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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    I am trying to get diagnosed with Celiac...because I am 16 and extremely ill. I haven't been able to make it through one day of school for about 4 months, after having been gone for 7 weeks because of such severe anemia. I had IV treatments which we thought would make me have energy, but clearly it didn't. Now, after having been doing a lot of research, we...
  2. confusedks
    Tigger18, So you're going to be at camp Arayo? What's your name? It is really hard, its like people in LA are too busy to post...lol?! its REALLY rare i see someone on the boards from LA. Kassandra
  3. confusedks
    i totally understand. im still going through the "i want an iv diet" stage. lol. i get really sick of the thought of eating. i used to just grab anything and everything to eat whenever i wanted. my suggestion is to try to figure out if you have any other food allergies. we figured out i have an egg allergy. i made a flourless chocolate cake and it had 6 eggs...
  4. confusedks
    hey, i am not a mom, but i am a young adult and i see my mom go through this with feeling so bad about everything i have been through with my health. i have had such severe anemia, and other symptoms (TOO MANY TO LIST!!!) and the good news is that he is only 6. so if he does have celiac, it can pretty much taken care of with a gluten-free (gluten free)...
  5. confusedks
    MJS, thats really funny. i totally understand...i love gluten-free cookies!! i am going through that, but i am finding all of these other food allergies so i cant eat almost any of the gluten-free stuff now. lol...aw poor me...jk!
  6. confusedks

    ARCHIVED Help!

    confusedks posted a topic in Coping with Celiac Disease

    ahhhh, i made flourless chocolate cake for mothers day and i think i am allergic to the eggs...i dont know. i feel like i got severly glutened. what do i do...i am ssssoooo nauseous i cant take it. any ideas...FAST would be greatly appreciated! kassandra
  7. confusedks
    haley, i totally understand. i am almost 17, and we are still waiting for results back from the lab, but we are almost 100% sure i have celiac. i have been strictly gluten free (gluten-free) for about 2 weeks. i understand the grieving process. i went through it a while ago when i was kinda gluten-free, but not really. it felt like torture. about 5 days...
  8. confusedks
    Hey. Im in the process of being diagnosed and wondering if anyone lives in ca. oh, is anybody going to camp in northern ca this summer...camp arayo?? if so, where do you live?
  9. confusedks
    1. not being able to go out with friends and eat anything i want 2. the big D word 3. stomach bloating 4. constant weight fluctuation 5. going to the grocery store and taking 43894839543 min. to read the ingredient list 6. exhaustion 7. chronic (!!!!!!!!) anemia that wont go away im pissed off at gluten today Kassandra
  10. confusedks
    Hello, I have been seeing an herbalist (chinese doctor) who actually told me i have a severe gluten allergy. it turns out he was totally right. i went to him because of my anemia, exhaustion, stomach aches, etc. he didnt know about celiac, but now that i am gluten-free, i felll almost 100% better. we are waiting for enterolab results to come back, to know...
  11. confusedks
    Lister, I know thatwhen my dad had 4 kidneystones(!!!!!!!) he was told not to consume any dairy, the reason being they are high in calcium. they said that calcium is part of what caused the kidney stones. so, if they said not to, i wouldnt. also, dairy isnt good for you... go to www.notmilk.com and read about how bad it is. i am not "allergic" but i dont...
  12. confusedks
    I too have a really low ferritin level. It was less than one (my doctor had NEVER SEEN numbers so low). They say it should be 3-130. This is obviously a huge range and i have a hematologist, who told me i needed iron IV treatments stat. I did about 6 weeks ago and my ferritin went up to 130!!!! Now, 6 weeks later its back down to 40! My hemoglobin is at ...
  13. confusedks
    I too have a really low ferritin level. It was less than one (my doctor had NEVER SEEN numbers so low). They say it should be 3-130. This is obviously a huge range and i have a hematologist, who told me i needed iron IV treatments stat. I did about 6 weeks ago and my ferritin went up to 130!!!! Now, 6 weeks later its back down to 40! My hemoglobin is at ...
  14. confusedks
    Hey, If you want your kid(s) with celiac to go to a support group, you can look up a "ROCK" (Raising Our Celiac Kids) in your area. I have heard they go on gluten-free picnics, etc. Also, this site is really helpful!! Good luck! P.S. Ignore people who say rude things. Going 100% gluten-free is really a big commitment and some people aren't as understanding...
  15. confusedks
    yea, i set up confusedks first, but never got the email to activate it, so then i set up wanaenjoylife on a different email address, and got the confirmation, so i used that one for a little. then i tried signing in for confusedks and it worked!!! go figure. lol
  16. confusedks
    Thanks for that...its always hard to figure out what to bring to school for lunch. The only problem is i'm dairy free too, so its really restrictive. I am 16 (17 in 2 months from today!!!! ) I live in Los Angeles. I haven't been diagnosed with celiac. i had negative bloodwork which my dr says i dont have celiac. my grandma has it for sure, we think my dad...
  17. confusedks
    hey everybody, i totally understand cheating a little. all it took for me was one time with famous amos chocolate cookies (which was doubly bad...dairy and gluten!!!!!!!!!!) and i havent cheated on purpose since. i felt ssssooooo bad i remembered and have no problem remembering how i felt after. sometimes it takes cheating to get you to enough of a bottom...
  18. confusedks
    Hey everybody. I can totally relate to not feeling better "soon" enough after gluten-free diet. I am just trying as hard as I can to not get gluttoned and bringing food wherever I go. I got a cool lunchbox with a freezer pack and that's helpful. Hope you feel better soon
  19. confusedks
    Hey. I have been suffering from symptoms my whole life. They thought I had an ulcer and ibs and I am stuck in an endless battle with anemia. I had iron IV treatments about a month ago and now we think I'm anemic again!!!! Thanks for letting me rant. I'm so sick and tired of being sick and tired. Kassie where do you live and what do you eat for lunch at school...
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