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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    I agree with previous poster. Not everyone with celiac is short or even thin for that matter. Celiac can be triggered at any time in your life but some doctors still think it is a 'childhood' disease. False negatives in both blood and biopsy are common but not false positives. After you are done with all the testing you choose to do get on the diet strictly...
  2. ravenwoodglass
    Cats are by nature animals that like to eat a little bit frequently during the day and night. If I picked up my cats food after 15 minutes they would slowly starve to death. It seems most of their eating takes place at night judging by the empty bowls in the morning. My cats eat both wet and dry food and I must be doing something right as when another cat...
  3. ravenwoodglass
    Try taking the sublingual B12 consistantly for a week or two and see if it helps. As with anything else if something really concerns you talk with your doctor, or just call the office and ask to speak with a nurse and ask for their insight. For me that tingling was due to B12 deficiency but that may not be the case for everyone.
  4. ravenwoodglass
    What are you eating? It is best to go with whole unprocessed foods as much as possible. Did you get a new dedicated toaster, cutting boards and replace scratched pans? Have you checked all supplements, OTC and script meds? Some supplements may say gluten-free but still contain wheat and barley grass, you don't want those. Many of us also avoid gluten ingredients...
  5. ravenwoodglass
    Hornsby is the only cider I have ever seen listed as not safe for us. Whether that was right or not I don't know. I did ask on their website and will post when they reply. I did find a phone number for them 877-467-6729 I'll try to call them later and see what they say. I do know Woodchuck cider is safe, that is the one I usually drink.
  6. ravenwoodglass
    Are you taking sublingual B12? That tingling may be a sign that your body isn't processing it yet from food or regular supplements.
  7. ravenwoodglass
    Gluten is addictive, literally. You may be going through withdrawl and by giving in to it and eating wheat bread you are prolonging the withdrawl. It is normal for you to feel constantly hungrey at first. Eat whole unprocessed foods for the most part and make sure you are getting enough protein. The hunger will level off in a pretty short time as long as...
  8. ravenwoodglass
    Glad to hear things went well. Get some rest and heal quick.
  9. ravenwoodglass
    No the blood test was not wrong. False negatives on both blood and biopsy are common but not false positives. The symptoms could well be celiac related. Is she eating mostly whole unprocessed foods? That is best at first. Also be sure to take precautions against cross contamination. She needs a new dedicated toaster, colanders and cutting boards need to be...
  10. ravenwoodglass
    Your IGG was positive. Did your doctor do a total IGA? Some of us are IGA deficient and that will give a false negative on the IGA related tests. If you feel better on the diet then stay on the diet consisitently for a while. Glad to hear you were there when the toaster bit the dust.
  11. ravenwoodglass
    If you go to the home page here: https://www.celiac.com/ you will find a box with links to safe and unsafe foods. Carbs are in more than just grains, they are also in fruit and veggies. Also you may want to drop the gluten free oats for a while. Some of us don't tolerate oats. After you have healed fully add them back in and see if you react. ...
  12. ravenwoodglass
    If anyone can identify with what you are going through I can. I got to the point where I was literally afraid to leave the house. Years of an upset stomach causes its own fear issues and then once diagnosed the fear for me escalated to the point where it was very crippling because I was so afraid of getting glutened. I did finally get to a therapist and a...
  13. ravenwoodglass
    One challenge is when you have been gluten free or gluten light and you want testing done. In that challenge you have to eat gluten for 2 to 3 months to redamage yourself to get the best chance for an accurate test. There is still a risk of a false negative. People do this if they have been gluten free or gluten light and want a doctor's diagnosis. Another...
  14. ravenwoodglass
    Many of us are anemic because we don't absorb nutrients from our foods. Your symptoms could be celiac related and it wouldn't be a bad idea to just go to your doctor and ask for them to run a full celiac panel. Be aware that there can be false negatives for both children and adults so when you are done with testing you need to give the diet a good strict...
  15. ravenwoodglass
    Make sure you are avoid barley, rye and oats as well as gluten. Also be careful about cross contamination from toasters, scratched pans and cutting boards that have been used for gluten foods. Go with as much whole unprocessed food as you can. Have you been evaluated by an orthopedic doctor? Does that knee feel like it is slipping out of joint? If it does...
  16. ravenwoodglass
    Yea I agree. Do use the ice packs that the doctor advises you to though. It will keep swelling down. I hope the procedure goes well for you.
  17. ravenwoodglass
    Gluten reactions can be delayed by as much as a week. If you want to do a true challenge you should eat a regular gluten diet for at least a week. If you had health issues resolve on the diet then chances are good that you need the diet.
  18. ravenwoodglass
    In every study I have ever looked at joining you have to be a blood and biopsy proven celiac. Not saying that is the case with all for sure. I think all the concerns you mention are valid. I would never join a study for the reasons you mentioned, even if they would let me. In the US celiac seems to be considered just a GI disease and all other symptoms are...
  19. ravenwoodglass
    Simply put the diet saved my life, literally. It did take some getting used to at first but it was so worth it. I hope you are feeling great soon. Don't get discouraged if you have some ups and downs at first and do be as careful about cross contamination as you possibly can. You want those antibodies to go away and it takes surprising little to keep them...
  20. ravenwoodglass
    The time to a gluten reaction can vary. For some it will happen within a day and for others it can take up to a week. For a rare few the obvious reaction may not occur for quite a while, the reason doctors used to think children would outgrow celiac, but damage is still being done. Sometimes the antibodies will effect organs other than the gut first, like...
  21. ravenwoodglass
  22. ravenwoodglass
    Yea just go with a less processed diet for a bit. You can learn a lot right here. Do check out the recipe sections as a lot of folks have some real good ones. Don't worry about eating a lot. There is nothing wrong with mini-meals and many of us are constantly hungrey at first. It is almost like the body is going 'nutrients finally give me more more more...
  23. ravenwoodglass
    Yea just go with a less processed diet for a bit. You can learn a lot right here. Do check out the recipe sections as a lot of folks have some real good ones. Don't worry about eating a lot. There is nothing wrong with mini-meals and many of us are constantly hungrey at first. It is almost like the body is going 'nutrients finally give me more more more...
  24. ravenwoodglass
    I think sometimes the chains can be hit and miss depending on how much time they spend training the staff. I had okay luck the one time I went to an Outback. For local restaurants my son had pretty good luck with ordering a baked potato and a steak. Just tell them to cook it in a clean pan and that you will season with salt and pepper at the table. More...
  25. ravenwoodglass
    Many GI doctors know nothing about the effects of celiac on other body systems. Many also don't know the effects on the GI tract that come before total villi destruction. If you were gluten free or gluten light at the time of the blood tests that would account for lower values. Have you been doing a challenge? If you have what has been the effect? Any return...
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