Jump to content

ShadowSwallow

Advanced Members
 View Profile  See their activity

  • Posts

    261

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ShadowSwallow

  1. ShadowSwallow
    Kassandra, Yay for not feeling utterly horrible when you woke up! (Or at least I assume so...) Everyone, We just got ahold of the nurse at the LLMD, and she said that it was fine for me to take the Flovent for now. Also, the bloodwork from Fry Labs came back negative for all Lyme coinfections. My other bloodwork (from Lab Corp) hasn't come back...
  2. ShadowSwallow
    Nyxie, I don't know how I missed congratulating you on your appointment! That's fantastic!!! :D And... I'm not allowed to call tonight. (And she didn't pick up the phone when I did call .)
  3. ShadowSwallow
    I just realized something! Two years ago, when my health took a very rapid turn for the worse, it was right after an anaphylactic reaction where I went to the ER and was pumped full of immunosuppressants and given prednisone for about a week after. This is all starting to make sense now.
  4. ShadowSwallow
    Yes, I'm East Coast and the offices are closed now, Andrea, but the nurse gave us her home number. I hate to keep using it, but this is important!
  5. ShadowSwallow
    Kassandra, I'm glad you're feeling better, even if it is just a little bit. I mixed some nut butter (smooth cashew butter) into a peach smoothie last night. It tasted very different, but good. Everyone, Mom's been out most of the day, so I haven't had a chance to call the LLMD back. When she gets home I hope I can get ahold of the nurse. Really...
  6. ShadowSwallow
    Andrea, Mom already wants to go to our allergist, Dr. K, to discuss lyme with him (why, I don't know), but he is very knowledgeable about metal toxicity, so it would be nice to discuss that with him. Mom's said that she doesn't want to "jump from doctor to doctor" with our problems, but I'm really not comfortable with the care we'd receive from this doctor...
  7. ShadowSwallow
    Carla, The LLMD's office called back when we were away. This is so frustrating. I can't go off of it, because the strictures won't heal, and will only become worse because of the stretching (and this is the only way to treat EE, before going on an elemental diet, etc). On the other hand there's the lyme... I'm also back to the point where Mom's starting...
  8. ShadowSwallow
    Carla, I completely forgot that. I have a call into the LLMD now, but we have to leave momentarily for the Naturopath's. Hopefully they won't call back during the 4 hours we're going to be away. The steroid I'm on is aerosol, so it's only supposed to affect my stomach and esophagus. What egg white protein powders have people used? I've been calling...
  9. ShadowSwallow
    Yes, that's it exactly. Only the GI dr (a celiac specialist, he actually spoke at the local annual celiac seminar) is just treating it with steroids now, probably because I'm already eliminating so many foods already. Happy Birthday Jin!!!!! Kristina, I live in the NE US. All of my drs are along the western edge of PA, though. I could give you...
  10. ShadowSwallow
    Rachel, Your PM box is full, so I couldn't get my email to you. Kassandra has it, though... maybe I should send it to you, Andrea.
  11. ShadowSwallow
    Kassandra, I just sent you a PM with my email. Julie, Wow, that's a scary flare-up. I'm so glad it's disappeared for now. That information about the immune system is fascinating!! I want to take that test, too... Rachel, AMAZING news on your DMPS!!!! :D Everyone, Yesterday I had an endoscopy, and they found out some pretty bad...
  12. ShadowSwallow
    Oh my goodness, Kassandra. :angry: If I were you I'd be contacting the local paper and asking if they want a story about a neglectful insurance company. Good thing you're not me. Welcome, Tantwan.
  13. ShadowSwallow
    My sister was on GLA for a while (she might still be on it) and she didn't notice any difference in her appetite (of course she's 15 and sick now, and only saying "I don't know" so I can't vouch for the information's accuracy ). The only thing that made a noticeable impact on her appetite was going gluten-free, and if she ever goes casein-free (Entrolab says...
  14. ShadowSwallow
    I'm English, Irish, Russian, Scotch-Irish, Welsh, Scottish, Swedish, and Native American, a real mutt.
  15. ShadowSwallow
    Carla, that's absolutely fantastic!!!!! Jin, That's wonderful that your grandmother had a good day and you were able to talk with her. Kassandra, I'm so jealous! Those sound so comfy!
  16. ShadowSwallow
    Contradancing is like square dancing, but without the funny costumes, and in lines (like they do in the Jane Austen movies). It's amazing fun, I do it once a month with a bunch of friends, but this is the first time I've had a reaction like that. Oh, Open Original Shared Link a better explanation of contra. It takes a lot of energy, though, and I'm going...
  17. ShadowSwallow
    Rachel, I'm not doing Humaworm yet. Going to do an endoscopy first (Friday). I hope your mineral IVs go well! Kassandra, Those temperature fluctuations are odd. Possibly it could have something to do with your adrenals? Yay for the LLMD appointment! Any news about the insurance yet? Everyone, Well, I'm sick. Apparently contradancing was...
  18. ShadowSwallow
    Thank you everyone for your stories. TS - on the forum at lymenet.com there's a thread called Newbie Information. There are many, many topics in that thread about lyme and related conditions. There might be something there on bone loss and lyme.
  19. ShadowSwallow
    Nyxie, Don't worry about coming in here overwhelmed. That's what we're here for. Rachel, That's AMAZING NEWS!!!!!! Kassandra, It seems like insurance companies don't believe that ill people have enough problems and feel compelled to add some more. Carla, Hooray for getting the braces off!!! Today I saw my counselor and he did...
  20. ShadowSwallow
    Kassandra, At least it's not like they can delay another week or two now you have the PICC line. Offthegrid, PARTY!!! Congratulations!!! Everyone, I swear, a miracle happened, at this point Mom's listening to me and very seriously considering anibiotics. I suppose my huge explosion (not pretty, and definitely not something I'm proud of...
  21. ShadowSwallow
    Thank you for the suggestions! We made those peanutbutter cookies with cashewbutter and they were so good! They disappeared very, very quickly, and all of the people we shared them with loved them.
  22. ShadowSwallow
    Carla, I'm going to do that. I printed it out for my Mom to read as well. If she's so set on calling the shots with my treatment she might as well understand what she's dealing with. There's a fairly good chance she'll read it. The only problem with Dad is that he needs the positive lab results to "prove" that I have this. Having nearly half of the symptoms...
  23. ShadowSwallow
    Has anyone here gone on abx for lyme with having a past history of, or dealing with, candidia and/or leaky gut at the same time? How was your treatment? And what did you do in addition to the abx to help heal yourself and/or keep those issues at bay?
  24. ShadowSwallow
    Well, the hope I had to work out a plan for my mother and I to follow for dealing with lyme, etc, blew up. Mom refuses to work with me to write out a plan because there's so much in flux with my health. So I'm allowed to write out what I want by myself. I understand her point, but can't we at least have something we can work towards? Also, when...
  25. ShadowSwallow
    No, your doctor is misinformed, this test still exist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.