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SilverSlipper

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Everything posted by SilverSlipper

  1. SilverSlipper
    No, actually it is true. I suppose it shouldn't matter whether or not you believe me, but my original question is about elimination diets. She has a gluten reaction, maybe once or twice a year, and that's typically not my fault. That's really good for the past six years so obviously I've been doing something right with her diet. For her to be sick daily for...
  2. SilverSlipper
    We are all actually really good at this diet. Lucky Charms is something that years ago I was told was okay. (And it's not something any of the kids get on a regular basis, we don't typically use cereal). When she was learning to read, gluten was one of the first words she learned. We told her if it said gluten free she could eat without checking with us...
  3. SilverSlipper
    argh! Six years on the diet and I'm STILL trying to figure things out. After some googling, yeah, the Lucky Charms aren't okay. I guess I became too relaxed because she had no problems with oats (we purchase the ones that are certified gluten free). We don't eat Lucky Charms often (actually I bought them for me, lol) so that's not what's caused her problems...
  4. SilverSlipper
    The Lucky Charms we only started eating today. But...we've always eaten them. She doesn't have problems with oats. Was there another ingredient that makes it not gluten free? (Regardless, I'm taking her off of them until I know for sure). Yes, the problems have only been for two weeks but they're incapacitating. She cries, moans in pain and usually can...
  5. SilverSlipper
    That was my first thought as well. She hasn't had any dairy today but is still sick with D and cramps. Today she had a banana and toast with water for breakfast. She had boarshead lunchmeat and grapes for lunch. She had Lucky Charms (no milk) for a snack. I'm not sure if it would take a few days of no dairy to stop her symptoms? We've stopped the dairy...
  6. SilverSlipper
    My daughter is 12 years old and has been gluten free since she was 6. She strictly follows her diet and with very few exceptions our household is gluten free. She's considered very sensitive but not super sensitive. The only thing she's ever had a problem with, other than gluten, has been pork products that are Publix brand (I have no clue why, but bacon...
  7. SilverSlipper
    Thanks for all the replies. We're home! We came home yesterday and I immediately went to the store. It was one of those trips where I had no list or menu in mind. I had little time to plan and just bought meat, veggies, fruit, milk (whole and full cream) and cheese. (We live 30 minutes from a decent store). I am actually grateful that the kitchen staff...
  8. SilverSlipper
    Yes she can eat those. She has had applesauce. It would be good to have actual food though. They want her to have a bm before leaving. I plan to talk to Dr today and tell him she wont because she wont eat until we are home. She wants food but I cant get what she wants here.
  9. SilverSlipper
    A friend went to a health food store and an employee helped her. I have doughnuts and chix nuggets meals (gluten-free). The nurses have been upset and encouraged me to write wheen we get home. We cant leave early. They wanted to send us home today but her recovery is slower than expected. She cant walk yet and hasn't felt like eating. I hate that you...
  10. SilverSlipper
    (Typing from Ipad plz excuse errors.) Fri my dd was not feeling well. Ended up in er with appendicitis. Appendix removed sat morning. Afterwards the nurse said the cafeteria would not guarantee a gluten-free meal. (We are at children's hospital) . Dr and nurse spoke with them and they said they would do it but no guarantee. Dd wont eat but I sent a friend...
  11. SilverSlipper
    (Sorry typing on my laptop which means I'm prone to mistakes) Karen - her carrying medication (without a label) was what bothered me. I wouldn't want anyone to see it and think she is carrying something illegal. The medication is actually fairly harmless (IMO). My other daughter takes one daily in the morning to keep tummy aches from developing (suspected...
  12. SilverSlipper
    I was told IBS basically came with a Celiac diagnosis although the comment may have been directed towards my child only. She takes it due to severe cramping that is literally crippling during a celiac reaction.
