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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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That was a genetic test which does not diagnose Celiac. It is possible your Doctor would dx with symptoms and genetic testing, but that would be unusual. Most doctors will run antibody blood tests: tTG-IgA or tissue transglutaminase-IgA AGA-IgG or Antigliadin IgG AGA-IgA or Antigliadin IGA Total IGA And then depending on the results of these, a...
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Im off the grains as well. I always had issues with oats. I would eat them and then go into a "coma". I used to eat them late at night when I couldnt sleep.....but would wake with a "hangover". I stopped the oats before gluten. Rice seems to be an issue for me as well...... I only have a few tlb of amaranth flour a week for one recipe. I do fine...
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Im not the "relaxing" type myself......but the Rebuilder does do it for me. I have had it for about 4 years. I pray it doenst break because they are not cheap.
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ARCHIVED Gluten-free And Symtoms Have Gotten Worse.
ShayFL replied to sarabmore's topic in Coping with Celiac Disease
Hi Sara, First I understand your frustration. Let's see if we can help you. You say you dont eat wheat, but do you make sure you are not getting BARLEY or RYE in anything?? Malt? Your vitamins have E in it from unknown source? Your hair care and skin creams, toothpaste, etc? They change formulations all of the time. It could be that you are... -
ARCHIVED Uncertain About Diagnosis
ShayFL replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I will be brief: You need to get yourself on a gluten free diet ASAP so you dont get as ill as your sister. YOU HAVE CELIAC DISEASE based on your tests and even some of the biopsy reports. A diagnosis depends on the physician interpreting results. Some doctors would not even have put you through a biopsy. You would have been dx based on blood and... -
ARCHIVED Cleansing After gluten-free
ShayFL replied to glutenfreegirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Adding some magnesium can help. Most people are short on it anyway. You want to take calcium with it, but take at different times so they dont compete for absorption. -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Neem is an herb from India. If you Google it, you can learn a lot about it. -
ARCHIVED Want Your Votes: Sanibel, Destin, Or Key West
ShayFL replied to Sweetfudge's topic in Traveling with Celiac Disease
Key West has a lot of restaurants with "real chefs" who can accomodate you, so that would be my vote. -
ARCHIVED And I Thought gluten-free/df Was Hard...just Added A Few More To My List
ShayFL replied to Sweetfudge's topic in Food Intolerance & Leaky Gut
Not sure what help you are asking for, but since you focused on "oils" let me try. I buy Chia oil for Omega 3's and Fish oil. Chia can be uses like flax in salad dressings and such. It has EVEN more Omega 3's than flax. You can also buy hazelnut oil, macadamia nut oil, grapeseed oil, walnut oil and sesame oil. All are delicious. I try... -
My adrenals used to be tired. I went the natural route. I know they healed because you cannot raise Armour if your adrenals are shot. You will get horrible symptoms. Some people with adrenal exhaustion cannot even take 15 mg of Armour without reacting (when they are clearly hypothyroid). I took 2000 mg Vit C a day plus the other supplements I mentioned...
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Before you go the steroid route, you might just try healing your adrenals. Reduce stress as much as possible Mediation Extra sleep and rest Vitamin C Panteothenic Acid B Vitamins Astragalus Things like this can be a big help.
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And tonsillitis might be connected as well. Appendix out at 13. Tonsils out at 22. Here is a discussion: Open Original Shared Link Studies: Open Original Shared Link
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ARCHIVED Bread From Bean Flour Alone
ShayFL replied to Gentleheart's topic in Gluten-Free Recipes & Cooking Tips
You can get hazelnut flour from digestivewellness.com -
I've had a "nervous stomach" since I was a kid. Was never dx'd tho. I did have an appendectomy when I was 13.
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ARCHIVED Overwhelmed And Scared
ShayFL replied to rainbowgoddess's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My migraines are gone gluten free....there is light at the end of the tunnel. You should get tested for Celiac. Find a doctor who will do a complete Celiac panel. -
MMMM....key lime pie. These look yummy: Open Original Shared Link You could crumble some Pamela's gluten-free almond cookies for a crust and top with this.
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ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Pele I am like you. I am on the diet, but I DO NOT follow it to the letter. I eat sweet potatoes and a tad of amaranth flour once a week. I do enjoy Stevia in a few things. I believe the diet has helped me, but it isnt necessary for everyone to be anal about it. I just simply do not believe in "all or nothing" with diets. Even gluten free. While... -
ARCHIVED Weird Symptoms After A Week Gluten Free
ShayFL replied to Denise1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Mine passed after about 3 - 4 weeks. Drink lots of water, cleansing teas like red clover, ginger, etc. Exercise helps too even if you dont feel like it. Sauna. Anything to get that "gunk" out of you....... -
ARCHIVED Protocol At High End Restaurants?
ShayFL replied to Live4Hiking's topic in Gluten-Free Restaurants
One of the women at my Celiac Support group was just talking about this a few weeks ago. She is the type that does not like to draw attention to herself at all. So she called ahead and got to speak with the chef. She explained her intolerance and her needs. He reassured her that she would have a great meal, so she made a reservation. The night they showed... -
ARCHIVED Need A Great Gluten Free Low Sugar Dessert For Tomorrow!
ShayFL replied to gfmolly's topic in Gluten-Free Recipes & Cooking Tips
Rice Custard Dessert Ingredients: * 4 cups milk * 1/2 cup Splenda * 1/4 cup rice, uncooked * zest from one lemon * 1/4 tsp salt * 2 eggs, well beaten * 1/2 cup raisins * cinnamon, to taste Preparation: In a large bowl, combine the milk, Splenda, rice, lemon peel and salt. Stir to dissolve the Splenda. Pour... -
ARCHIVED Protocol At High End Restaurants?
ShayFL replied to Live4Hiking's topic in Gluten-Free Restaurants
Good News!!! High end restaurants are generally the SAFEST places to eat. They have real chefs who are willing to prepare delicious gluten-free food for you. I dont eat at expensive restaurants as much as you do, but the last one I went to a few months ago was great! I called ahead. Then when I got there and the hostess checked our reservations, she... -
ARCHIVED Sublingual Methylcobalamin B12 W/o Sugar Alcohols
ShayFL replied to hippiegirl2001's topic in Gluten-Free Foods, Products, Shopping & Medications
Good job!! But I order my Pure Encapsulations through Amazon....quite a few companies sell it. You just cannot buy directly from their website. But give the ones you found a go!! -
ARCHIVED It's Slightly Official......
ShayFL replied to ohsotired's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Is that like being slightly pregnant???......LOL Welcome aboard! -
ARCHIVED I Had Antiendomysial Ab Titer Of 1:40, Do I Have celiac disease?
ShayFL replied to dogle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most of us can identify with the life you have had unfortunately. We know it all too well.