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Nathan's mom

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Everything posted by Nathan's mom

  1. Nathan's mom
    You are so blessed to see such positive results so soon. It has taken my son a year and a half for his stools to begin to look normal, so I would say what you are seeing just means he is still healing inside. It really takes time for the intestines to heal and for things to digest like they should. Just give it more time. Debbie
  2. Nathan's mom
    We finally landed at a GI's office 2 months after my son was gluten-free - after his bloodwork and advice from a doctor to take him off gluten and "see if it makes a difference". He explained that the Ttg was very specific for Celiac disease and advised to have the scope done. Up until then I just thought my son had a gluten intolerance. I decided against...
  3. Nathan's mom
    Thanks for all the replies. I guess I could start this as a new topic but it does tie in to this whole subject of "what do you do to insure your child does not get glutened". I've had my son attend a daycare about three days a week for a few hours a day before K to give him some more playtime experience. In two months he has been glutened 3 times. Two...
  4. Nathan's mom
    Hi, My son was a picky eater also and now is not. We used to call him a Carbivore because he only focused on snack type food, or bread. About 3-4 months after being gluten-free (he was 3 1/2 at that time) he began trying a lot of different food. I don't think he just developmentally changed, but rather was feeling better and/or his brain was processing...
  5. Nathan's mom
    Ursa, Can you give me a good recipe? I've tried a couple and they are lousy!! They get sticky and aren't stiff enough. Thanks, Debbie
  6. Nathan's mom
    Okay, I got up the nerve to ask it! I know the dangers of playdo under the fingernails, etc. I'm just wondering if anyone lets their older child play with playdo? I'm trying to teach my son to remember it has gluten, to not put it in his mouth, and to wash his hands well. I want him to learn to navigate in a gluten-filled world! Does anyone out...
  7. Nathan's mom
    My son has been gluten-free for almost 18 months. I did try enzymes with him (mainly to see if they would help with other intolerances that I felt were affecting behavior). I think the enzymes were too harsh on his intestines. I did read in an Enzyme book that some can clean the intestines (along with helping to break down foods) which is likened to cleaning...
  8. Nathan's mom
    My son is 4 1/2 and will be starting K soon. I wish his behavior was more predictable and less hyper. It's not that he is extreme at all and does pretty well obeying the rules of the house, but it is clear that he reacts to more than one thing. The problem is that it isn't always clear what that would be. He has been gluten-free for over a year now. ...
  9. Nathan's mom
    My son is 4 1/2 and he has been gluten-free for almost a year now. We know that 8 days ago he was gluttoned while in a church class. I think it was only about 1/2 a graham cracker. That afternoon he commented that his stomach hurt. Two days later he had some huge poop for two days in a row (like a foot and a half long and 2 inches wide - don't mean to...
  10. Nathan's mom
    Make her an appointment and have her vitamin levels, thyroid, and iron storage levels checked. For my friends daughter, 10 was when she started having mood swings, being tired all the time, etc. She has hypothyroidism. They think the prepuberty hormones kicking in triggered it. And of course, with Celiac, there is a higher chance of other autoimmune...
  11. Nathan's mom
    Julie, I'm just curious. Do you mean your daughter is intolerant of those things or allergic? Did you figure out all those foods yourself or did you have any kind of testing done? I'm so glad she is doing well. It seems like when things mess with the body, for some it affects their nervous system/brain and it takes a long time to improve. I was hoping...
  12. Nathan's mom
    Hi Hiveman, I've read all of your post including the fact your blood levels have gone down and that you don't really want ideas - but I can't resist!! It is so much easier to "figure out" what is going on with someone else than be baffled by why my son isn't getting better behaviorally. When you mentioned a problem with aspirin it did make me think...
  13. Nathan's mom
    Thyroid and low iron stores can do this also. I have had the same frustration with my son (4) not getting better sooner as I would like. He eats constantly at times, is still hyper/strange behavior, etc. and tired. He was low on certain vitamins showing some malabsorption continuing. His tTG was in a good range though. Why it is taking him longer to...
  14. Nathan's mom
    My son had bloodwork done 3 times in the last several months. I thought the first time would be awful, but then realized it wasn't so bad because he didn't really know what was happening until the needle went in. Two out of the three times the technician got it on the first try very quickly. Only once did they have to "dig". I was praying very hard at...
  15. Nathan's mom
    Hi, I may be way off in my explanation of this, but I seem to recall reading something that supports this. When my son was very symptomatic (he only had C and sleep issues before), his eyes itched, skin itched, and he was clearing his throat 24-7. I think his immune system was on the alert and as a consequence he was super "healthy" over the winter- no...
  16. Nathan's mom
    Yes, thanks for your post, Burdee. I want to take my son to a ND before too long. We have been going through the MD route. I have had great doctors for him, but everytime I mention the bacteria/yeast thing, the subject gets changed or they flat tell me not enough is known about it to test. Their protocol doesn't allow them to venture there - even though...
  17. Nathan's mom
    Thanks Adelle. I found the ROCK coordinator listed for Salem and emailed her. It's a bit of a drive for me, but it would be worth it. I thought I would see what it is like and perhaps try to form a chapter closer to me. I KNOW there has to be other Celiac kids nearby. Yes, we went to the Living Earth Bakery in Corvallis. It was SO FUN to take my son...
  18. Nathan's mom
    Hi, Just wondering if anyone lives near me with young kids that just happen to eat things made with xanthum gum and lots of egg whites? I live about 30 minutes north of Eugene and 90 minutes south of Portland. Anyone feel the need from time to time to introduce or set up playdates with other celiac kids? I want my son to learn to live in the real...
  19. Nathan's mom
    We're getting his bloodwork done again. It's been a month since the last and I really wish we had the nutritional panel done in the beginning so we could compare from then. I did ask the doctor to add on another Ttg so we can just see if it is still elevated. I don't know where I'll begin if it is still high because I have wracked my brain with any possible...
  20. Nathan's mom
    My son's recent blood test checking for vitamin/mineral levels as well as liver function had a lot of highs and lows. Some are just outside the mark, but albumin and calcium are definitely low. He has been gluten-free for 6 months. He is not getting gluten from anywhere else. He is only 4 and I am a stay-at-home mom. I make all our bread, etc. ...
  21. Nathan's mom
    I'm confused about corn. I've read the post about Bob's Red Mill not labeling their corn products as gluten-free because it is produced in the regular mill. They wrote that as soon as they get gluten free corn to mill they will label it as such. Is all corn purchased in the U.S. somehow contaminated with wheat because of the initial grain storage or something...
  22. Nathan's mom
    I'm sorry I don't have time to read all the replies, but get rid of the dairy 100% in her diet and yours (I think I read you are breastfeeding). See if that helps. If not, take her back to the doctor! I used the FAILSAFE diet for my son for awhile. It worked for a friend of mine, but not for me. It only made matters worse because I fed my son lots of...
  23. Nathan's mom
    I don't think Enterolab will diagnose Celiac, only gluten sensitivity.
  24. Nathan's mom
    Thanks so much. I'm always on the look out for good "goody" recipes. I take a cooler when we go places for my son. I have an array of substitutes. One Sunday morning his class at church had animal cookies. He had to eat his corn chips. I felt so bad for him I won't let that happen again if at all possible. Do you use the Nestle semi-sweet? What...
  25. Nathan's mom
    Julie, Probably the best thing you can do right now is just start - somewhere! Don't wait until you understand it all. It doesn't work like regular baking. You'll learn as you go. Look at the baking section on this site to get ideas for good recipes. Once you find a bread recipe you like, you can experiment with different flours - just leave the starch...
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