after almost 11 months. I have severe anxiety problems! They are getting better, I think. Once you give up the gluten you may need to avoid dairy too.

Cottonseed oil is of the devil! Makes me sick as a dog and it's in everything, peanut butter, roasted nuts, chips, try avoiding the cottonseed oil. I feel much better without it. No gluten, no dairy, no cottonseed oil, I'm right as rain!

Blue Diamond does not have cottonseed oil, Frito's do not, many of the organic peanut butters do not. You just have to be vigilant, as you well know.....

I have a gluten type reaction with cottonseed oil, it's in a lot of nuts, butters and chips. Could be the oil giving you fits. Evidently cottonseed oil is cheap, when did we start eating cotton?

You like me for the last 25 years, acne, eye circles, pale skin. I hope you start feeling better!

I had to give up dairy a week after going gluten free, never really had much problem with it before. It feels like gluten, same symptoms, when I have dairy of any sort. Now, 8 months gluten and dairy free, things are better.

My oldest daughter and I have both had ours removed.

Self diagnosed here as well, gluten free for 8 months and feeling much better. My doctor said he was impressed that I had come to the celiac decision and said stay with the diet. He told me he has had so many false negatives that the diet is the real test. My youngest daughter just had a blood panel run, her antibodies were between 3 and 4, not celiac. She's going gluten free anyway. We have a family history of bowel and stomach issues, anemia, pernicious anemia, alopecia, lactose intolerance and thyroid issues that go back for generations. We don't need to eat gluten! I don't eat dairy either and I much prefer it that way. Celiacs or just intolerant to gluten, either way I am gluten free from on.

Don't wish to be mean but I am unimpressed with the medical community on this issue. My kids and I know more about this disease than any doctor any of us has seen. That's frustrating, I was told for 25 years to keep eating more fiber, wheat fiber of course, no wonder I never felt better.

Grains are not always good for you! Read labels, start with meats and veggies, fruit, rice and slowly add things in to see if you can tolerate them. I had to give up dairy as well. It may take months or years to be completely better but it is nice to be on the road to recovery. To know what the problem is. I had doctors telling me to eat lots of wheat fiber, I always felt worse..... Many, many foods are naturally gluten free. There is still a great variety of foods available to us. Welcome to the gluten free world!

Yes, I'm finding this, too... especially with dairy. I'm not sure what the chips were cooked in, but I've checked with the manufacturer and the chips are not on their gluten-free list, so gluten is possible. It's good to know that there might be other explanations than just gluten and I will definitely pay close attention to cottonseed oil. Very interesting! Thanks!

Indeed, dairy is tough, I had to go dairy free as well as gluten free. It's been 7 months and I still cannot handle dairy.

What kind of oil were the chips fried in? Gluten usually hits me in about 20-30 minutes. Cottonseed oil gives me the same reaction, at least it feels like it. Cottonseed oil is used in a lot of things, there may something in the chips apart from gluten that you don't tolerate. Once I went gluten free I became much more sensitive to foods.

I eat rice, either white or brown almost everyday with soy milk, sweet and low and raisins or craisons. I also like to add a little cinnamon or cardamom.

I have had that, many times. A dr once told me there was nothing there! Another one told me part of my spleen was dead. I think it's small intestine under attack. You are not alone.....

I have had problems with peanut butter but found it was the cottonseed oil in the peanut butter. When I buy a brand without cottonseed oil I'm ok. The cottonseed oil is in a lot of things.

It was a complete surprise to me. I went gluten free in March 07 and with one week could not tolerate dairy. Healing villi do not get along with lactose. So, I'm now dairy and gluten free, life is much better without both!

Did you cook the eggs in butter? One week after gluten free I became very lactose intolerant. Dairy could be the culprit.