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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    I agree. If you feel fine with milk and gluten seems your only problem. Stick with it!
  2. ShayFL
    Mr. Moore Lactose is only one problem with dairy. People who are lactose intolerant lack an enzyme to break down the sugar lactose. And there WILL be GI issues with lactose intolerance. This poster did not have GI issues with dairy, so was more likely responding to Casein which is a milk protein that MANY people cannot tolerate. Much like gluten Casein...
  3. ShayFL

    ARCHIVED Milk.

    ShayFL replied to Bell's topic in Food Intolerance & Leaky Gut

    SCD only allows 24 hour fermented homemade yogurt. And can sub goat milk or coconut milk to make the yogurt if you dont tolerate Cow. A few cheeses to that have no lactose or casein.
  4. ShayFL

    ARCHIVED Iodine

    ShayFL replied to a topic in Related Issues & Disorders

    True you will not find TOTAL agreement on ANYTHING. So that is why I say "be careful". I get approx. 150 mcg of iodine in my multiple which is the daily allowance. I have had no problems with that. I would get the urine iodine test done over the skin patch because in my own little mind (nothing scientific to back this up) it just makes more sense...
  5. ShayFL
    I just swallowed a pill, so I do not know. But it is extremely bitter because I punctured one of the gel caps once and tasted it. VERY BITTER. Like most antimicrobials I would assume if you take it in the mouth and swallow it would kill any bad guys on the way down.
  6. ShayFL
    Please "fire" that idiot!! Pos Blood and Pos endoscopy. You have CELIAC disease and should go on a gluten-free diet immediately. And it is for life!! Save yourself other autoimmune diseases, lymphoma, cancers, etc. gluten-free so you can live a normal healthy life. And your daughter too. If she had Pos tests and with you being 100% Celiac, she...
  7. ShayFL
    I live in Tampa where Sami's is. The lady that leads the local Celiac group told us NOT to eat their bread. She got really sick from it. So I dont.
  8. ShayFL

    ARCHIVED Iodine

    ShayFL replied to a topic in Related Issues & Disorders

    Please be careful with iodine. The skin test is not accurate according to many experts. Here is just one site: Open Original Shared Link And Iodine can make ANY autoimmune disease worse especially Hashimotos: Open Original Shared Link Be careful!
  9. ShayFL
    EFT shouldnt conflict with your Christian beliefs. The technique and tapping arent evil or satanic. There are Christian acupuncturist and massage therapists who use reflexology!! No different. With that said, I bought a book on EFT and I tried it for a good week a few times a day and it did NOTHING for me. But that is just me. There are things that...
  10. ShayFL
    I have used the virgin coconut oil "coconut oil supreme" and cold pressed sesame so far.
  11. ShayFL

    ARCHIVED Milk.

    ShayFL replied to Bell's topic in Food Intolerance & Leaky Gut

    Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice ...
  12. ShayFL
    Kristina...Google SCD + quack. You will find sites that say the SCD diet is bunk and hokem. Also if you go to www.quackwatch.com you will learn that any and everything you have tried/will try that is "alternative" is quackery to the people that run that site. I do not worry about sites that dismiss ANY healing modality when you can find TONS of anecdotal...
  13. ShayFL
    I had this problem pre gluten-free and I was skinny too.....looking gaunt and skeletal....I hated it as I used to have curves. Since gluten-free I have gained a healthy 8 pounds. My eyelashes have grown back, my hair is thicker and my skin is a rosy pink instead of gray/yellow. I am absorbing now, but I also cut out ALL grains. That is what my body REALLY...
  14. ShayFL
    Praying now....so sorry for you and your friend. How awful.
  15. ShayFL
    First....you arent crazy. Many go through "detox" from gluten. I had issues for 6 weeks and then I started feeling great!! So hang in there. Be gentle with yourself while you are healing. Drink lots of water and get plenty of rest. Make sure you are 100% gluten-free (check meds, lipstick, cutting boards, toasters, etc.). Because often symptoms are...
  16. ShayFL
    I know it can be frustrating. I think your instincts are right on and the solid poop is a first sign. But just cutting the gluten isnt the answer for everyone. For many, dairy must go at least for a little while until the villi in his intestines are all healed (try removing the dairy for a few months and then challenging it to see if he reacts). If he...
  17. ShayFL
    I dont know what you can get there but here: sweet potatoes (not related to potatoes at all), winter squashes like acorn, spaghetti, butternut...yum!!, yucca, plantains, taro, malanga, etc. All carby.
  18. ShayFL
    The "small bowel" had nothing to do with Dx Celiac. It is the "upper" endoscopy that is important. Make sure you get COPIES of ALL of your labs/results. Post in here, so we can help you. Dx 2 - 3 patients a year does not make him an expert even though he might be a wonderful doctor. Doctors are human too and make mistakes. It is your health and you...
  19. ShayFL
    If I had stopped eating gluten at 23, I would not have developed Ataxia and vertigo at 26 or neuropathy and migraines at 35. I am 40 now and not yet a year gluten-free and my Ataxia is gone, migraines gone, neuropathy nearly gone and very mild vertigo. Imagine if I "cheated" now....what would happen to me over the long haul? Wheelchair? Dead......
  20. ShayFL
    I have been studying Ayurveda lately. It is one of the oldest healing modalities, so I figure it cannot hurt to learn about it and try some remedies. I am on the Triphala right now. It is a mild laxative, but it has not caused me ANY troubles. And my BM's are looking good......LOL An old Indian saying says that if you take Triphala for a year, you will...
  21. ShayFL
    Open Original Shared Link
  22. ShayFL
    You dont need expensive oil. Just cold pressed refined sesame or sunflower. Sunflower is the cheapest. Many use virgin coconut oil too. That is what I am using till my order of Sunflower comes in.
  23. ShayFL
    Since NONE of us in this forum are M.D. everything here is anecdotal including your experience sbj. There are a lot of us in here who got NEG results on Gluten Lite. It makes sense to make sure you are eating enough to cause damage (that is what the biopsy is looking for). Not everyone will get damage from a crumb of bread. Some might need to be...
  24. ShayFL
    I use the Renew Life and love them. They ARE expensive, but I feel they work.
  25. ShayFL
    You will need a good thyroid doc to agree to treat you. But I will place my bet on hypothyroid. T3 should be at the very upper end of the range to feel normal from EVERYONE I know who has worked on their thyroid (including me). On your scale, I would need to be around 415 FREE T-3 to get out of bed in the morning. Anything less makes me extremely fatigued...
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