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mushroom

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Latest Celiac Disease News & Research:

Everything posted by mushroom

  1. mushroom
    Yes, soy is a problem also for many celiacs, me included. If you are looking for a soy sauce substitute, Whole Foods carries a product called Cocnut Secrets/Cocnut Aminos, which is very similar in flavor.
  2. mushroom
    Nurses are not necessarily the most reliable of reporters on celiac disease. There is generally a pretty good indication of the degree of damage in the pathology report. Congratulations on getting a full diagnosis! And yes, no medications or surgery, just a dietary adjustment Not that this is a piece of cake mind you, but it does help if you know for...
  3. mushroom
    I understand the results usually take from one to two weeks depending on the lab and how far they have to be sent. Waiting for results can seem like an eternity, but as squirming says, you can use this time to clean out your pantry, use up the expensive stuff that you don't want to throw out or give away, and donate unopened gluten stuff to a food bank....
  4. mushroom
    That term "non-dairy" creamer drives me insane too. I always used to think it was just that!! What exactly is the point of calling it non-dairy when there is dairy ?? To confuse the heck out of peeps??? To make them sick? I discovered the sheep's cheeses in Italy and fell in love with them totally The fresh pecorino especially, yum yum. Also...
  5. mushroom
    There are two components of dairy products: lactose, which is the sugar part of milk, and casein, which is the protein fraction. These are each digested by different enzymes. Lactose is digested by lactase which is produced at the tips of the villi in the small intestine -- the part that is damaged by gluten and has to heal before lactase can be produced...
  6. mushroom
    I agree with the pp's. The biopsy in your son's case is not necessary, and will only cause him needless suffering. I would eliminate the lactose for your son altogether until he is at least six months gluten free and that may well take care of his stomach cramping. Almond milk, while more expensive, is delicious, and you can give him sherbet instead of...
  7. mushroom
    Oh, I AM sorry that you are going through such a crisis period and having to deal with it alone. It must be very hard to not have anyone to support you through this adjustment period. Even though it's been 18 months, it seems like the realization has just hit with a whammy We have all been there in one way or another. Welcome to our gluten free community...
  8. mushroom
    Generally, when we talk about an endoscopy on this forum we are referring to an upper endoscopy, or apparently gastroscopy as it seems to be called in Norway. The lower endoscopy is usually referred to as a colonoscopy and cannot diagnose celiac - only the gastroscopy can do that.
  9. mushroom
    Scotty, you are talking to a girl who used to eat pizza as a comfort food You are talking to a gal who went to the doc on Tuesday after symptoms had persisted for two months, only to have them mysteriously "resolve" overnight on Monday Well, not really, but so it appeared. You cannot negliect a whole year of symptomatology because of one or two days...
  10. mushroom
    To cut to the chase, so to speak; get down to the nitty gritty; wrap it up Or, more specifically, the kick-in-the-butt that forces you to do something.
  11. mushroom
    Tlhere are very few false positives on the blood testing. Her feeling better back on gluten could be entirely due to her having been going through a withdrawal from gluten, which acts like an opioid on the body; this withdrawal generally lasts for 2-3 weeks. Some people seem to react immediately to gluten reintroduction, for others it takes the antibodies...
  12. mushroom
    Hi Scotty: I was just thinking to myself, Wait a minute, this Scotty has been around a long time, and he still hasn't been tested??? I went back to the beginning and here was your first post on the forum, a year ago: "Ok guys. I am a 26 year old male. I was scoped about 7 years ago both on the top and the bottom, due to chest and upper abdominal...
  13. mushroom
    I have been meaning to do what the cooks do on the cooking shows, like premeasure the ingredients and line them up. . You have just given me an extra incentive (besides having left things out myself a few times )
  14. mushroom
    See Open Original Shared Link
  15. mushroom
    Hi Rushmore, and welcome to the board. Like squirningitch, I am rather impressed that a doctor at a walk-in clinic would put two and two together and come up with a possible celiac diagnosis Many of us have spent liftetimes trying to get doctors to make that connection. Constipation, itchy rash, stomach pains, vomit or feeling the urge to vomit...
  16. mushroom
    It is a rare individual who tests positive on every test. That I believe is why such an array of tests has beeen developed. Celiac is a complex disease which manifests itself in different parts of the body (while the digestive tract is the most common, it also affects the brain and neurological systems, the skin, the joints and connective tissue.) Doctos...
  17. mushroom
    In some individuals DH is also particularly sensitive to iodine, so if you are eating foods high in iodine it can flare (eggs, asparagus,iodised salt, kelp, and I can't remember the others because I don't have DH It could be iodine or it could be cc from gluten - have you changed or added any products lately?
  18. mushroom
    Your tTG is strongly positive/suggestive for celiac. However, with tTG most doctors like to confirm with biopsy because an elevated tTG can have other reasons. The biopsy procedure is a very minor one and not cause for great concern. It is done under sedation and you will not remember it, and has minimal side effects, usually a mild sore throat the next...
  19. mushroom
    The increase in IEL's is one of the precursors to villous atrophy. Inflammation is another. There are varying stages in the progression of intestinal damage. The old standard required for total or subtotal villous atrophy, the equivalent of III on the Marsh scale of I - IV before they would diagnose. Doctors seem a little more enlightened these days...
  20. mushroom
    Just a word of caution, Sara. You are unlikely to get accurate testing if you are not eating a full gluten diet. The recommendation is the equivallent of 3-4 slices of bread for two to three months prior to testing. With no (or little) gluten intake your body stops producing the entitbodies to fight it, and antibodies is what the testing measures. Similarly...
  21. mushroom
    Welcome to the board, and I'm glad you posted when you did. DO NOT stop eating gluten before your testing! You need to be eating a full gluten diet until all testing is finished or you will affect the results and possibly end up with a false negative test. The blood test is looking for antibodies in the blood to gluten, and if there is no gluten...
  22. mushroom
    I had enough stomaches after oatmeal breakfasts as a child that I am in no rush to find out.
  23. mushroom
    I am sorry that this happened to you and ruined your birthday. One thing you can perhaps learn from it is that we have to take responsibility for our own food and our ability to be able to eat wherever we go. No one else understands what our needs are and, unless things have been specifically arranged ahead of time, no one else is likely to give it a second...
  24. mushroom
    I have seen it recommended that you not stay gluten free longer than a week if you are planning on being tested for celiac; otherwise, you are looking at 2-3 months to build your antibody levels back up for testing.
  25. mushroom
    You have not mentioned yet if your doctor has run a celiac panel for you. This is the first step in determining whether it is celiac disease. The celiac panel consists of the following tests: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and...
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