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Canadian Karen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Canadian Karen

  1. Canadian Karen
    Most definitely! Without a doubt! Karen
  2. Canadian Karen
    Oh, boy, I have SO BEEN THERE, says the mother of 4 yr old twin boys!!! Hugs Karen
  3. Canadian Karen
    Wow! That sounds promising!!! I really, really hope so. It would be just like in Italy..... So many missed diagnoses in children would then be caught before any major damage is done.... Karen
  4. Canadian Karen
    Just checked delphi. It is on the list as okay..... Noxzema (000.000.0000) (00/00/00) Facial cleansers (all versions) Karen
  5. Canadian Karen
    Dianna, That is tragic. If only celiac disease was more well known back then...... Hugs. Karen
  6. Canadian Karen
    Positive bloodwork followed by positive biopsy Karen
  7. Canadian Karen
    Cheers!! Glad you found some, now you can enjoy a cool brewsky once in awhile again! Karen
  8. Canadian Karen
    Hi BB22, Boy, isn't it funny as soon as I read "they" in your post, I know immediately you are talking about clueless doctors!!!! I am glad you are on the right path now and things will only get better from here. The delphi list is, in my opinion, an absolute must have. Go into www.delphiforums.com Click "Health & Wellness" on the left hand...
  9. Canadian Karen
    He has done the colonoscopy that discovered the collagenous colitis, but he has not done another biopsy. He is going by the results of previous biopies from the other GI. He said that the results of the biopsies from the colonoscopy show that the collagenous colitis is not just spotty, it's basically from top to bottom. When he saw I was getting visibly...
  10. Canadian Karen
    Oh okay, so just to be clear, it is not blood that has been donated, right? Can you tell I don't feel comfortable with that? I want my blood, what little there is, to stay squeeky clean! Talked to Terry about this last night and he gave me a huge hug and said, "Hey, that's great! Now I going to have a metal-head for a wife!" As you can see, we...
  11. Canadian Karen
    Is an infusion the same as a transfusion? Karen
  12. Canadian Karen
    He wanted to try this medication to see if the side effect of this medication would kick in for me, but alas, it has not.... He told me when prescribing this to make sure I don't get up too quickly or else I will be hitting the floor! No kidding! I think he was trying this hoping for some success before we move onto other, more complicated, treatment...
  13. Canadian Karen
    So many painful memories have rushed back to me when reading this. I can remember curled up in a ball, death grip on the headboard, writhing in pain, and absolutely convinced I wouldn't live to see another day and regretting that I wouldn't be there to see my kids grow up...... The road back to health is a very long one, we must be patient, as long as...
  14. Canadian Karen
    Well I guess that would explain why she is not touching this one with a ten foot pole and would rather he take over in regards to getting my iron up. I guess considering the fact that his "official" diagnosis of me (which I am not in agreement with) is "refractory celiac sprue" with "extensive collagenous colitis", she wants to leave it up to someone much...
  15. Canadian Karen
    That's wonderful news!!! It reaffirms my faith in the human race! There truly are gentle, kind, wonderful people in the world who are always willing to give a person a helping hand when needed. I can even sense in your post a feeling of strength and hope that wasn't there before....... You just made my day, (and believe me, that's no easy feat considering...
  16. Canadian Karen
    Well said, Broncobux! Karen
  17. Canadian Karen
    Hi! Just checked the delphi list for you. Dramamine (000.000.0000) (vp=06/21/02) Original; Less Drowsy Both of those are okay for you..... Hugs. Karen
  18. Canadian Karen
    Yikes!!!! Hope you didn't go back to him! Karen
  19. Canadian Karen
    Thanks Guys! The liquid iron was the first we tried. I am eating liver till it is coming out of my batuzzis!!! She also wrote on the note to the specialist: "despite p.o. elemental iron, is ti time for systemic iron?" I also have been chronically anemic since I was a child. I can remember making weekly visits to a doctor when I was little and...
  20. Canadian Karen
    We have tried several different methods for me to get iron into my system. Most recently, she has had me taking my usual Centrum multi-vitamin and in addition to that, I was taking three 50 mg Elemental Potency Iron from Jamieson. We have been doing that for about three months now, but the numbers are not climbing..... Hugs. Karen
  21. Canadian Karen
    Last week, my family doctor's secretary called to say that the dr. wanted me to come back to discuss my test results. She was testing my iron, which has been steadily declining in numbers for the past year. The secretary made it sound like it was urgent I come in, so I was thinking okay, maybe my iron took a real nose-dive. Well, went to dr. today and...
  22. Canadian Karen
    Just fire away! We have all been where you are at right now, at the beginning of this long and winding gluten-free road and it does seem so overwhelming at first. Just remember that no question is too stupid to ask, and not too much that we haven't discussed here already, so don't be shy!! Hugs. Karen
  23. Canadian Karen
    Armetta, I think you are a sweetheart!!! MSFL, see if your local library has a copy of it. Some do, some don't. Even it they don't have that one, perhaps they have other books on celiac disease that might help you (and cheap too!!! Can't get any cheaper than free!! Well, library use is free here in Canada, not sure about the U.S.) Karen
  24. Canadian Karen
    I think, and although this is not backed up by scientific evidence, but I don't think anyone can put a "number" to the amount of gluten needed for testing. I base my belief on the fact that everybody's body reacts differently, some severely, some mildly, some not at all. You might have some who would react to three slices, but then again, someone who is...
  25. Canadian Karen
    Hi Michelle, Sorry to hear that you still haven't gotten your health back (I know how you feel!!!!) When you said that you were only eating gluten again for one day and the test still came up positive, the first thing that I thought of was that you were somehow still getting glutened all along by something hidden and that's why you still tested positive...
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