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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    There is a higher incidence of IgA deficiency in people with celiac disease. So that is another possible indicator you might have it. Going gluten-free is a good idea. It may help but it surely won't hurt you. in fact, if your health changes after going gluten-free that is a good indicator that your body has a problem with gluten. There are more...
  2. GFinDC
    People with celiac disease sometimes have DH (dermatitis herpetiformis). DH is a very itchy rash that is symetrical on the body. Perhaps he is in the early stages of developing DH.
  3. GFinDC
    The usual diagnostic process is the blood antibodies testing followed by an endoscopy. If the antibodies are positive they schedule the endoscopy to confirm gut damage. Celiac disease can cause malabsorption so getting your vitamins/mineral levels tested is helpful. It sounds like some of your doctors don't understand celiac disease.
  4. GFinDC
    Hi lostcat, The test shows you are deficient in IgA. Since your body doesn't make much IgA antibodies so all the IgA type tests are meaningless. For celiac blood testing the recommendation is 12 weeks of eating some amount of gluten daily. For the endoscopy 2 weeks of eating gluten before testing is enough. Some people don't show up on the...
  5. GFinDC
    Here is an older thread that might help.
  6. GFinDC
    Hi rt. The first 6 months of the gluten-free diet can be kind of rough. It takes time for the gut to heal and the body to absorb vitamins and minerals right again. Also your gut flora is changing as the villi heal and provide more living space for bacteria. Your villi may start making enzymes like lactase again too. So lots of changes going on. Eating...
  7. GFinDC
    Celiac disease can cause malabsorption so yes, it can cause joint pain. Vitamin D deficiency or calcium or boron can all cause bone joint problems.
  8. GFinDC
    I haven't had a problem with using our shared microwave. We do clean it out once in a while if the stalagmites of gluten get too long due to explosions. But everything is on a plate or in a bowl and that seems to work fine. Sometimes I'll cover food with a paper towel.
  9. GFinDC
    Hi Katherhn, When you say you were diagnosed, do you mean you had positive antibodies and a positive endoscopy? If the answer is yes, then you have celiac disease. The trigger that causes the immune system to start reacting to gluten (causing celiac disease) is unknown. Some ideas on the trigger are stress, like an illness, a virus, or any other...
  10. GFinDC
    Hi, You could check into casein sensitive enteropathy. That is a reaction to casein, protein in cow dairy. The article below talks about people with celiac disease having a reaction to cow dairy protein. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ People with celiac also can have problems digesting lactose, a cow milk sugar. That...
  11. GFinDC
    Hi LAGurl, As CL said, some people get migraines with celiac damage. Another possible cause of your head symptoms is nerve damage. In some people celiac can attack the nerves including the nerves in the brain. When that happens and it affects the ability to walk they call it gluten ataxia. Some things I find helpful are peppermint tea, Pepto...
  12. GFinDC
    Hi Jan, It only takes one positive antibody to cause celiac damage. So having a negative on other types of antibodies doesn't mean anything. So, if your endoscopy shows celiac type damage then you have celiac disease. You may have celiac even if the endoscopy doesn't show it as the damage may not be advanced enough to detect right now.
  13. GFinDC
    Hi wanita, Yes, your doctor maybe right. You have a positive result on the immune antibodies IgG test. The next step in diagnosis is to do an endoscopy and take 4 to 6 biopsy samples of the small intestine lining. You need to keep eating gluten until that test is done. Often it takes a few months to get an appointment for the endoscopy. You don...
  14. GFinDC
    Hi, Yes, her leg pain can be related to celiac. Celiac can cause malabsorption of important nutrients like calcium, vitamin D, boron, copper, manganese, B vitamins etc. So important elements she needs for proper bone growth can be missing. One of the classic signs of celiac in children is stunted growth and deformed, weak bones. Plus missing or weak...
  15. GFinDC
    You are right, healing can take quite a while. Part of the slowness can be caused by lack of important nutrients our bodies need to heal and function. And also the immune system is very sensitive and can react to tiny amounts of gluten cross contamination. The immune reactions don't stop right away but can continue for weeks or months. Something you...
  16. GFinDC
    Ennis has it right, bleeding is not a usual thing in celiac disease. Also right about the testing. If you go gluten-free before testing the tests are not accurate. The blood tests are easy to get but ask for the full celiac antibodies panel, not just the ttg screening test. You do need to keep eating at least a small amount of gluten until all testing...
  17. GFinDC
    Hi Laura, Milk of Magnesia can help get things moving sometimes. CVS also sell liquid magnesium drinks in small bottles. Those are probably the nuclear option though.
  18. GFinDC
    Hi, Yes, some of us react to oats that same as wheat, rye and barley. So it's good idea to eliminate them for a few months and see if that helps. I think the number is something like 9 or 10% react to oats.
  19. GFinDC
    Hi Peter, Welcome to the forum! Malabsorption is a classic sign of celiac disease. The damage done to the small intestine can make it hard to absorb nutrients. So we often are low on vitamins and minerals when diagnosed. This vitamin/mineral deficit can cause many problems in our bodies. Broken bones are one of the problems, fatigue, GI upset...
  20. GFinDC
    You can try signing hymns. Anxiety can be related to lack of B vitamins. So you could try taking some B complex along with vitamin D. Time on the gluten-free diet should help too. As your gut heals it will be able to absorb nutrients better. And that helps you heal faster and feel better. It's helpful to avoid processed foods for a few months...
  21. GFinDC
    Are you gluten-free?
  22. GFinDC
    Hi Deniseb, Yes, it is possible to have both conditions. Some of the forum members have 2, 3 or more AI conditions. Or it could be you have just celiac disease and it is causing all your symptoms. Please don't stop eating gluten yet though. All the tests for celiac disease require us to be on a gluten diet before hand or they won't be accurate...
  23. GFinDC
    Hmm, I have gall stones myself CL but no symptoms from them so far. I am thinking Charles should get to a doctor pretty quick tho as an infection like you had could be dangerous. And it could be something else too. Charles, please do get somewhere for a check soon as these things are not always so fun when we wait too long. Several forum members have...
  24. GFinDC
    Hi Charles, Nausea can be a symptom of gallbladder issues also. Maybe you can get a different GI to check your gallbladder? Gallbladder problems can occur with celiac disease. https://www.healthline.com/health/gallbladder-problems-symptoms
  25. GFinDC
    Hi, Three months is not very long to recover from celiac damage. It can easily take 6 months just to learn the gluten-free diet and things to avoid. Our immune systems can take weeks to months to settle down after a glutening. Her intestine won't heal completely until the immune attack subsides and stops. Fatigue and GI discomfort/symptoms are...
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