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Latest Celiac Disease News & Research:
Everything posted by Nyxie63
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ARCHIVED Another "could I Be..." Thread
Nyxie63 replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Geeze! The endo was an idiot! Not only that, a dangerous idiot! If you have thyroid antibodies, you need to be on suppressive therapy.... yesterday! As long as your thyroid is producing, it will continue to undergo antibody attacks and you'll only get sicker and sicker. You need to be on total replacement therapy and looking at a TSH close to 0. No... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
That's definitely something to think about. While an official dx would probably make it easier for the family to accept my new eating routine and precautions, other than my own idle curiosity, there really isn't a "reason" to do all the testing. I have my proof. The biggest problem I've had so far with any of this health stuff is that I don't look... -
ARCHIVED Another "could I Be..." Thread
Nyxie63 replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I fully understand your frustration. I fired my endo. She blamed all of my symptoms on perimenopause. Then when I asked her to test my hormones to find out for sure if that was actually the problem, she looked at me like I'd just asked her to do something obscene and asked "Why!?!?". She was arrogant and soooo patronizing! I half-way expected her to... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Cool! Thanks for the tips! Is the ratio of honey to sugar 1:1? I have an absolutely faboo source for honey. My current faves from them are heather honey (tastes like flowers) and killer bee honey (no kidding). Hrm. I'm still up in the air about a lot of this stuff, especially testing. My insurance will pay for a lot of things, but its changing... -
ARCHIVED 25 gluten-free Recipes That Even Gluten Eaters Will Like
Nyxie63 replied to lonewolf's topic in Gluten-Free Recipes & Cooking Tips
OMG! These are wonderful! Gobs and gobs of thank yous for posting them! *eyeing up the rosemary chicken for tonight* -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Paula and Hathor, This place really is addictive. Exchanging one addictive subsance for another? I can live with that. I've decided to handle the kitchen clean-out by assigning pair of rubber gloves as my "gluten gauntlets" for when cleaning out the cupboards. Yeah, it's cheezy, but gotta have fun with this where you can. Have a... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Well, this all didn't happen immediately. Don't know if that makes a difference. The stomach stuff started within a 1/2 hour, the bloating/gas within 2 hours, and the pain/motor function stuff within 3-4 hours. During this time, I hadn't eaten anything that I hadn't already been eating during the elimination. Ok, will try something with barley in... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Neat! Thanks for the link! -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
LOL! I'm finding that out! This board is now my new obsession. The more I find out here, the more I realize I'm probably CC-ing myself to some extent every day, even on the elimination diet. Gah! That would probably explain why my stomach has been still cramping. Not a bad idea. Since I do most of the grocery shopping, I... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Thanks so much! Wow! That's given me all kinds of ideas (not all of them constructive) for reorganizing the kitchen. Fortunately, hubby and I have very different ideas of passes for "food" and he doesn't dip into a lot of my stuff. Its too "healthy"! Guess the rest is going to have to be a matter of re-training. For me as well as for him. Looks... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Ugh! I was afraid someone was going to say that. My last little bubble of denial just popped. So, do you think its really worth getting tested at this point? Cool! Thanks! Need to find one for corn now too. Not worried about soy. I avoid it like the plague because of thyroid issues anyway (soy's a goitrogen - supresses thyroid... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
LOL! Thank you. icanhascheezburger.com is one of my fave sites. Wow! Detailed explanation. Great info! Thanks! At this point, I'm not sure if I'm just wheat-sensitive or actually gluten-sensitive. Still doing challenges after 3 weeks on an elimination diet. When I reintroduced wheat (3 tablespoons of cream of wheat), it started with stomach... -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
I don't have the counter space either. I like the broiler idea. Hubby can have his toaster and I'll just use the broiler. Don't think I'm going to be toasting anything soon anyway, but just want to get stuff sorted out before hand. Thanks! -
ARCHIVED Chock Full Of Questiony Goodness
Nyxie63 replied to Nyxie63's topic in Coping with Celiac Disease
Thank you both so much! Ok, next question: I know there's no way hubby's going to go gluten-free along with me. I have a hard enough time getting him to eat veggies. Is the toaster oven the best way to avoid CC? Hubby likes to have his toast and the occasional bagel and I'm concerned about this. Maybe putting foil down on the toaster oven tray... -
ARCHIVED Another "could I Be..." Thread
Nyxie63 replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
LOL Deb! Don't worry about it. If I hadn't been dx'd with adrenal fatigue earlier this year, I probably wouldn't know about any of this stuff either. There are some good self-tests you can do at home and info Open Original Shared Link. While that site refers to thyroid disease and adrenal function, its not uncommon for anyone who's had a long-term... -
ARCHIVED Endocrine Disorders - Thyroid, Adrenal, Etc
Nyxie63 replied to Nyxie63's topic in Related Issues & Disorders
Ok, more questions.. well one more. For women - if you have had "female" problems in the past, has going gluten-free helped with that any? Have the symptoms of painful menses, PMS, or PCOS resolved/minimized? I'm looking for hope here. -
This is what I've come up with so far. Guaranteed there'll be more. 1. Is there a good single source for finding message board-type depth of detail about food sensitivities? Book, website, whatever. I'm hungry for info and want/need instant gratification. 2. Just what exactly is gluten-lite? Is it eating mostly gluten-free, but still having some...
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What kind of reactions do you get when having sugar? I'm still in the process of challenging and today was "sugar day". I was actually looking forward to it because its been about 2 months since I've had any kind of sugary goodness. Had a tablespoon of turbinado sugar about an hour ago and am now having pain in my hips and both wrists. My...
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This is probably going to sound like a negative post, but it isn't really. Its therapeutic. I've only been gluten-free for 3 weeks now (elimination diet) and still in the shock/grieving stage. During those 3 weeks, I've been glutened twice. Once by accident and once intentionally by doing a wheat challenge. Not an experience I want to repeat any...
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This is a wonderful thread for newbies! Thank you all so much!
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So that's what happened! Like you, I thought they were safe. Stopped one morning and had 2 because I was starving and it was all I could eat on their menu (was on an elimination diet at the time). Ugh! The rest of the day, I felt awful and had D all the next day. I thought it was because of the high fat content. Didn't realize I'd glutened myself. ...
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ARCHIVED Another "could I Be..." Thread
Nyxie63 replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're welcome! Sorry I couldn't be more help. I don't buy into Wilson's Syndrome either. I've read his protocols and its much too wide a description and too simple a treatment. I think its really a combination of thyroid and adrenal issues which need to be addressed separately and treated by more than just T3. That being said, rT3 is real, although... -
ARCHIVED Endocrine Disorders - Thyroid, Adrenal, Etc
Nyxie63 replied to Nyxie63's topic in Related Issues & Disorders
Georgie and Wowzer, Thanks for your replies! So things will get better? Good to know. -
ARCHIVED Another "could I Be..." Thread
Nyxie63 replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're probably not converting the T4 into T3. Either that or you're producing reverse T3, which isn't usable by the body. I suggest getting both your FreeT3 and your rT3 tested. You're not on any thyroid meds, right? Keep track of how much salt you're consuming. I suspect when your salt consumption is higher, your positional BP is fairly normal.... -
ARCHIVED Another "could I Be..." Thread
Nyxie63 replied to Tranquillity's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Would you mind posting your thyroid values (with ranges)? Quite often, docs will tell us we're normal when they haven't a clue about optimal values. Huge difference. I'd also definitely pursue the adrenal angle as well. Have you done a positional BP test? Lie down for about 5 minutes and then take your BP. Then stand up and take your BP again. If...