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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Burning nerve pain can be a sign of nutrient deficiencies which are extremely common in those with celiac disease. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including...
  2. Scott Adams
    In this case there are other tests that can be done to determine issues you may have with iron absorption, and there are other prescription meds to help if you have issues processing iron. It's definitely something to talk to you doctor about.
  3. Scott Adams
    The total IgA test should always be included in a celiac disease blood panel, otherwise there may be false negative results for the tests that look at anti gliadin IgA or tTG-IgA levels. The article covers this in more detail, but yes, this should have been done. Unfortunately to be retested you would need to go through a gluten challenge--but not for the...
  4. Scott Adams
    In general testing for celiac disease should include a blood test called a celiac disease blood panel. Here is more info about that. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels...
  5. Scott Adams
    Neither product you mentioned is typically processed in a way that would lead to cross-contamination with wheat, but, of course, there are no guarantees that this could not happen. Is there any chance that you might have eaten anything else that could be an issue, or that you could have an additional food intolerance to something else you ate?
  6. Scott Adams
    I think you're misinterpreting genetic results here: " I only had half DQ2, so I assumed I didn’t have to worry about having celiac bc it didn’t seem very likely." The fact that you have a marker includes you into a larger group of people that may develop celiac disease, even if that risk is small, you are still in that pool. If you then have celiac dis...
  7. Scott Adams
    To me it seems that you have your answer anyway--gluten is your enemy right? Can I ask why getting a diagnosis is so important at this point? I ask, because the only real way to do this is via a gluten challenge: and this recent study recommends 4-6 slices of wheat bread per day:
  8. Scott Adams
    It might be a good time to start over, and totally reset. This article has some detailed information on how to be 100% gluten-free, so it may be helpful: This article, and the comments below it, may be helpful:
  9. Scott Adams
    More information about "Celiac Disease Misconceptions: Debunking Common Myths and Dispelling Misinformation"
    Celiac.com 09/12/2023 - In a world filled with information at our fingertips, misconceptions about health conditions like celiac disease can persist and spread. This article aims to shed light on the prevalent myths and misunderstandings...
  10. Scott Adams
    Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:
  11. Scott Adams
    As long as the supplement is gluten-free it should work. Be sure to get a blood test and have a doctor recommendation to take it, as iron can build up in some people's systems...I cannot take iron.
  12. Scott Adams
    Even if anesthesia might contribute to a temporary vitamin deficiency, obviously you should not forgo it during a dental procedure.
  13. Scott Adams
    If you are gluten-free everything that comes out in your sneeze should be too! If the person next to you were eating gluten an sneezed all over then you may have a potential issue, but the overall risk would likely still be pretty small, but certainly not zero.
  14. Scott Adams
    This article, and the comments below it, may be helpful:
  15. Scott Adams
    Do you have access to your original blood test results? If so, feel free to share them here, along with their reference ranges, as it would be helpful. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done...
  16. Scott Adams
    It also looks like a more healthy version of gluten-free pizza! Tons of fiber...
  17. Scott Adams
    In general the best way to test for celiac disease would be a celiac disease blood panel. Can you tell us more about who did this test? Dr. Kenneth Fine from Enterolab is well known for using stool testing, but I believe he also uses genetic and blood tests as well.
  18. Scott Adams
    Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score. Many biopsy results...
  19. Scott Adams
    This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
  20. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful:
  21. Scott Adams
    I would try a gluten-free diet for a few months. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  22. Scott Adams
    Here's a breakdown of the terms in the biopsy report: Focal Surface Intraepithelial Lymphocytosis: This suggests an increased number of lymphocytes (a type of white blood cell) within the surface layer of the intestinal lining (epithelium) in certain areas of the biopsy sample. In celiac disease, intraepithelial lymphocytosis is often observed. Lamina...
  23. Scott Adams
    This article might help:
  24. Scott Adams
    I know the feeling...I had to commute to work and ride a subway in San Francisco and had various emergency bathrooms mapped out in my head for each stop. There are times when the cars broke down underground and caused up to an hour delay, which was quite horrifying when it happened. Luckily I managed to get through this time without anything terrible happening...
  25. Scott Adams
    This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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