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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Gerry, Yes, celiac disease can develop at anytime in life. And there is a wide array of possible symptoms There must be a reason you were tested 10 years ago? GI symptoms then perhaps? Celiac symptoms can get worse over time, as the damage builds up. Malabsorption of nutrients tends to get worse and that can cause many health issues. Doctors...
  2. GFinDC
    Hi Charles, Yes, the regrowth of the villi should mean your celiac disease is in remission. At least until you consume a tiny bit of gluten that is. I think they sometimes treat colitits with budosenide? I know some forum members were taking that drug. So might search on that and find some info.
  3. GFinDC
    You might find something in this search: https://www.celiac.com/search/?q=colitis&quick=1
  4. GFinDC
    I think you are asking if the mashed potatoes are not a problem? I'd say they are a problem, as they are nightshades and have at least some of the alkaloids in them. You are right, the potatoes skins are the main problem, and especially the green eyes of potatoes. The green eyes can make anyone sick, not just people with celiac disease. You can switch...
  5. GFinDC
    Hi C.I.R. I agree with your idea of eliminating potatoes from your diet as a test. You might want to go ahead and eliminate the other common nightshades veggies too. That would mean taking out tomatoes, hot peppers and eggplant also. All nightshades have alkaloids that can impact our health. If you do switch to a nightshade free diet, stick with...
  6. GFinDC
    The bodies immune system is very persistent. Once it learns about an enemy and starts making antibodies it doesn't forget easily. The immune system makes antibodies to destroy enemies that are in our bodies. Things like germs, allergens, rogue cells etc. If the immune system didn't have this memory we would probably all die from disease. When you have...
  7. GFinDC
    Hi, You need to be eating gluten daily for 8 to 12 weeks before the blood tests. And be eating gluten for 2 weeks before the endoscopy. If this didn't happen, your test results may not be valid. I suggest you cut down eating gluten to a minimal amount for now, Don't stop entirely until the Dr, appointment and test verification. You'll need...
  8. GFinDC
    Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Get your vitamin/mineral levels tested also. Don't eat in restaurants Eat only whole foods not processed foods. That means meats, veggies, eggs, nuts and fruit. Eat only food you cook yourself, think simple foods, not gourmet meals...
  9. GFinDC
    You may want to check out Labdoor.com rating of vitamin supplements. Some supplements don't have the labeled % of the main ingredient. So your vitamin D pill may have been deficient.
  10. GFinDC
    Hi 3countryboys, It sounds like you have a boatload of troubles there. Sorry. Hypothyroidism can cause gastroparesis and depression by itself. Celiac disease can also cause those. Shouldn't be a problem to mix them, right? Bummer! I don't know what kind of diet plan you are following for gluten-free. But it is real helpful IMHO to stick...
  11. GFinDC
    Hi B, The usual diagnostic process is blood antibodies testing and then an endoscopy. The endoscopy is often set for weeks to months after a positive blood test. You need to be eating gluten for 2 weeks before the endoscopy. Most times it is easier to stay on gluten until the endoscopy is done.
  12. GFinDC
    Hi eah4me, Yes, that is the normal expected improvement from gut healing after going gluten-free. The villi begin to heal and are able to absorb nutrients again. That is a good thing.
  13. GFinDC
    Hi Beth, Usually they use a microscope to check for damage to the villi lining of the small intestine. But if the damage is severe enough they can see it with the naked eye through the endoscope. So my guess is they saw obvious damage and decided to do biopsy samples to check under a microscope. Then again the last time i guessed lotto numbers i didn...
  14. GFinDC
    @Nattyd, Sorry we are getting into the weeds some Nattyd. IMHO if you have positive anti-gliaden antibodies results then you are on the road to eventual GI damage or some other manifestation of celiac disease. Anti-gliaden antibodies are not normally prominent in non-celiacs. Can you post your test results and the result ranges? Labs all have...
  15. GFinDC
    Ok, seems logical. But, in cases of DH it is common that gut damage is minimal or non-existent for a period of time. Eventually the gut damage may appear and create ongoing GI symptoms. This is why the testing for DH includes a skin biopsy vs endoscopy. The skin rash is usually the first indication. You can't have DH without having celiac disease. ...
  16. GFinDC
    Hmm, perhaps I should have worded that differently. Declining antibodies would indicate possible celiac disease, not NCGS. There are no antibody tests for NCGS that I know of. The anti-gliaden antibody tests are for celiac disease only. We don't really know what particular tests the OP had yet. But DGP IgA, DGP IgG and the EMA test are for celiac...
  17. GFinDC
    Hi, I suggest you stay strictly gluten-free for 6 months and then have your blood tests re-done. If there is a significant decline in the anti-gliaden antibody levels then it seems gluten is definitely a problem for you. Anti-gliaden antibodies don't form in gluten sensitivity to my knowledge.
  18. GFinDC
    Hi Laura, The testing for celiac disease generally includes anti-gliaden antibody tests in the blood, then an endoscopy. The endoscopy is often several months after the blood antibody testing. Recovery from nerve problems can be slow as nerves tend to heal slowly. Six months or more is not unusual. I don't know if they will help but arch supports...
  19. GFinDC
    Thanks for all the info links Blue_Sky. There's some interesting stuff in there. The study in India seems to indicate the zinc levels in the patients increased significantly on the gluten-free diet even without supplementation. Not to the same level as the supplement group, but close to it. They didn't say what kind of gluten-free foods those people were...
  20. GFinDC
    Hi zentg, I think it's normal to feel upset by the forced change in diet that people with celiac disease have to do. Giving up favorite foods can be a bummer. It takes time to adjust to the gluten-free diet for all of us. Just like you learned to eat and like all your favorite foods you can learn to like other foods. There are lots of choices for...
  21. GFinDC
    Hi Meg, Hopefully Ennis_TX will pop in for advice. He also has MC and celiac. I believe he avoids some veggies but not sure which ones. Trents gave some good advice. A simple diet without spicy foods may help. Also some common food intolerances might show up like nightshades, corn, oats, dairy, eggs, soy etc. You can look up lists for the top...
  22. GFinDC
    Hi Neytiri, I read the article. It seems to be promoting the claim that this Talbot person has knowledge of food reactions caused by nickel allergy and bio-similar food proteins. That is not celiac disease and not relevant to the forum. Celiac disease is an AI (auto-immune) reaction to gliaden proteins. People with a nickel allergy may have...
  23. GFinDC
    Blood antibody testing is usually the first step in celiac diagnosis. The second step is an endoscopy to take biopsy samples of the small intestine lining. if your doctor is planning to do an endoscopy you will need to be eating gluten for a couple weeks before it. So it would be good to talk to the Dr. and find out what's next. Stopping dairy and...
  24. GFinDC
    Hi Meredith, Your symptoms do sound like possible celiac disease to me. Alternating constipation and diarrhea were recurring symptoms for me too. Testing for the antibodies that cause celiac damage requires us to have been eating gluten on a consistent basis prior to testing. The circulating antibodies decline after we stop eating gluten. If...
  25. GFinDC
    Hi Syann, Trents is right. You would need to do a gluten challenge to get accurate test results at this point. that means eating at least some gluten every day for a period of time before the tests. Your doctor can tell you how much gluten and how long to eat it before testing. Usually it is a 2 week gluten challenge for the endoscopy and 6 to 1...
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