  13. SilverSlipper
    My soon-to-be 11 yr old daughter has Celiac. She's great with her diet, very strict on what she eats and watches other people like a hawk if they are preparing food she will eat. Occasionally (a few times a year) she accidentally ingests gluten. The reactions are ugly - vomiting, diarrhea and cramping so bad she literally can't straighten up. She...
  14. SilverSlipper
    I let my 10 yr old cook although it's a progression of things (for example, she can use the oven independently, but not the stove). She first started by doing box items, cake/brownie mixes, no bake cookies, pudding, etc. We don't really use cookbooks a lot (although I love to look through them for ideas). We find our favorites and she uses our recipes. ...
  15. SilverSlipper
    My daughter has a diagnosis of failure to thrive due to celiac disease. (She is 10 yrs old by the way). She is considered very small for her age though she continues to grow (height and weight) in small increments. She has been tested in every way possible and her doctors have decided that she's simply meant to be small. Though she's small, she's very bright...
  16. SilverSlipper
    My step-mother has celiac disease (DH). She tells others that she can have some gluten, but if she eats it too much, her skin really bothers her. I know another Mom who has celiac disease who states that she can have small amounts of it occasionally (for example - rice krispy treats). In my humble opinion, I think that they have over-simplified the situation...
  17. SilverSlipper
    Our doctor is Dr. Cavender in Alabama. He has a niece with Celiac Disease so he tends to "get it". Plus, he's good at knowing what stores carry what products and even how to adjust some recipes to make them gluten free. Our middle daughter with celiac disease was so textbook perfect that it makes getting a diagnosis of some sort for my youngest, difficult...
  18. SilverSlipper
    My six year old had her biopsy today. It has been a rough two weeks. We had taken her off of all diets and meds (although they later re-added the meds for stomach cramps). She has spent the last two weeks sick, alternating between vomiting and diarrhea with stomach cramps so bad, she crawled along the floor rather than walking at times. The nausea and exhaustion...
  19. SilverSlipper
    Thanks all We're back and everything went fine. She had a few extra stitches, a bit more than we thought, but she hasn't been sick and we were able to start pain medication before the numbness wore off. They said that by Friday she should start feeling better.
  20. SilverSlipper
    We've known since she was 2 yrs old that she had significant crowding issues. We started seeing an orthodontist last year at our dentist's urging and had two baby teeth removed to help some teeth straighten out. I think the biggest problem we are having is that two of the teeth are jammed together (almost head to head) which has caused some bulging issues...
  21. SilverSlipper
    My Celiac daughter (who is 10 yrs old) is due to have eight teeth removed on Wednesday. We had tentatively schedled surgery for early December, but this past week-end she started having some pressure feeling in her jaw. We saw her oral surgeon today and he's upped the surgery to take place Wednesday. She is having two pulled on her upper left and right side...
  22. SilverSlipper
    Thanks for all the suggestions. I'm making a list to discuss with our gastro before our appointment. I truly apologize for not replying to this thread earlier, but I've had another daughter crop up with some medical issues that has me a bit side-tracked. My pediatrician thought the Eosinophilic Esophagitus was possible and is hopeful that the biopsy will...
  23. SilverSlipper
    Thanks for the suggestions. It's possible that she is receiving cross contamination based on your list. Our doctor has removed all diets and medication and she is going in for a scope in two weeks. She was so exhausted after school that she fell asleep right afterwards. I'm not really sure how she will make it the next two weeks.
  24. SilverSlipper
    Some of our family members get it and some do not. Ironically, my dad and step-mom are the worst and she is diagnosed with celiac disease (she has DH, but no stomach problems). We decided last year to avoid family holidays during meals. We go visit at other times. This year I'm preparing Thanksgiving dinner and inviting everyone over here. It will be quite...
  25. SilverSlipper
    I'm posting about my 6 yr old who is not diagnosed with celiac disease (my 10 year old does have celiac disease). My 6 yr old is having a ton of tummy problems that I've been posting about here. Recently, our doctor put her on a gluten-free diet to see if it would stop any of her problems. She has daily stomach aches that we treat with Bentyl (which seems...
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