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lob6796

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lob6796

  1. lob6796

    Happy birthday and may God bless you today!

  2. lob6796
    I asked if I could do mine awake and they told me that unless there are extenuating circumstances, they won't do it with you fully conscious. It makes their job more difficult. I am deathly afraid of being put to sleep, but they don't actually put you under anesthesia, they just give you enough medicine so you don't care what they are doing to you. They did...
  3. lob6796
    I'm assuming you mean you are going to the Grand Canyon? You can try "In and Out" a burger joint that has a dedicated fryer and they specialize in "protein style" burgers served wrapped in lettuce leaves. "La Tovar", "Bright Angel", and "Rod's Steakhouse"can accommodate gluten free (call ahead). There are alot of chain restaurants that do gluten free menus...
  4. lob6796
    I would get the checkup. If only just to tell the doctor that he is doing well on the diet, etc. The doctor may have reasoning besides looking at antibody levels for wanting to take blood. At a young age, it is easy to have malnutrition problems. He may want to check certain vitamin/mineral levels in his blood to be sure they are back up to normal again....
  5. lob6796
    Like others have said, no the US government does not provide financial assistance for gluten free foods. The reasoning is that you do not NEED to buy special foods for the diet. Maybe you can't eat your favorite foods anymore, but there are plenty of naturally gluten free items that will provide proper nutrition and that is the US guideline. You can get an...
  6. lob6796
    Yes, I've posted about them myself before. They are very sweet people. Their daughter was diagnosed with Celiac about the same time they went to open the restaurant, so they decided over time to make their restaurant a place where gluten-free people could go and just enjoy. And when they say they have gluten-free menu, they MEAN it! It is a FULL menu. From...
  7. lob6796
    Alot of soy sauces at the store don't actually have soy in them. You might try over at whole foods to get the best selection. I was there yesterday and I saw some without soy.
  8. lob6796
    I agree! I bought some Tinkyada pasta to give it a try before going gluten-free and yum! It tastes just like regular pasta to me. I did cook it a tad longer, but the bag says you can overcook it as much as you want! It was awesome.
  9. lob6796
    Do you think this recipe would work as a substitution? 1 1/4c GFF (rice flour, potato, tapioca) 1/4c tapioca flour 1/2 c potato flour 1/4c corn starch 1/4 c rice flour 3 tsp guar gum 2 tsp active dry yeast 1 tsp salt 2 egg 2 egg white 1/2 c water 1/2 c almond milk 2 tbls veg oil 2 tbls honey 2 tsp vinegar
  10. lob6796
    He isn't going in just for the biopsies, although he will be doing them while he is in there. My physician wants to check for any other possible problems as well since I have so many stomach issues. He wants to know what is the celiac, and what is possibly another problem.
  11. lob6796
    So I can eat whatever I want still. No, the biopsy didn't come back negative... it didn't come back at all! My mom and dad drive me up to Portland for the biopsy yesterday. We went early so I could go to Whole Foods beforehand and stock up on some gluten free supplies. That place is huge btw. We all actually had a pretty good time in the store, I think it...
  12. lob6796
    Wheat may be required to be listed, but just about everyone on the site can tell you that it can be hidden in alot of things, and that ALOT of products do NOT list all of the gluten in their products.
  13. lob6796

    ARCHIVED Good Dr. In S.w. Nh?

    lob6796 replied to marlene57's topic in Doctors

    I'm no help since I live in Nothern NH but I just wanted to say hello to a fellow NH Celiac Actually, I can help! The Seacoast Celiac Support Group is run by a great bunch of folks. They actually came up here not too long ago to give a bit of a speach and they had so much info. You can email Dan Davis at djdavis@mediaone.net or William Muzzey at munroe...
  14. lob6796
    I am half sure that kashi go lean's protein shake is gluten free. I'm also pretty sure it is dairy free. The problem is that is made of soy, which tends to make me run as fast as I can to the bathroom. Does anyone know of a protein shake/weight loss shake that is gluten, dairy, and soy free? thanks!
  15. lob6796
    I was thinking of getting the Kashi Go lean powdered mix, at least to start out so I am getting proper nutrition while I figure out what foods I can eat, plus I figure it might help me lose some weight. This is the ingredient list. Soy Protein Concentrate, Evaporated Cane Juice, Gum Acacia, Cocoa Treated With Alkali, Calcium Carbonate, Natural Flavor, Calcium...
  16. lob6796
    The moderator looks at each post to be sure it is in the right forum, then pins it. When I fist came here I thought it was the same as "sticky". It isn't. Your thread is now at the top of the list because it has been reviewed and pinned. At the top of the page, there is a link to View New Posts. You can click that to view all the new posts that haven't yet...
  17. lob6796
    Yes, I post on a fibro board and all of us there who are being actually treated for fibro are on some sort of drug like cymbalta, amitriptyline, etc. They have good sleeping and pain reducing side effects. My doc is continuing my fibro treatment until the symptoms disappear (if they disappear).
  18. lob6796
    From Entrolab: What role does genetic testing play in the diagnosis of gluten sensitivity? Currently, tests are available to detect the genes that control the immune system's reaction to gluten. These genes are called human leukocyte antigens or HLA. There are several types of HLA genes within each person. It is a particular type called HLA-DQ that...
  19. lob6796
    I was diagnosed as fibromyalgia and a month later while running all of the exclusion tests for a "positive" diagnosis of fibro, the celiac panel came back positive. My doctor feels that after anywhere from a week to a year after I am gluten free, I may not have any lingering symptoms of the fibro. He says that if I *do* have fibromyalgia AND celiac, that...
  20. lob6796
    YOU GUYS ARE MAKING ME HUNGRY!!!! LOL. Awesome suggestions all. And stuff I had forgotten about too!! I had pizza hut pizza today (yum) and an onion bagel with cream cheese. And an ice cream in a cone - do they even MAKE gluten-free cones? I'm thinking not, so I'm eating as many cones between now and then as possible, lol.
  21. lob6796
    Wednesday is the biopsy. I plan to begin my gluten free diet right away, but my doctor told me to pace myself or I would get really overwhelmed. I also know I react to dairy and soy, and would like to eliminate them as well, but I am thinking "one thing at a time". Gluten is priority to me. So for all those that have BTDT, how did you go about being gluten...
  22. lob6796
    My doctor told me that once I began the gluten free diet, I could expect to slowly regain my energy. In the meantime, he placed me on a low dose (25mg) of amitriptyline. It has the side effect at that dose of helping you to achieve a deep sleep state. He also put me on pain meds to take at night so that my muscle/joint pain wouldn't keep me awake, or have...
  23. lob6796
    I'm going to Whole Foods on Wednesday since I'm having the endoscopy in a town that has one (yay). I plan to immediately go gluten free after the endoscopy (blood test was positive already). What are some basics that I should pick up there? I want to get flours, etc because I plan to bake all of my own breads, cookies, brownies, cakes, etc. No mixes please...
  24. lob6796
    She wanted to know which was more reliable and that her doctor was doing blood tests to "confirm" diagnosis. I was just telling her that blood tests are not needed to CONFIRM a diagnosis. A positive biopsy is a positive diagnosis, end of story. He *should* have done blood tests first, not second. That way once the biopsy was done, she could immediately go...
  25. lob6796
    Yes, you HAvE to be eating gluten when the biopsy/bloodwork is done. Otherwise your intestines begin to heal, and your immune system isn't responding to gluten, so the results can come back false negative. I know your stress of not wanting to wait a minute longer to go gluten free, but you need to stay on gluten for a bit longer.
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