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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GFinDC
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Soy itself is gluten-free. But soy sauce usually is not gluten-free as it often contains wheat. Some of us (me) have a soy sensitivity. Soy is one of the top 8 food allergens in the USA. Probably because they put it in so many processed foods. The gluten we as celiacs need to avoid is in wheat, rye and barley. For some of us the gluten in oats...
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Why cant i eat anything?
GFinDC replied to MT500's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@ zenith12 I don't know how long you have been gluten-free or how well you have kept your diet gluten-free either. But if you are still having GI symptoms there has to be a reason for them. Either you were slightly glutened somehow or are reacting to another food besides gluten or you are not healed yet. To know for sure you'd need to get another... -
Hi Kittybutterfly, I can drink coffee for a few weeks but then it starts to get to me. I get so I feel very tired and weak if I don't drink it constantly. Like falling down weak almost. So it just isn't worth drinking coffee for me. Hopefully your GI system will settle down after you've been gluten-free for 3 or 4 months. But honestly it will...
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Gluten is the problem for celiacs. Gluten is a protein found in wheat, rye, and barley. Some of us also react to the gluten in oats. but not all of us do.
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Hmm, I don't think a paleo diet includes brownies? Anything with lots of ingredients should be off the menu if you are trying to identify food intolerances. That includes things like brownies, cookies, etc. You can always add processed foods into your diet after your digestive system is in good shape. But getting it to good shape requires some serious...
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It looks like Fruity Pebbles has 35% of the daily thiamine RDA. But it also has canola oil which can be hard to digest for some people. https://www.postconsumerbrands.com/pebbles/ It is simpler and better to avoid all processed foods for 6 months or longer after going gluten-free. You spend less time reading ingredient labels and worrying about...
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Celiac Disease?
GFinDC replied to Corey W.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are welcome Corey. I forgot to mention, low vitamin D is reported fairly often by forum members. I had it for years myself. You might feel better taking a 5000 IU supplement daily for a while. But get your doctor to approve. I take NatureMade as it is tested and does contain the amounts listed on the label. Not all vitamins do. You can look up... -
Interpreting test results
GFinDC replied to Ryder262's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Right, the tests should be included in a celiac panel. The celiac panel includes multiple antibody types that are tested, such as DGP IgG and DGP IgA, total serum IgA and EMA, ttg IgA. The total serum IgA indicates if your body is making normal IgA antibody levels. Some people only show positive on 1 type of antibody, so it is helpful to have all types... -
Burning Sensation in Gut
GFinDC replied to MissiMissi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, gluten can cause gut pain. The damage from celiac disease is progressive and tends to increase over time. So the longer a person with celiac eats a gluten diet the more damage and the more potential pain. Healing is variable and the progress depends on many factors. But the less exposure to gluten the fewer times the immune system is triggered... -
Omission beer makes me sick. But people have varying levels of sensitivity to gluten. So it may be ok for you. White Claw makes some flavored seltzer waters with alcohol that are gluten free. Not like a beer but in a can at least.
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Updated Recommendations for Drs. in Oregon/Washington area
GFinDC replied to Katharine W's topic in Doctors
This directory may help. https://celiac.org/about-celiac-disease/find-a-healthcare-practitioner/?cdf-geo-lat=&cdf-geo-lng=&cdf-query-loc=springfield%2C+oregon&cdf-query-dist=50&cdf-query-name=&cdf-specialty= -
Celiac Disease?
GFinDC replied to Corey W.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Corey, Gluten intolerance is when a person has a bad reaction to eating gluten containing foods but no testing shows celiac disease. They share some GI symptoms but gluten intolerance does not cause damage to the small intestine lining like celiac disease does. There are actually more people with gluten intolerance than there are people with celiac... -
Questionable symptoms
GFinDC replied to Help in Wi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum Celiac disease can kill if you don't go gluten-free. It is a slow killer but persistent. I encourage you to switch to a gluten-free diet and stick with it 100%. The gluten-free diet is the only treatment for celiac disease. -
Why cant i eat anything?
