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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi, DH reacts to gluten in the diet. Members report it is sensitive to very small amounts of gluten. So you might need to review your foods, vitamins, and maybe teas or other drinks to see if they could possibly have cross-contamination issues. Also, some members report doing their DH subsiding faster if they avoid iodine.
  2. GFinDC
    Hi Amanda, Hopefully you are on Facebook. There is a gluten-free group on Facebook for the Columbus area. I suggest joining that FB group and asking them for a doctor recommendation. https://www.facebook.com/groups/320392650815/ The Gluten-Free Gang of Central Ohio
  3. GFinDC
    Hi, It sounds like you were low on B-12. B-12 is a somewhat common issue for untreated (not on the gluten-free diet) celiacs. And for vegetarians too. So double whammy there. It is a good idea to ask your doctor to test your vitamin and mineral levels to see if they are ok. Get a copy of the results so you can see for yourself if anything is on...
  4. GFinDC
    Hi, You are correct, the endoscopy should be done soon after the positive blood tests. But it seldom is. I don't think there is any point in doing the endoscopy after being gluten-free for 5 months. Instead, you could start eating gluten again and get an endoscopy after 2 weeks. That's if you really need a firm diagnosis. Otherwise just stay gluten...
  5. GFinDC
    Hi, Recovery from celiac damage can take months to years. The recovery time is variable depending on many factors. A good way to start the gluten-free diet is to stick with whole foods you cook at home yourself. Don't eat out and avoid processed foods, including gluten-free processed foods. Meats, veggies, nuts, fruits and eggs are good choices...
  6. GFinDC
    It's possible to develop reactions to many foods. Probably because our guts can be irritated for a long time and can confuse foods we eat often with the irritation. So you might have become sensitive to mustard or vinegar. Or both for that matter. Sometimes these additional food intolerances are temporary and sometimes they are permanent. You can...
  7. GFinDC
    False positives on the blood tests are rare. False negatives are somewhat more common. The gut damage didn't happen for no reason, right? It was caused by something. That something is most likely celiac disease. Especially if you haven't had any continued problems or deterioration since going gluten-free. Something you may not be aware of, is that...
  8. GFinDC
    Welcome to the forum! First off, don't be too worried about having celiac disease. It's a condition that we can treat/manage ourselves usually. The treatment is the gluten-free diet. The gluten-free diet can be quite an adjustment and learning process. But staying on the gluten-free diet will reduce the immune response and allow your body to heal...
  9. GFinDC
    Hi C Anderson, Don't worry, the gluten-free diet seems hard at first but over time it becomes 2nd nature. We all heal at different rates depending on many factors. Being completely better may take quite a while yes, but that doesn't mean you won't be feeling better than you are now. Here are some steps that may help you get to feeling better soon...
  10. GFinDC
    Hi Amanda, I suggest you wait to go gluten-free until your final test results are back. It's unusual but there have been cases where test results were lost somehow and the process had to be done over. That would mean going back on gluten and having a new endoscopy. Which could be a very unpleasant experience due to renewed celiac symptoms. What you...
  11. GFinDC
    Fistula's are more associated with Crohn's than celiac. So that would make me suspect you may have Crohn's as well as celiac. My brother had that combo. Fistula's can be deadly so they are something that shouldn't be ignored. I hope your doctors come up with an answer soon.
  12. GFinDC
    Looks like you have an immune response to gluten. The endoscopy is to prove that immune response is actually causing damage to the small intestine. If it is, then you have celiac disease. If the endoscopy doesn't show damage. you could still have celiac disease but the immune response could be attacking a different organ/s. Some people get damage...
  13. GFinDC
    Hi, Just remember that the celiac testing depends on a person being on a gluten diet. So don't take her off gluten before all the testing is done. Usually there are blood tests first and then an endoscopy. It seems like she only had the screening blood test. They should give her the complete celiac disease test panel which includes IgG and EMA tests...
  14. GFinDC
    Hi Cez, First off, is he eating gluten-free? They put gluten in a lot of foods besides bread and cookies. So it is easy to make mistakes and eat something that causes a reaction. I don't know about the product you asked on. But you can make your own skin lotion or balm. That way you know what it is in it. A simple recipe is beeswax and olive...
  15. GFinDC
    Hi Phosis, Celiac disease attacks the small intestine. Crohn's can attack the entire digestive tract, but it seems the large intestine is often a target. Two months is not enough time to heal from celiac disease damage. It can take a year or longer in some cases. The cleaner your diet is of gluten the sooner you will heal. Even tiny bits of...
  16. GFinDC
    You could just have a food intolerance to bananas. Or you could have a latex allergy. Or it could be a sugar reaction as per KarenG.
  17. GFinDC
    Not a good idea. It would be safer and healthier food for you if brought your lunch to work. It is much better to make your own food when starting the gluten-free diet so you know what is in it. Trusting other people to make food safe for celiacs is risky since many don't understand the issue of cross contamination. Try eating whole foods like meats...
  18. GFinDC
    I take CVS Me and My Gluten Assist when eating out. And sometimes some Biocor DPP-IV. I think it makes sense to be a little proactive about possible cross-contamination. Even if the place is usually safe. I think both these enzymes can help break down gluten in small amounts. That doesn't mean they will prevent an AI reaction though. But maybe it wouldn...
  19. GFinDC
    It's a good idea to check the internet for gluten-free options before traveling. There may be restaurants in the areas you go to. Also bringing fruit and nuts or boiled eggs is easy to do. Many restaurants at least have a salad bar you can eat at.
  20. GFinDC
    Hi MisterSeth, I've had the green stool before. I had it for a while after an illness years ago. I don't think it is automatically a major problem. https://www.medicalnewstoday.com/articles/311377.php#factors-of-poop-color You are pretty new to the gluten-free diet. So things should be changing a lot in your digestive system. Your gall...
  21. GFinDC
    Hi, That sounds awful! I am sorry he has such strong reactions. Celiac disease can cause a lot of pain, but bleeding from the bowels is not typical. I do get bleeding myself from eating dairy, but that is not a celiac reaction but food intolerance developed as a result of celiac. It could be he has something like ulcerative colitits, or Crohns...
  22. GFinDC
    Hi Heinrish, If you plan to get tested for celiac disease you need to keep eating gluten until all the testing is done. They do a blood antibodies test first and then later a endoscopy. It's important to keep eating gluten each day or the tests won't be accurate. Your symptoms could be caused by celiac disease IMHO. One thing that may help right...
  23. GFinDC
    Hi Erin, Yes, The initial recovery phase can be rather unpleasant. Imagine you beat a horse until it's unconscious. And then it starts to recover and wake up. It will thrash around some and then struggle to get up and take off in a hurry. You gut is now in the recovery/healing process. New villi are beginning to grow to replace the damaged ones...
  24. GFinDC
    Hi Keight, Fatigue is fairly common in newly diagnosed celiacs IMHO. It can take some time to get the gluten-free diet down right. Mistakes are common enough and even one can set healing back for months. People are often lacking some vitamins and minerals also, and that slows healing as well. Plus not absorbing carbs and fats well reduces the...
  25. GFinDC
    Here's a thread form 2018 that talks about lichen planus.
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