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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GFinDC
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Being asked to stop having celiac
GFinDC replied to Reneeblack's topic in Parents, Friends and Loved Ones of Celiacs
The link below talks about first degree relatives having a 44% chance of developing celiac disease. https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ -
Being asked to stop having celiac
GFinDC replied to Reneeblack's topic in Parents, Friends and Loved Ones of Celiacs
There is a higher chance of her developing celiac disease since she is a first degree relative. It would be a good idea to have her tested for celiac disease. She may develop it at any time. -
Sjogren's Disease is one of the conditions associated with celiac disease. you have a higher chance of having/getting one of the associated conditions than non-celiacs. https://www.beyondceliac.org/celiac-disease/related-conditions/ There are some celiac people who get gluten ataxia symptoms instead of GI symptoms. The antibodies can attack nerves...
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Thanks Tina! I assume you got this info from the VAERS system? I was looking at VAERS to try and find the overall vaccine caused death rate but couldn't figure out how to see that. Closest I got was I saw there were 1846 deaths from the vaccines but I am not sure that was a correct number. I've heard it is closer to 10K but wanted to verify that myself...
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Might be a good idea to have your A1C tested for possible T-2 diabetes.
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Blood screening false negative??
GFinDC replied to Ted33's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Yes, it is possible for the blood antibodies tests not to show positive but still have celiac disease. Some medications can cause this to happen. -
The Funny Pages - Tickle Me Elbow - The Sequel
GFinDC replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
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Here's a search for doctors near Albany, NY that treat celiac disease. You want to see a GI (gastrointerologist), and hopefully one that deals with celiac disease. https://doctor.webmd.com/find-a-doctor/condition/celiac-disease/new-york/albany/excellus-bcbs-simplybluesimplyblue-plus Bleeding in the small intestine can be related to celiac disease...
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Hi George, Maybe a search on celiac group in your state will turn something up. Your GI should have done a test for vitamin / mineral deficiencies? Depression/anxiety are linked to celiac and can be symptoms of deficiencies. Poor absorption of vitamins and minerals leads to many symptoms for people with celiac disease. B vitamins, D and some...
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The Funny Pages - Tickle Me Elbow - The Sequel
GFinDC replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
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I don't know if this is the problem, but fish oil is an organic oil so it c an go bad/rancid if left sitting out at room temperature. It's better to keep fish oil capsules in the refrigerator or freezer even. Just a thot.
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Newly Diagnosed
GFinDC replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Check out Jarrow Formula for one. They are a good brand name. Be sure to verify they are dairy-free tho. Many probiotics include some dairy. Solgar is a good brand and Naturemade too, but I haven't checked them for dairy. You can also find coconut yogurt in some grocery stores. "So Delicious" brand is one, but there others. Yogurts are made by bacterial... -
Hi Bridget, Since you have a high level of vitamin D I think you should correct that issue. Vitamin D is stored in fat so it doesn't wash out of the body like B vitamins do. Oily fish has vitamin D in it, so you may be getting all you need from the fish in your diet for now. I suggest you stop all vitamin D supplements now until your levels are back...
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Newly Diagnosed
GFinDC replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Brian, The first 6 months of the gluten-free diet can be a little rough IMHO. Recovery can seem sort of back and forth as far as symptoms go. I suppose your doctor knows what he means by mild celiac but it doesn't mean much to me. Your immune system either makes antibodies to gliaden or it doesn't. Mild symptoms is a different thing though. Since... -
Wrongly diagnosed with Celiac Disease?
GFinDC replied to Cbkilpatrick's topic in Related Issues & Disorders
Hi Brian, Symptoms don't directly equate to damage in the body. So mild symptoms can be from a lot of damage. People are different in their symptoms for celiac disease. But immune system damage will kill you eventually if you let it go on too long. Also, our guts tend to start reacting to more foods besides just wheat, rye and barley due to ongoing... -
Hi OT, A decrease in antibodies is a good thing. It may take several months for them to get back to normal levels though. Your gluten-free diet is key to improvement and healing. i suggest you stick with meats, veggies, eggs, nuts and fruit for several months. Also avoid oats and dairy. Whole foods are safer than processed foods.
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Wrongly diagnosed with Celiac Disease?
GFinDC replied to Cbkilpatrick's topic in Related Issues & Disorders
Hi BrianG, No, you shouldn't keep eating a small amount of gluten. Celiac disease is an AI (auto-immune) condition. The immune system makes antibodies that attack the body cells, typically the gut lining first. The immune response kicks off when exposed to very low levels (microscopic) of gluten in the gut. And the immune response keeps going for... -
Should we assume toddler is celiac?
GFinDC replied to Pizzabagel's topic in Parents, Friends and Loved Ones of Celiacs
I think it's better to keep him 100% gluten-free for now. Eating a gluten-free diet is not harmful. There are plenty of naturally gluten-free foods to eat. He can get tested when he is older, like a young adult age. From his reaction to gluten I'd suspect celiac disease. -
Hi Jen99, If you do have celiac disease, then you need to avoid wheat, rye, barley and possibly oats. Also, dairy is often a problem for a couple months after starting the gluten-free diet. If you do go dairy-free, it's important to take a calcium supplement like calcium citrate. Calcium citrate is more absorbable than calcium carbonate. Other...
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Liver problems can appear with celiac disease. Usually the cause is cell apoptosis (cell death) due to the immune attack on the small intestine lining. The dying cells let out a chemical scream that causes liver damage. Usually this damage is reversible on the gluten-free diet. Rarely someone will develop an auto-immune response to the liver itself. ...
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Hi Brian, I am dairy free also. But, did you know that calcium is the largest mineral by % in the body? So it's important to take a calcium supplement if you are dairy free. Calcium citrate is a good form to take as it is more absorbable. Other important supplements to take are boron and vitamin D. They are both helpful in the chemical process of...
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For those avoiding dairy the possibility of calcium deficiency exists. So it's helpful to find and take a calcium supplement. Calcium citrate is better for absorption than calcium carbonate. But the carbonate form is cheaper and more widely available. https://labs.selfdecode.com/blog/calcium-deficiency/
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The Funny Pages - Tickle Me Elbow - The Sequel
GFinDC replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
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Hi Linz, Welcome to the forum! You should be over the worst symptoms in a few months. But some symptoms may reoccur for years. It takes several months for the antibodies to subside. Did you start eating gluten again to get tested? Being tested for celiac requires eating gluten for 6 weeks or so before he blood draw. Maybe you can get a...
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The Funny Pages - Tickle Me Elbow - The Sequel
GFinDC replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff