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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED To Biopsy Or Not?
ShayFL replied to muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Many opt for a biopsy so they can have a gold standard Dx. This can really help with compliance to the diet for some. I opted to NOT have a biopsy because I am high risk for perforation. No thank you!! So I am just doing the diet. The choice is yours. But if you want the biopsy....keep eating gluten till you do. -
Yes you can become sensitive to other grains. Especially while your gut is healing. Armour contains corn starch. So it is more likely the lactose in your new pills that is a problem. It could also be that your body utilized the natural hormones better than the synthetic. This is very common. I cannot take synthetic. And my Sister didnt do well on...
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You arent alone Marty. I never registered abnormal antibodies.....but neither did my Mom...who got dx Hashi's when they were removing her thyroid for cancer. She had little thyroid left for the body to attack!!! So her antibody tests came up negative. I should test again soon.
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ARCHIVED Digestive Enzymes & Probiotics
ShayFL replied to Lukalovescats's topic in Parents, Friends and Loved Ones of Celiacs
I agree to start slow on the enzymes....empty out half a capsule. Absorb Aid can be emptied into the food where she wont have to take a pill. And you wont waste any. Just sprinkle half a capsule onto cold/warm food (not hot....cuz it will kill the enzymes). It has no real taste mixed with food. -
ARCHIVED Let The Games Begin.... (long)
ShayFL replied to ohsotired's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And you arent really lying because your family may just not have been diagnosed yet. I think it is important for you to get an official dx if you can because you have a daughter and it sounds that will help you with your family/husband. Keep eating the gluten.....only a week wait. You can go gluten-free as soon as you leave the GI's office... -
ARCHIVED Sluggish Liver Behind Health Problems..........
ShayFL replied to AliB's topic in Related Issues & Disorders
My doctor says to take herbs 6 weeks on and 6 weeks off. So I try to stick to that when I take them. -
ARCHIVED Let The Games Begin.... (long)
ShayFL replied to ohsotired's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ask GI for a complete Celiac blood panel. They can do that too. Then you might need an endoscopy. There are ways to get what you want from doctors. Given your family history. I see no reason you cannot say. My family has it and I need to be tested now because I have symptoms. He isnt going to interview your family. They screw with us non-stop. Get... -
Ummm....Gluten sensitivity is hereditary. There are other genes different from Celiac. But our parents most certainly pass them on to us. We all respond to gluten differently. Some Celiacs have NO SYMPTOMS at all, but are damaging their bodies nonetheless.
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ARCHIVED Help! My Baby Was Glutened!
ShayFL replied to slmprofesseur's topic in Parents, Friends and Loved Ones of Celiacs
Some use Slippery Elm, Glutenese, Marshmallow, pro-biotics and such. -
ARCHIVED New Here
ShayFL replied to cymrudenver's topic in Parents, Friends and Loved Ones of Celiacs
My daughter is 12 and will make her own breakfasts and lunches often. She loves Amy's gluten-free mac and cheese with little sliced pieces of hot dog. She also loves making her own sushi with the little kits. She opens a can of salmon or tiny shrimp and put them in the nori roll with rice and avacado, carrot........It can be fun for kids too to learn how... -
ARCHIVED Celiac But No Horrible Symptoms
ShayFL replied to pnltbox27's topic in Coping with Celiac Disease
I dont know if cancer scares you, or lymphoma, or auto-immune diseases like diabetes type 1, graves disease, hashimotos, MS. Those could be in your future if you continue to poison yourself with gluten. It is like the smoker who "feels fine" and then one day gets dx with terminal lung cancer. It is like the woman who works at the fertilizer plant... -
Wrap your head around this. People like helping others. It makes them feel good (not put out). When you are thoughtful and generous to another human being, how do you feel? It should make you feel very good. So let your parents and in-laws feel GOOD!! Let them get that spiritual gratification. And allow yourself to accept their support. It is a win...
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ARCHIVED Digestive Enzymes & Probiotics
ShayFL replied to Lukalovescats's topic in Parents, Friends and Loved Ones of Celiacs
Some digestive enzymes arent a bad idea. Make sure they have lipase in them to help her digest fat. She doesnt need go take them with a light meal of say fruit and yogurt. But a larger meal, especially if fatty. Also, she is likely deficient in fatty acids since she isnt absorbing fat real well. Some fish oil caps would help. Or flax oil if you are... -
I have found that most grains raise my BS too much. Especially the flours....way too much. So I am sticking with all meats, eggs, nuts & seeds, fruits, veggies and for carbs I am eating squashes/sweet potatoes (but not too much on the carbs). This keeps me stable. I eat 5 meals a day spaced out. Most importantly I EXERCISE everyday. I...
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ARCHIVED New Here
ShayFL replied to cymrudenver's topic in Parents, Friends and Loved Ones of Celiacs
I dont eat gluten or corn. And I have plenty to eat. I make one dinner. Everyone eats it or they can "fend for themselves". You dont have to make it complicated. Try Tinkyada pasta. gluten-free and CF. -
ARCHIVED Doc Says More Protein...
ShayFL replied to bakinghomesteader's topic in Coping with Celiac Disease
You could add a digestive enzyme high in protease to help you get more bang from the protein you do eat. -
Search the forum Ray and you will find a lot of info about Glutenese. Basically it could help to take when eating out and you worry about cross contamination. But you CANNOT take them and then eat gluten. It does not work this way. And if you are Celiac for sure, please do not think this will help you eat gluten foods. The people in here that use...
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ARCHIVED Doc Says More Protein...
ShayFL replied to bakinghomesteader's topic in Coping with Celiac Disease
Here is the one I use. I use the unflavored one. But they have flavors: Open Original Shared Link I use one heaping Tlb per smoothie. You will have to play with it to see what you like. -
Hi Marty, The very first thing that comes to mind is that during the warmer months people eat A LOT more fruit. Many people have trouble digesting too many fruits (me included). So this is where I would look. Also the warmer more humid months make produce "ripe" for fungus and bacteria to thrive and grow. You will want to wash all of your fruits...
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ARCHIVED Doc Says More Protein...
ShayFL replied to bakinghomesteader's topic in Coping with Celiac Disease
There are so many good protein powders out there now depending on what you tolerate. I personally did not do well with rice protein. But do great with HEMP. A lot of them sell individual packets so you can try them without a huge investment. -
ARCHIVED Tired Of Playing Games - Finally Gone Gluten Free
ShayFL replied to leadmeastray88's topic in Coping with Celiac Disease
Im rooting for you!! -
See I think it needs less cooking than they say and that for a lot of people it doesnt hold up to "over cooking". I dont eat a lot of pasta and right now I am on a grain free trial for a few weeks. But my next venture will be to try what I just heard. 2 minute boil and then sit for 13-14 minutes....checking OFTEN.
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ARCHIVED Sluggish Liver Behind Health Problems..........
ShayFL replied to AliB's topic in Related Issues & Disorders
Awesome Jill that the blood type diet worked for you!! We are all so very unique. I tried the blood type diet with limited success. It did cut the bloating and gas down. I am A+ and learned that I clearly do better with a lot more meat in my diet than D'Adamo suggests. But you are not the only one that I have heard of it really helping A LOT. ... -
ARCHIVED Not Sure What To Do
ShayFL replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have gotten this problem from time to time. But I am a female and it comes from bacteria getting pushed up into the urethra. D-Mannose for a few days works like a charm everytime for me. But I dont know about guys anatomy. -
ARCHIVED Sluggish Liver Behind Health Problems..........
ShayFL replied to AliB's topic in Related Issues & Disorders
Just keepin it real for those that might feel deflated thinking......if I only had the "right" doctors....and got the "right" tests....from the "right" labs....I could get well. You do not need all of the "right" things that are "right" for someone else to heal. Everyone should be encouraged to HOPE that what they are trying could work for them. ...