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emorgan816

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by emorgan816

  1. emorgan816
    Hi Scott! Redbridge beer is the best one that is gluten-free and Tinkyada pasta is awesome. Schaar pasta is also really good. If you you love pasta you HAVE to go to Da Lucianos in River Grove. Here is the website Open Original Shared Link Biaggi's also offers really good gluten-free pasta Open Original Shared Link. I'm a pasta snob and I have not...
  2. emorgan816
    Our group is on its way! Please check out www.mchenryceliacs.com for meeting times/places and for more information. Thansk! Elizabeth Secora McHenry Celiac Support Group
  3. emorgan816
    Sorry, forgot to add: Yes, get the media involved, but I don't think you would want them at the first meeting. Maybe see if they will do an article about living with Celiac - that is how we got our group going. One of my members got the reporter to write an article on how her girls live day-to-day with Celiac. She contacted me about the support group...
  4. emorgan816
    I just started a group (first meeting was in September). I was worried about having info, handouts etc... too but none needed! It was so awesome to have a group of people all with Celiac exchanging places to shop, favorite foods, breads we like, cookies worth buying, etc... We are meeting again this month at a local pizza place that has a gluten-free pizza...
  5. emorgan816
    My parents volunteer at a food bank and I asked about gluten-free items. I was told that no one looks at the packages when they bag them up to deliver them to the needy - they just throw the stuff into a bag and go. So, my gluten-free items are just going to anyone and not to those who may need gluten-free items.
  6. emorgan816
    I am starting a Celiac group for the McHenry, Illinois area. Our first meeting will be on Thursday, September 24, 2009 @ 7PM in McHenry, IL. If interested in attending please email me: emorgan816 at comcast.net or respond to this thread. If you email me directly please put Celiac Meeting in the subject line so I don't think your email is SPAM. ...
  7. emorgan816
    I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free. Here is the link to their exciting news: Open Original Shared Link Elizabeth Secora
  8. emorgan816
    "Within just a few months strictly gluten free the only things I am allergic to now is a few perfumes, cat spit and my yew bushes when they bloom." How do they test for "cat spit" ?! That cracked me up for some reason Elizabeth Secora
  9. emorgan816
    Here is a good link to read up on probiotics. Open Original Shared Link Here is an article on pro- and prebiotocs: Open Original Shared Link I am on them - but I am 41 years old and under a doctor's supervision (an allergist). So, I would have no idea about putting children on them. I would talk to a doctor about that! My doctor put me on a whole...
  10. emorgan816
    There are two opposing sides to this one, but everybody is different. I know people who are very sensitive to gluten in make up, shampoo, lotions, bath soaps, etc... but I also know many who are not. Personally, I can not use products that contain gluten as I break out in a red itchy rash. When I use shampoo, conditioners, makeup or hairspray with gluten...
  11. emorgan816

    ARCHIVED Naturopath/homeopath

    emorgan816 replied to jmengert's topic in Doctors

    I have only wonderful things to say about holistic medicine - the number one reason is that they seem to understand that in order to treat a patient they have to listen to them! We've all been thru that with our doctors. After finally getting someone to diagnose me I was told "Yes, you have celiac. Come back in 3 months." And left me on my own. No explanation...
  12. emorgan816
    I'm leaning towards find a new GI doctor! We do need to have blood work done once every year to make sure our diets are remaining gluten-free, so I would at least go ahead and get that done (especially if the last time was 4 years ago). But for him to just bluntly state you have IBS is insane - isnt that just undiagnosed celiac anyways!? Why would he not...
  13. emorgan816
    I'm new to this Celiac too - diagnosed in March. That is why I'm starting a support group, there is nothing out there in our area! Elizabeth
  14. emorgan816
    Natural flavoring should be OK in name brand items (according to the Celiac Foundation). It is the off brands you need to be careful of. But to be sure I would call the manufacturer. Caramel coloring may or may not - again I would call the manufacturer on this one. Soy Sauce you need to be aware of - most contain wheat. Again, call the manufacturer...
  15. emorgan816
    I have muscle pain all the time. I was also diagnosed with Fibromyalgia along with Celiac. I have pain all over my body. There are specific trigger points the doctor can check to see if you have this. Stretching helps and so does exercise. My problem is when I exercise I hurt more - I haven't gotten over that hump yet! So, I don't exercise often enough. Message...
  16. emorgan816
    Hello all! I am starting a support group in McHenry, IL. I am tired of trying to find information on my own - I am amazed at how little support there is out there for gluten-free people! It would be wonderful to be able to share information, share our experiences and share our frustrations. Anyone interested please contact me at emorgan816@comcast.net ...
  17. emorgan816
    I'm in McHenry too. Did you start a group or did you find one yet? Elizabeth
  18. emorgan816
    I'm with ya on what to buy at the grocery! I was in tears the first time I went shopping - gluten in everything! I'm new to this too (end of March). Now I go with fresh fruits and veggies. From what I can gather, the more you can stay away from anything "processed" the better off you will be. I get fresh carrots, strawberries, grapes, corn, apples, broccoli...
  19. emorgan816
    I've ordered bread and pasta from kinnikinnick foods online. They even have a gluten free version of the Oreo (chocolate and vanilla). The stores by me are very lacking in selection too. Kinnikinnick does charge $10 for shipping, so I usually stock up when I order. Their donuts are not bad either. Elizabeth
  20. emorgan816
    I'm sorry to hear he is not feeling better. Did you also cut out dairy and sugar? I would find an allergist and take him there. I went to one and discovered I'm allergic to many things and once I eliminated them I am starting to feel much better. Dairy and sugar are the two major ones I eliminated - but from what I understand dairy intolerance goes along...
  21. emorgan816
    I'm now on the probiotics and they really make a big difference. I also use the digestive enzymes (I take one whenever I eat anything). The brand my doctor recommended was Ortho Molecular - it does not need to be kept in the fridge like some probiotics do. He's also got me on OrthoMega (fish oil), Floristor, Vitamin E, Fiber and calcium. Elizabeth
  22. emorgan816

    ARCHIVED Need Advice

    emorgan816 replied to Emily Elizabeth's topic in Doctors

    Emily, I found that my regular doctor did not prescribe any supplements for me. It was go gluten-free and come back in 6-8 weeks. Well, I took matters into my own hands and went to a holistic doctor that specializes in allergies and he put me on probiotics, digestive enzymes, Vitamins and a powder drink - all to help boost my immune system and help my digestive...
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