GFinDC replied to MT500's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Welcome to the forum! In celiac disease our immune systems attack the lining of the small intestine. The damages the villi lining the small intestine. Those villi are what absorb nutrients from food we eat. So when they are damaged we begin to suffer malnutrition symptoms and digestion symptoms. There are millions of bacteria in our guts... -
Hi Youssef, Welcome to the forum! The biopsy won't work unless she eats gluten for 2 weeks before. So that may not be worth doing just to get a test result. We usually suggest people don't go gluten-free until all testing is done, including the biopsy. But doctors will sometimes tell patients to go gluten-free while waiting months for an endoscopy...
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I think I might have celiac disease?
GFinDC replied to KristinaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
People with celiac disease can sometimes have increased liver test results. That usually goes away after some time on the gluten-free diet though. IgA deficiency is more common in people with celiac disease. You might want to ask for a Hashimoto's Thyroiditis test also. Hashimoto's Thyroiditis can cause Graves like symptoms at times. -
Celiac but my body still losing muscle or tissue? Why?!
GFinDC replied to Katharine W's topic in Related Issues & Disorders
OK, I didn't see that about the not having the endoscopy yet. If you go off gluten before the endoscopy your results may not be accurate. You would need to eat gluten for 2 weeks before the endoscopy so the damage is detectable. We usually suggest people don't go gluten-free until all testing is complete. That is because going gluten-free and starting... -
Celiac but my body still losing muscle or tissue? Why?!
GFinDC replied to Katharine W's topic in Related Issues & Disorders
Hi, You could be reacting to the dairy and oats but not realize it by symptoms. It can be hard to pick out an offending food when a person is eating multiple foods with many ingredients every day. That's one reason the whole foods diet is helpful, to find problem foods. No, you shouldn't eat oats for 6 months per some celiac sources. Oats are... -
Celiac but my body still losing muscle or tissue? Why?!
GFinDC replied to Katharine W's topic in Related Issues & Disorders
Hi, It takes time to heal from celiac damage. Months to years is not uncommon. That doesn't mean you can't be getting better along the way to complete healing though. In celiac treatment, the answer is diet, diet and diet. Getting thorough the first 6 months of the gluten-free diet is probably the hardest for most people. Some things you should... -
Should I get tested for Celiac ?
GFinDC replied to Coldste's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did your doctor do the gene test? Or did they do the ttg screening test? The gene test does not diagnose celiac disease. It does tell you if you have the genes that can cause it. But around 30% of people have those genes and only 1% get celiac disease. The ttg blood antibodies test is accurate for many people. But it doesn't catch all cases... -
Hello, my 3yo son has igg antitransglutaminaz elevated 19...what does it mean..he doesn't have celiac digestive manifestations..k noticed that when he eat gluten products next day he has atopic dermatitis and keratosis pilar like lesions
GFinDC replied to Ana1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You might want to ask for the complete celiac panel to be done. It includes more antibodie tests than just the ttg. Test results like DGP IgA and DGP IgG can be helpful to know the levels for comparison later. Some of us react to oats the same as wheat, rye and barley. There is a condition called DH (dermatitis herpetiformis) that is a manifestation... -
Hi Welcome to the forum! I suggest you try avoiding rye also. Rye may not give you noticeable symptoms but in time the immune response can still do damage, As celiacs we need to avoid wheat, rye and barley. Some of us also react to oats. A chocolate covered biscuit would have gluten in it because the biscuit is made from wheat right? Not sure...
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Hi, welcome to the forum! At 40 days into the gluten-free diet you may just be starting to heal your gut. The immune response takes time to settle down and stop attacking your gut. So food reactions can sometimes be caused by the unsettled state of your gut, You may react to foods now that won't bother you later. Cool Ranch Doritos are a processed...