mamaloca2
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Latest Celiac Disease News & Research:
Everything posted by mamaloca2
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ARCHIVED Angry With Myself
mamaloca2 replied to honeypond's topic in Parents, Friends and Loved Ones of Celiacs
I am in the same boat as you are. I know that my two kids and I have it, but none of us have an official diagnosis. My daughter was tested at 18 months old but it came back neg. I had started her on the diet while waiting for test results and she improved so much, I said screw the results-they were not accurate! I had a really hard time convincing my Mom... -
ARCHIVED Don't Know What Else To Do
mamaloca2 replied to hapy4dolphins's topic in Parents, Friends and Loved Ones of Celiacs
Did his docs put him on a stool softener of any kind? My daughters gastro specialist put her on Miralax (it's over the counter.) It has no flavor and helped tremendously. We had to use it every day for a few months so that her bowel could get back to normal. You really need to keep his stool very soft for a long time since it sounds like his have been traumatized... -
This was the problem with my kids too. They now it it w/out complaint. The trick: I mixed it with sugar syrup, putting just a little of the real stuff into the sugary stuff. Gradually I dilluted it more and more, until they were eating pure maple syrup-and loving it! I used to hate the stuff, but it worked on me too. We buy the Costo pure maple syrup and...
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ARCHIVED Wendy's gluten-free Menu Update - Nov 07
mamaloca2 replied to buffettbride's topic in Gluten-Free Restaurants
Do you have an in and out burger? Everything there is fine except their buns, of course. -
I started work in a dental office in August, and was feeling pretty good after being gluten free for5 months. However, about two weeks into the job, I started having increasingly bad brain fog and problems with my eyes. Sometimes my whole upper jaw will just ache, even though I have no cold or tooth problems. I use the powder free gloves but the dentists...
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ARCHIVED Promethius Lab Vs Enterolab
mamaloca2 replied to MammaW's topic in Parents, Friends and Loved Ones of Celiacs
Promethius is the only one that has credibility with any of the doc's I've talked to. Enterolab does not have enough scientific evidence out there to back it up and my gastro specialist called them scam artists. I don't know if that's true, but if you are looking for the offical "proof" of celiac disease, you need to go with prometheus. -
My husband has not been diagnosed w/ celiac, but has it in the family and both our kids have it. He recently developed a rash on his forehead on both sides, and on both sides of his nose. There is a little on his chest. The rash is red and if he doesn't exfoliate and moisturize it is very dry and flakey. It is very noticeable and not going away. My question...
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I just had krispy kreme moment this weekend too. Doughnuts are my FAVORITE junk food so it is the hardest to deal with. When I have one of these moments, I indulge myself in my favorite gluten free dessert. I helps make the longing go away! Feeling your pain, Stacy
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ARCHIVED Salt Dough?
mamaloca2 replied to FeedIndy's topic in Parents, Friends and Loved Ones of Celiacs
If what they are making is playdough, then Quinoa flour is a great substitute. It's what I use. I would see if the teacher would use that instead for the whole class, so you don't have to worry about airborn flour or cross contamination. -
ARCHIVED Negative Blood Test---now What?
mamaloca2 replied to Hadleygirl02's topic in Parents, Friends and Loved Ones of Celiacs
Your daughter sounds just like mine. She was neg for celiac. Have her tested through enterolab. Both my kids tested positive for gluten sensitivity and the diet has done wonders for them. Open Original Shared Link -
ARCHIVED A Glutening And A ?
mamaloca2 replied to buffettbride's topic in Parents, Friends and Loved Ones of Celiacs
I got glutened from cheetos, no doubt. I won't try them again! -
ARCHIVED Symptoms/negative Test
mamaloca2 replied to s&r mom's topic in Parents, Friends and Loved Ones of Celiacs
That all sounds very scary. I would definately check into what the other two suggested, they may be onto something. Also, you may need to go gluten free and Casin free, and just see what happens. Visit this website and read the testimonials Open Original Shared Link It's definately worth a try. Good luck. Stacy -
ARCHIVED Negative Stool Test?
