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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    They will probably give you an answer at the follow up appointment. Antibodies are one part of a celiac diagnosis but the endoscopy is important also. Visual endoscopy views are not always dependable. Some damage is only visible under microscopy. But my guess is that 9 out 10 times or more positive antibodies are an indicator of celiac disease. Damage...
  2. GFinDC
    Hi Chris, Maybe a little review is helpful. This is my understanding of the events and may not be perfect. But hopefully will help. Day 1 Chris the Celiac is told by his doctor that he has celiac disease and to go gluten-free. 3 months later Chris goes gluten-free and expects to feel instantly better. But 3 months later he still is having...
  3. GFinDC
    Hi Chris, Some things that should be in every celiacs' medicine cabinet IMHO are Pepto Bismol for stomach/gut pain, Milk of Magnesia for constipation, peppermint tea or Altoids for gas/bloating. Betaine HCL is helpful for eating high protein or hard to digest foods like meats or nuts. Psyilium husks can be helpful to provide non-digestible...
  4. GFinDC
    Hi, There is no benefit to getting more testing that i can see. Once you are gluten-free the risk from doing a gluten challenge is not worth it IMHO. Better to just stay gluten-free I think.
  5. GFinDC
    Hi Len, Yes, the immune system reaction in celiac disease is very sensitive. if our immune systems weren't sensitive to tiny amounts they couldn't protect us against germs. A little crumb will do ya.
  6. GFinDC
    Hi Chris, I think you might need to consider eliminating foods for more than a few days or a week. Our GI system needs time to adjust and heal. Cutting out foods is a good idea but not if you are going to eat them again in few days or a week. You really can't learn much with that approach. Instead try eliminating entire foods groups for a month or...
  7. GFinDC
    The University of Chicago celiac center has a formula for body weight and required gluten in take for a gluten challenge. I think it works out to a slice or 2 of regular gluten bread per day for a 200 lb. man. Another option would be to take vital wheat gluten. Some people like to do a last hurrah and eat their favorite gluten foods for the challenge. ...
  8. GFinDC
    Hi Bob, How much longer will it be before they do the endoscopy? Sometimes a doctors office will put people on standby in case someone who is scheduled cancels. Then they call the standby patient list and ask them if they want to come in. That might shorten the wait for you. Another thing is the amount of gluten you are eating and when. You...
  9. GFinDC
    Right. Also, people who have celiac disease have it for life. It does not go away. Sometimes people will have reduced symptoms for a few years in their teens. But that is a temporary thing. So if you were diagnosed with celiac disease before you still have it now. A celiac disease antibody panel is common and then an endoscopy to take biopsy samples...
  10. GFinDC
    Hi Chris, Here's a snippet from the Cure Celiac FAQ at the University of Chicago Celiac Center. There is lots of additional information on their page for people learning about celiac disease. **************************************************************************** https://www.cureceliacdisease.org/faq/my-blood-tests-came-back-negative...
  11. GFinDC
    Hi Cindy, You probably won't get cancer from one glutening every few months. But then again, no one can say for sure. I am going to assume you haven't been on the gluten-free diet for long? Wanting to cheat on the diet is something I think is natural at first and maybe for some while after. Radically changing our diets is not a simple thing and it...
  12. GFinDC
    Hi Chris, It's good the tests didn't show any food allergies! Allergic reactions are actually caused by a different immune cell type and they can be deadly. I imagine you have heard of peanut allergy? Anyway, food allergies are not fun. Celiac disease is an immune response involving IgA and IgG cells. They act differently and affect different areas...
  13. GFinDC
    Hi Chris, Your blood antibody tests won't be accurate now if you have been gluten-free for months. They may not show any raised antibodies because your immune system is not actively making antibodies in reaction to gluten in the Gi system. Or they may show low levels of antibodies.
  14. GFinDC
    Hi Melisa, Soda can be irritating to an ulcer. So that might be part of the problem. As far as gluten goes, we need to avoid all wheat, rye and barley. That includes malt which is usually made from barley. Some people with celiac disease also react to oats. So it's good to not eat oats for several months while you are healing. The safest way...
  15. GFinDC
    Well, that inhales like a vacuum! Sounds like they are similar to most gluten eaters and not aware of the possible problems they cause for celiacs. I live in a shared house with gluten eaters and a shared kitchen. It works pretty well for me. I have a separate dorm size refrig for my "special" food. I also keep some silverware, pots and pans separate...
  16. GFinDC
    Well, your GI should tell you that you need to eat gluten for about 12 weeks before doing the blood tests for gliaden antibodes. They really should have tested your gliaden antibodies before you went gluten-free. If you had tested positive for the gliaden antibodies you might not be having doubts about your condition now. Hopefully your new GI will be...
  17. GFinDC
    It's unusual for doctors to jump to celiac disease. More often it is hard to get them to test for celiac or even consider it a real possibility. So you have an unusual situation there. Many times forum members report being tested for various and sundry ailments for years before finally being diagnosed with celiac disease. There is a gene test they...
  18. GFinDC
    Hi Klsword, Welcome to the forum! It can be confusing to start the gluten-free diet. There is a lot to learn and a lot to think differently about. For instance is all food really just poison in disguise !?!*$! No, it's not, But it can seem that way at first. To make the learning/adjusting process simpler, try sticking to whole foods and...
  19. GFinDC
    It might be helpful to take him back to the gluten-free beginner diet for a few months. That is a simple diet of limited spices and meats, veggies, nuts and fruit. No dairy, no oats. If he gets better on that diet then add one new food every 3 days. If he has girlfriends they need to brush their teeth before sucking face. Ewww! Don't forget that...
  20. GFinDC
    I suggest you talk to your doctor. If the diagnosis is complete, they may be wanting the endoscopy to make a baseline of current conditions. If they are planning to use it to confirm celiac disease, then you need to continue eating a small amount of gluten until the test is done. Your doctor should be able to tell you an appropriate amount of gluten to...
  21. GFinDC
    Hi Cody, I used to throw up but not from exercise. GI reactions were the problem. Celiac disease can cause plenty of nausea and other symptoms. Your idea of rotating foods in your diet is a good one. One of the side effects of celiac disease is some people become intolerant to other foods besides gluten. It seems like that tends to happen with...
  22. GFinDC
    Hi Midlifemama, I agree that getting the celiac testing done first is important. The celiac antibodies testing is a simple blood draw and doesn't take long. Generally the tests results are ready in a week or 2. The second part of testing is an endoscopy to take 4 to 6 biopsy samples of the small intestine. They check those biopsies for damage characteristic...
  23. GFinDC
    The mystery effect upregulated genes in celiac patients will protect celiacs from the zombie virus!
  24. GFinDC
    Hi Bouchra, I hope you get a clear diagnosis from your tests. But it sounds like you already know you have celiac disease and just haven't been following the gluten-free diet. Since celiac disease has no cure it doesn't go away. So new testing can confirm celiac or if you haven't been eating gluten long enough it may give a false negative. They used...
  25. GFinDC
    Thanks for the explanation Fasteddy. DH testing involves taking a small skin sample from near a DH lesion, not on it. They check the skin sample for IgA antibodies. People with DH may not have positive blood antibodies though. Maybe because the antibodies are concentrated in the skin instead of the blood? Anyhow, if you do have a DH diagnosis then you...
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