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silk

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Everything posted by silk

  1. silk
    My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In...
  2. silk
    I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours. It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had...
  3. silk
    I laughed out loud at the 'little notebook' comment!? It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again. But the notebook comment is spot...
  4. silk
    As I stated, my children were accommodated at school and have also been accommodated in the hospital without requiring proof from a doctor to do so but I understand that requirements may be different elsewhere.
  5. silk
    I have never had endoscopy or blood work done but was told by my doctor, after several other tests (been so long ago that I can't remember what all they did) that based on my symptoms and the fact that they ended when I discontinued eating gluten and other conditions that I have (one being early onset type one diabetes), that he did not feel it was necessary...
  6. silk

    I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.?

    1. cyclinglady

      cyclinglady

      Ugh!  I, too, still have unresolved intolerances.  Xanthan Gum (added to gluten-free breads) is a biggie.  So, I have to avoid many gluten-free processed foods.  

      I think we all can relate to the bother of reading labels every single time!  ?

    2. silk

      silk

      Xanthum gum!  Yeesh!  I'm so sorry.  Knowing that is huge in gluten-free products must make your live-it (don't like the word die-it because it makes it sound as though those with celiac or gluten sensitivities eat as we do as a means of losing weight or as part of a fad!) very challenging.  I thank God that the labeling laws have progressed to requiring that allergens are clearly list.  That at least makes the label reading a bit easier. Now all we need is for the manufacturers to add a little light sex and a car chase or embezzlement intrigue into the ingredients, we could at least enjoy the 'light' reading we do while shopping!?

  7. silk
    What astounds me is that my girl is an educator. Apparently intelligent. She came to the conclusion that the children were most likely Celiac based on the fact that I am and that they all share the same symptoms with me, although not to quite the same severity and extent that I do. And to the fact that those symptoms disappeared when they removed gluten...
  8. silk
    Thanks very much to all of you for your replies. I can't believe the girl is actually drinking beer and eating pizza. She is normally very health conscious. An avid runner. Was a Vegan for a while. Dairy Free for a while. Her choice but hard to see her take the gluten away from two of the kids and then give it back. They trust her to make reasonable...
  9. silk
    My three daughters and I have Celiac disease, as well as at least two of our grandchildren. I have been gluten-free for about 7years and my daughters have for about 3 years. My oldest daughter, who has 4 children (two w/ celiac and we strongly suspect that the other two do as well), recently discovered Gluten Cutter. She says it is the next best thing to...
  10. silk
    I love the deli Rye. It makes amazing Rueben sandwiches and will be a great addition to our annual corned beef and cabbage meal on St. Patty's day.
  11. silk
    UPDATE: Just purchased and used the Ninja 1200 for the first time and so far I love it! Used it to make the frozzen white sangria as listed on one of the recipe cards that came with it and it is (falsetto voice) Awesome!!! Had no problem unpacking it or taking it apart or putting it together as several stated that they had in their reviews. And look ma...
  12. silk
    Do you find that the food processor works well for cake mixes and bread doughs?
  13. silk
    I actually had a nice stand mixer but it stopped dead in it's tracks and when I took it apart because yes, if it's already broken, I might as well break it some more, it looked like a lot of flour had lodged up inside of the housing and my guess is that is the most likely cause of it's untimely death. As I said in my original post, the ninja appears to be...
  14. silk
    Does anyone know of a good mixer or blender system that can handle our superfine flours? I have been looking at something like the Ninja because it mixes with a lid on it which would be nice to keep the flour powder from going everywhere but it gets mixed reviews. Does anyone have something that they use that they have had good success with?
  15. silk

    ARCHIVED Gluten Free Menus

    silk replied to silk's topic in Gluten-Free Restaurants

    I've eaten at Biaggi's and yes they do have prices and there food and service were fabulous!
  16. silk
    gluten-free oatmeal with apples and walnuts and a small glass of 1 percent milk. I just closed my eyes and pretended it was cold pizza! Didn't work, but then again, I didn't suffer the pangs of guilt either...."No Pang, no dang' when I look at the numbers on the scale this way.
  17. silk
    Is there a way for me to 'like' this? I am no fan of traditional cereal/toast type breakfasts. I eat them because I need to eat something, and nutrition is required but my D'ruthers would be cold pizza or tacos. However,your breakfast today sounds wonderful!
  18. silk
    I know this is probably way out there but if you are having problems digesting foods such as chicken, beef heavy proteins and raw veggies and fruits like carrots and apples, these are harder for your body to digest and process. Have you tried eating things like gluten-free oatmeal, cream of rice cereal, eggs, soups, things like that? I know they don't necessarily...
  19. silk
    My daughter and I discovered these at a local grocery store recently. The are like a gluten free 'lunchable' and they are amazing! There are about six different gluten free varieties and a couple of toxic ones to boot and I've tried every gluten-free one that they have. They are incredible. Low in calories..fairly nutritious and flavorful and way cooler...
  20. silk
    Not sure if this has been covered yet, but I am a type one diabetic and one of the most common 'tells' for me to know that my blood sugar is running low without checking by blood glucose level with my glucometer is that I feel nauseated and often have a headache to go along with it. Are you or have you been checked for diabetes? If you think about what...
  21. silk

    ARCHIVED Gluten Free Menus

    silk replied to silk's topic in Gluten-Free Restaurants

    I agree with you completely! Wouldn't it be nice (fantasy attack here) if there were no prices because, 'hey, you have this disease that totally sucks, so we are giving you your meal FREE just because you are a really nice person and deserve a break where your digestive system is concerned?' Yeah...don't think that's going to happen but I can dream....pizza...
  22. silk

    ARCHIVED Gluten Free Menus

    silk posted a topic in Gluten-Free Restaurants

    Has anyone else noticed that when you ask for a gluten-free menu in a restaurant, they take away your regular menu and hand you a print out of some sort with no prices on it? Why do they not have prices, you might ask? My best guess is that gluten free food is so darned expensive that they figure if we have to ask the price, we can't afford to eat...
  23. silk

    ARCHIVED Red Robin

    silk replied to cap6's topic in Gluten-Free Restaurants

    I found that they were very accommodating as well. My daughter and I sat very near the cook station so I could clearly hear what was going on. The manager told the staff that they had a gluten free order and that they needed to get the food allergy board out...which must mean that they have a separate surface they use for gluten-free food. He also told...
  24. silk

    ARCHIVED Red Robin

    silk replied to cap6's topic in Gluten-Free Restaurants

    It was nasty hear today and the RR is right down the street from where I work so I popped in to get a burger to take back to work. I don't know but I am pretty sure that they have replaced the mayo with crack cocaine! It was that good. I'm sold on RR. Now I don't have to stay away because I can't eat there but I do have to stay away because it is not...
  25. silk
    Just and update on this situation. I got this message from the dietician from Hy-vee today: Roxanne, Just wanted to let you know that we have completed the moving of the flour grinders from the gluten-free aisle. At Hy-Vee we strive to make your life easier, healthier and happier. Marcia
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