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Pegster

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Everything posted by Pegster

  1. Pegster
    DH was actually a lucky diagnosis for me. A positive DH biopsy means you have Celiac disease and you need to cut gluten out of your diet completely. The rash will go away. Mine went away very quickly, but I still have flare ups after three years. I am thankful to have a definite diagnosis from my skin biopsy because so many people have intestinal difficulties...
  2. Pegster
    I spent a week in the Tokyo area and had a lot of trouble eating out. I did have one meal at an OUTBACK and had lots of help at the Tokyo Disney resorts. Tokyo Disney Sea and Disneyland employees were extremely helpful and would provide a translator so I could speak to the chefs. I had great meals at Disney! However, outside of Disney was another story...
  3. Pegster
    Yes. You need an active rash to be biopsied. My dermatologist had me come in when I had an actual blister so he could biopsy right next to it.
  4. Pegster
    "My scalp bloomed gloriously with blisters" Now THAT is poetic...and very true!
  5. Pegster
    I have DH and I get the blisters around my waistband. My dermatologist told me it probably wasn't dh but I know that it is. I also have a nickel allergy, but considering I don't have nickel anywhere near my waistband, I truly doubt that that is what it is. Do use a mild laundry detergent (scent free/ dye free etc.) to start with. If you are diagnosed with...
  6. Pegster
    We go to LV about 2-3 times a year. We stay at Ballys or Paris usually. I have eaten lots of places and usually I get lots of help from the staff. I take my own muffins (from Kinninnick) for breakfast, and put cheese, rice crackers, fruit, etc. in a cooler in our room. We eat out once a day. There is an OUTBACK on the strip. I've done okay at the Paris...
  7. Pegster

    ARCHIVED Doctor And Dh

    Pegster replied to aedems's topic in Dermatitis Herpetiformis

    My dh rash came and went for years without any kind of pattern. I was also diagnosed with many of the same things as your daughter and was given all sorts of creams and ointments. The rash (on my elbows mostly) would go away for a while and then show up again. It took people asking me what was wrong with my elbows before I went to a dermatologist instead...
  8. Pegster
    My feeling is that dh can actually get worse for a while as the body is ridding itself of the gluten. Also, as you go gluten free, smaller and smaller amounts of gluten will cause a reaction. Watch for anti-inflammotory drugs- they can cause flare ups for some reason even if they are gluten-free. Also iodine can be a culprit. Now as for relief...I KNOW...
  9. Pegster
    Well the good news is that you're committed to be gluten free with or without the official diagnosis, right? You may know in your heart that you have dh, but the doctor disagrees. Since the treatment for dh is to be on a gluten free diet, I guess it doesn't reallly matter if it's official or not. I have the opposite dilemma in that I have the dh diagnosis...
  10. Pegster
    Franceen I feel your pain (and itch)! I'm glad you're clearing up. It's a miserable feeling to itch all day and night long.
  11. Pegster
    Because my youngest is allergic to peanuts, we have always had to be careful in the kitchen. When I was diagnosed with celiac disease, the family just went along with the new routine. I don't cook or bake with gluten except the occasional holiday cake (my mixes are too expensive to share). I make pasta sauce and gluten-free pasta. If someone wants regular...
  12. Pegster
    I had a chunk taken out of each elbow on a Friday afternoon. A few hours later I went on stage in a production of "Fiddler on the Roof." Opening number: Tradition! and I throw my arms up in the air. RIP! go the stitches. Alls well that ends well: two years later my scars are barely noticable!
  13. Pegster
    Sawgrass: I was lucky in that my DH cleared up almost immediately. Unfortunately I get little random outbreaks every now and then, but rarely is it really terrible. I have been gluten-free for over two years now. Lindalee: I have had dh on my lower stomach, particularly on the sides around where the elastic is on bikini underwear. It's miserable...
  14. Pegster
    Before my official diagnosis of dh, my dermatologist gave me that same cream, although in ointment form. It helps with the flare ups. Luckily it was the dermatologist who did the biopsies without even telling me what he suspected it was. When the biopsies came back positive for dh, he explained about the gluten issues and set me up with a GI dr (useless...
  15. Pegster
    My racing heart and PVC's were linked to my underactive thyroid. I got the thyroid diagnosis and my Celiac diagnosis on the same day by different doctors! I'm on a beta blocker and my heart is calm now, except when I see Hugh Jackman.
  16. Pegster

    ARCHIVED Throat Hurts

    Pegster replied to 2old4's topic in Coping with Celiac Disease

    There is a great tea called "Throat Coat" which singers use. It is gluten-free and really soothing. It's made by "Traditional Medicinals" and I buy it at the grociery store.
  17. Pegster
    My understanding of the gluten antibodies is that they stay in the skin for quite a while. I have been gluten-free for two years and will every now and then have some intestinal event that I can't quite figure out or I will suddenly get a dh outbreak. I am VERY careful of what I eat and how it is prepared. My guess is that if you had a biopsy near a suspected...
  18. Pegster
    Mine show up right away on my elbows. Just a few hours after I've eaten something by mistake. (Usually at a restaurant)
  19. Pegster
    I usually get blisters right away if I have a gluten accident- Usually within 24 hours, but I've been gluten-free to the best of my knowledge for two years now.
  20. Pegster
    I understand why you want to know for sure. I had seen pictures of dh blisters and thought it looked like what I had, but couldn't imagine that I was intolerant to gluten of all things. I never would have commited to the gluten-free diet without the firm diagnosis which I received from the skin biopsy. Too bad you have to go back on gluten if it makes you...
  21. Pegster
    By the way, Ibuprophen kills the itch for me, but need to take 4 tabs every 4 hours to maintain. That's a lot for my liver, but works in a pinch. And I take 4 in AM and 4 at bedtime with the 4 benedryl Good Luck, and I'm anxious to hear other's experiences with the AWFUL DH SKIN. Franceen
  22. Pegster
    Have you experimented with cortizone creams or ointments? When my daughters get the behind the knees (and inside the elbows) rash, we mix our own "Princess Cream" which is Nivea mixed with hydrocortisone cream. A dermatologist first made this for us, and then we started mixing our own. I just squeeze out a bit of the cortisone and mix it in my hand with...
  23. Pegster
    Let us know how your tests come out. Good luck!
  24. Pegster
    I know what was making me sick! When I got sick after having coffee with a muffin, I blamed the coffee! When I got sick after eating pancakes, I blamed the syrup! I used to have "Food Poisoning" CONSTANTLY. Now the mystery is solved! Also I don't have to eat all the weird foods at the church pot luck!
  25. Pegster
    My diagnosis came after I complained to my dr about the itchy and somewhat painful red blisters on my elbows and knees. Mine never looked white. They were reddish and contained a clear fluid most of the time. They were a lot like tiny little hives. When I got them on one side of my body, they almost immediately showed up in a symmetrical pattern on the...
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