Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

cluseau


cluseau

Recommended Posts

cluseau Newbie

This is my first post so forgive me if it is not correct.  I was recently diagnosed with Celiac's disease and I tried several gluten free beers.  I found out that I cannot tolerate sorghum.  I woke up twice screaming in pain after drinking these beers.  It felt like someone was stabbing me.  I am trying to find beers brewed with other grains, such as rice, millet or buckwheat that are OK for Celiac patients. 

The other problem is actually getting any beers that would be promising.  I live in Wisconsin so there are some west coast brews that are not available here.  Any help will be greatly appreciated.  Thanks...…...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

There are some pretty good Certified gluten free beers out there.  My fav is Ground Breaker brewed in Oregon.  My local liquor store (CA) carries it.  

https://www.groundbreakerbrewing.com/faq-gluten-free-beer

But.....you are just newly diagnosed.  Anything you eat can wreak havoc on your sore gut (intestines, liver, etc.). Can you wait a few more weeks before drinking?  If not, try some wine until you can find a good local gluten-free beer that has never been in contact with rye, barley or wheat.  

Little Joe Newbie

Being sensitive to sorghum rules out Redbridge.

I have tried and enjoy Omission beers.  I'm a cheap light beer in a can kind of guy, and my go to is Omission Ultimate Light Golden Ale I think it's called.  Omission does use regular beer ingredients and then does something to remove gluten during the brewing process.  Please read about them at their site: https://www.drinkomission.com/

While in Europe last year, I also enjoyed Peroni's gluten-free beer as well as Estrella Galacia's gluten-free beer.  Not sure if either are available in the US, however.

Back to Omission -- I think the jury is still out on whether or not Omission beer is safe for celiac patients to drink.  My experience is only anecdotal, to be sure.  I'm one of the people who have celiac disease but suffer no discomfort nor other noticeable symptoms if I ingest gluten.  I rely on blood work to determine how well I am adhering to a gluten-free diet -- and my blood work got better and better in the years following my diagnosis to the point where my antibody tests now come back negative, or very, very low.  While not definitive, my experience with Omission *seems* to be that it is safe for me.

Best to you as you navigate this new journey.  Learn everything you can, and keep notes if you need, you know "this good, that bad" kind of stuff.

GFinDC Veteran

Omission beer makes me sick.  But people have varying levels of sensitivity to gluten.  So it may be ok for you.

White Claw makes some flavored seltzer waters with alcohol that are gluten free.  Not like a beer but in a can at least.

Beverage Rising Star

I have no problems with Ghostfish gluten-free beer. I don't know if it contains sorghum, you can contact them and ask. Even my gluten eater friends were pleasantly surprised. They are certified gluten-free, dedicated gluten-free facility. They are always announcing distribution to more states. You can also mail order now. If you come to the Seattle area, they have the best gluten-free fish n chips.

https://ghostfishbrewing.com/

 

Beverage Rising Star

Just checked the fridge and found a can of Ghostfish Kick Step, one of my favs. No sorghum, it uses beet sugar.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,207
    • Most Online (within 30 mins)
      7,748

    Tina Marie Fornash
    Newest Member
    Tina Marie Fornash
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...