mamaloca2 replied to Hadleygirl02's topic in Parents, Friends and Loved Ones of Celiacs
What are they testing the stool for? My daughter had three day stool sample, but it was to check for bacteria and white blood cells, not celiac. It came back normal except for some bacterial overgrowth. She also had a celiac panel drawn. It took over three weeks for the test results to come back. She had such terrible constipation, I couldn't wait that long... -
ARCHIVED Anybody Have Children With Only Neuro Symptoms?
mamaloca2 replied to mamaloca2's topic in Parents, Friends and Loved Ones of Celiacs
Thank you for your imput. I think I have seen a website like that. I will check it out again and give them the site. Much Appreciation, Stacy -
ARCHIVED Anybody Have Children With Only Neuro Symptoms?
mamaloca2 replied to mamaloca2's topic in Parents, Friends and Loved Ones of Celiacs
Yes, he has physical therapy sessions 3 times a week. I don't know what program it is. We live in California. Thank you for sharing your experience with me. I am desperate to find out if this is what is holding him back. It is a difficult disease, but if it we know that he had celiac, at least we could do something about it. Much Appreciation, Stacy -
ARCHIVED Anybody Have Children With Only Neuro Symptoms?
mamaloca2 posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi everyone. I have many questions so please bear with me. My Nephew is almost 3 yrs old now and still cannot feed himself, walk, or talk. He seems to understand what goes on around him and understands things we say to him. He finds ways to communicate some of his needs, however, it seems that his body just is not able to do what he wants it to do. He sometimes... -
I have just been doing some research on yeast overgrowth. It's called candida. It is frequently linked to celiac disease and could be the cause of your problem. Check out this website. Open Original Shared Link Hope you find your answer. SJ
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ARCHIVED Muffin Magic - Delicious gluten-free Muffins!
mamaloca2 replied to Cam's Mom's topic in Gluten-Free Recipes & Cooking Tips
Thank You ! I just botched a whole batch of muffins for my kids class tomorrow and didn't know what to do. You saved my night! Thanks! -
ARCHIVED Gluten Intolerant Or Celiacs Disease?
mamaloca2 replied to Spatchie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, I am still recovering after 5 months gluten-free. I try to be vigilant about my vitamins and eat well, and it seems to help. Also, you may want to consider that you may have other food intolerances like lactose intolerance that can also cause bloating. Good luck! Stacy -
ARCHIVED Bento Box Saves School Lunch! Onigiri Rocks!
mamaloca2 replied to zarfkitty's topic in Parents, Friends and Loved Ones of Celiacs
Thanks so much for introducing me to this fabulous lunchbox! I bought 3 and can't wait to try them out! -
ARCHIVED Son's Symptoms ?celiac?
mamaloca2 replied to celiac-mommy's topic in Parents, Friends and Loved Ones of Celiacs
I would get him tested, but don't bother with the blood test. It is said to be very innaccurate in children or anyone who is not in a very progressed stage of Celiac. Try Enterolab. Or bare minimum, try the diet. That was mine and my daughter's best indicator. -
ARCHIVED Will Test Be Reliable?
mamaloca2 replied to hornbeck0920's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am so sorry to hear about everything you are going through. Why won't the doc run tests on the rest of you regardless of results? Does it have to do with the insurance? In my case, I told the doc my concerns and she sent us to a lab, even though she thought I was just a hypochondriac, but I had to pay for it in cash ($250) because insurance needed proof... -
ARCHIVED My Daughter Is Growing!
mamaloca2 replied to Momof2cuties's topic in Parents, Friends and Loved Ones of Celiacs
I'm so excited for you! I know how nice it is to see your child turn around like that. -
I am still learning as well, but pretty sure Daughter and I are gluten intolerant. I have many of the same symptoms of celiac and this forum has helped me so much. I don't know much about the differences yet. I am very skeptical of doctors now, but my naturalpath is very good and seems to know the most. he told me that gluten intolerance causes intestines...
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Yes, this happened to me also. One told me I was in the "Normal range", another doctor told me I was high. I really don't like doctors after all the crap I've been through.