Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    The side effects were why they would only give it to me once a year. In addition back then (almost 50 years ago ) my DH was diagnosed as 'poison ivy in my bloodstream'. I did get poison ivy once on top of the DH and boy was that pure misery. One of your previous posts reminded me of the way my Grandmother treated my Mom's DH which was also thought to...
  2. ravenwoodglass
    This doesn't apply for everyone. Steroids were the only thing that helped my DH. Doctors would only let me take them once a year though and within a couple weeks of stopping them the rash was back. OP what kind of detergent do you use? If you are not already doing so you may want to go with something that is free of dyes and perfumes.
  3. ravenwoodglass
    Gluten reactions can be delayed by up to week. For myself I get digestive upset about 3 days later. If you have been feeling better gluten-free then that is a good indication that you need the diet. If you do decide you want to do more testing you need to go back on a regular gluten filled diet for at least a couple of months before you get more testing....
  4. ravenwoodglass
    Many areas will have sliding fee scale clinics. I have used one and saw the bill drop from 150 dollars to 4 for a visit. Some of them also have dental services that also charge on a sliding scale. Your local hospital or Social Services office will be able to tell you where one is. Give them a call.
  5. ravenwoodglass
    False negative results with children are high even if they have never been gluten free. Just because she has the genes doesn't mean she will for sure become a celiac. If you do want to test her then it is advised in many cases for the person to consume a regular gluten diet for 2 to 3 months first. But a false negative is still possible. If she develops symptoms...
  6. ravenwoodglass
    If these are true hives and antihistamine might help. If it is actually DH, the skin form of celiac, it may take some time to resolve. Folks with DH often will heal faster if they also drop iodized salt from their diet. If it is DH you may have to be very strict with the diet for a bit to avoid all chance of CC as even a small amount will keep the antibodies...
  7. ravenwoodglass
    Ya know I could say the same thing about soy. I would have healed faster if I had known in the beginning that I couldn't tolerate it but I didn't know and no one could tell me. It wasn't until I started making notes of ingredients on products that made me sick and saw that soy was the common denominator that I removed it and then had more good days than bad...
  8. ravenwoodglass
    Just to be clear the list I refer to is the US one. Processing and products may be different in Australia.
  9. ravenwoodglass
    He also speaks of having a reaction to Doritio's in the post. Many Lay's products are made on shared lines so some of us do have to avoid them from a CC standpoint. That is why Lay's gives two lists. One of items made that are known to be gluten free and another list, a very long one, of their products made that have a CC risk. A reaction to CC is not the...
  10. ravenwoodglass
    Things will become clearer in time. If you are pretty new to the diet you may be going through withdrawl which can make our brains kind of 'muddy' and make us a bit irritable. If you have recently been glutened then the same thing can happen. We are all trying to tell you that the gluten is corn is different from the gluten in wheat. Are there people that...
  11. ravenwoodglass
    I'm a double DQ9. You can see by my sig how much fun that was prediagnosis.
  12. ravenwoodglass
    There is a 'disclaimer' on every package of food sold. It is called an ingredient list. If I had a peanut allergy I would expect the label of a product to say it had peanuts. And it would be my responsibility to read that label. I do not expect my local Wegmans to hang a big sign up on the door saying 'We sell products with peanuts'.
  13. ravenwoodglass
    Don't let the doctor panic you. Sometimes doctors just like to scare the heck out of us. If she thinks that she should order a test for HIV to rule it out in her mind.
  14. ravenwoodglass
    Some of us can have false negatives on blood work. The biopsy results do suggest celiac so glad to hear you are giving the diet a shot. We do have ups and downs usually in the beginning as we get used to the new lifestyle. Hopefully the diet will take care of your problems but being on the diet will not mask testing for other stuff if that should be needed...
  15. ravenwoodglass
    I eat corn both fresh and in flour form. I am a very sensitive celiac. I am not concerned at all. Corn gluten is not a concern for people with celiac disease, in general. Even though it is called gluten it is not the same as the gluten found in wheat, rye or barley. You don't have to take my word for it. Go to the NIH or another reliable source like Celiac...
  16. ravenwoodglass
    It's amazing how many people think they will starve if gluten is taken out of their diets. Makes ya wonder if they ever eat anything other than bread and cereal. As to a 'like' button we do have one and also a dislike button. On the upper right hand side of someones post are a plus and a minus sign to agree or disagree. I use it sometimes when someone...
  17. ravenwoodglass
    I am not sure. Gluten only has to cross a mucuous membrane and enter the bloodstream to start the antibody reaction. In some countries they use a rectal gluten suppository and then biopsy the area to look for the antibodies. That prevents people from having to make themselves ill with a challenge as the antibodies can be found in the membranes a couple hours...
  18. ravenwoodglass
    You have celiac in your family and you have had positive blood work including one of the tests that are the most reliable. I would ask the allergist what testing he wants to do that requires you to keep eating, or go back to eating gluten. Celiac is not an allergy and will not show up on allergy testing. If you are not going to have a biopsy done then personally...
  19. ravenwoodglass
    While having celiac is not a good thing at least you know for sure now. Welcome to the club and feel better soon.
  20. ravenwoodglass
    The antibiotics may have allowed a bad bacteria to populate and I think the doctor can also tell this with the stool tests if that is the case. I hate antibiotics also. I usually start with probiotics, (I just eat yogurt and saurkraut), as soon as I start the antibiotic. For me if I wait till I am done with the drug it is too late.
  21. ravenwoodglass
    I hope that is not what it is too. It sure is no fun, as you already know. It was preCeliac diagnosis and my doctor(s) had diagnosed 'IBS' and since they couldn't find the cause of a lot of other issues I had I 'just wanted to be sick and was exagerating everything'. I knew right away that it wasn't my usual issues but the doctor wouldn't listen. Immodium...
  22. ravenwoodglass
    Welcome to the board. I think there are quite a few of us that have experienced that type of pain. Hopefully it will resolve for you once you have been gluten free for a while. You may want to drop dairy and avoid soy for a bit in addition to the gluten to see if that helps. After you have healed you can add them back one at a time to see if you can tolerate...
  23. ravenwoodglass
    Sorry this is happening to you. If the D continues past tomorrow do get into see your doctor. It may be a virus but it also could be food poisoning so your doctor may want to do stool tests to make sure that you don't have something like salmonella etc. Having immodium not work happened with me once and it did turn out to be salmonella. I suffered for 2...
  24. ravenwoodglass
    You could try putting a plastic tablecloth on top of the island when meals that you will be eating are being prepared. When finished wipe it down and put it away until the next time. If the island is rather small place mats might work also.
  25. ravenwoodglass
    Yes it is worth getting tested. You skin issue could be DH, the skin form of celiac. A derm could biopsy the skin next to a lesion to test for it. If you have DH you have celiac even if you don't have GI issues. Don't go gluten free until all testing is done but try the diet no matter what the test results.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.