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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED I'm Likely About To Lose My Job
ShayFL replied to Leslie-FL's topic in Coping with Celiac Disease
I dont think you have an official Dx do you Leslie?? -
ARCHIVED Neurological Symptoms - Strange Sensations - Healing?
ShayFL replied to ShayFL's topic in Related Issues & Disorders
Thanks RG!! I appear to be doing everything right. Now just to wait and see...... -
ARCHIVED I Need Advice
ShayFL replied to nikiann's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The weird taste in your mouth can be an "aura" for a migraine. That you mention the headache afterwards leads me to think "migraine". "Auras" can be sparkly lights in your field of vision, sounds in your ears, tastes in your mouth or other nerve sensations. * visual symptoms: flashing lights, wavy lines, spots, partial loss of sight, blurry vision... -
ARCHIVED Neurological Symptoms - Strange Sensations - Healing?
ShayFL replied to ShayFL's topic in Related Issues & Disorders
The neuropathy is actually better today and that strange "waking up" sensation is much much less today. So this gives me hope!! I realize since I am deficient in Vit D and Iron (I am supplementing) that my body may simply be absorbing more (since I am not eating gluten) and these deficiences are getting better which may be what is improving my symptoms... -
ARCHIVED I'm Likely About To Lose My Job
ShayFL replied to Leslie-FL's topic in Coping with Celiac Disease
Im very sorry to hear this Leslie. Might you consider sitting down and talking with him about your health and what has been going on. Explain how much you want to keep your job and get healthy and that you are working hard to insure both???? -
ARCHIVED Neurological Symptoms - Strange Sensations - Healing?
ShayFL replied to ShayFL's topic in Related Issues & Disorders
Thank you Rivergirl! Did you have strange sensations as your body healed?? Yes, my migraines were also the first to go. Thank goodness!! Im so glad to hear your dizziness went away. How long did that take? And the neuropathy. How long?? -
ARCHIVED Does This Happen To Anyone Else?
ShayFL replied to jvalentine89's topic in Related Issues & Disorders
Ah...the post meal "coma". I hated those. -
ARCHIVED I Need Advice
ShayFL replied to nikiann's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Fruit will "bloat" me if I am not careful. Small amounts are fine. But a big fruit salad and I look pregnant. -
ARCHIVED Anemia And celiac disease - How Long To See Improvement?
ShayFL replied to sammie210's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, my dark circles are disappearing too. -
ARCHIVED Does Anyone Make Their Own Almond Milk?
ShayFL replied to sickchick's topic in Gluten-Free Recipes & Cooking Tips
Take 1 cup of natural RAW almonds. Cover with water and soak overnight. Then in the morning put them in a blender with 3 cups of water. Add a pinch of salt, vanilla extract and some stevia for sweetness. You can also sweeten with honey if you dont have sugar issues. Blend very well and then strain through a strainer. For pulp free milk, use a jelly... -
ARCHIVED I Need Advice
ShayFL replied to nikiann's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have him test your iron stores - Ferritin (which should be at least 50) and B12 + MMA. If you are taking any B12 supp. then the serum B12 will be inaccurate. You need the MMA to make sure that you have enough B12 As a former vegetarian, I can tell you that it is hard to stay healthy even if you do it perfectly. B12 and iron are usually the first to... -
ARCHIVED Still Sick
ShayFL replied to KProc's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am just shy of the 3 month mark gluten-free. I have not gotten a migraine since quitting the gluten. And my BM's are down from 5/6 to 2/3 a day. But I still have neuropathy and vertigo/ataxia symptoms. I accept that I have to be patient. It isnt easy. But I accept it. I am also working on my Ferritin (Iron Stores) to get them up to snuff and my... -
ARCHIVED Sardines/shrimp/crawfish : Are They Really Ever Gluten Free?
ShayFL replied to Woolygimp's topic in Coping with Celiac Disease
Make sure you buy "wild caught". Farm raised fish are not very healthy anyway. -
ARCHIVED Does Anyone Make Their Own Almond Milk?
ShayFL replied to sickchick's topic in Gluten-Free Recipes & Cooking Tips
Oh and use RAW almonds only. Best to soak them in water over night, so that the enzyme inhibitors get broken down. Makes for a very digestible milk. I also make hazelnut milk which I love very much. The key is to get good quality nuts that are not rancid. I like Jaffe Brothers. I buy in bulk and then refridgerate or freeze depending on when I... -
So I have been doing A LOT of research on grains. And know gluten is a problem for me. So it is OUT for life. But I have been experimenting with alternative grains. Baking and such and having a good time. But I am still not well and I want to do what I can to help my body get better. I read that grains are indigestible basically because they have...
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ARCHIVED Kind Of New To This, But Still Not Sure Where To Start
ShayFL replied to christyb's topic in Coping with Celiac Disease
Yes, you can look at this as an opportunity to learn about new foods that you may not be used to eating. There are a lot of delicious foods out there. Our family loves the buckwheat. I add cracked pepper and sea salt and it is yummy. If you hate to cook, there is still hope for you. Some pre-cooked meats are gluten-free. You just have to read labels... -
ARCHIVED Neurological Symptoms - Strange Sensations - Healing?
ShayFL replied to ShayFL's topic in Related Issues & Disorders
Yes. I am taking both of those. Mega B12 - sublingual methylcobalamin and Mag citrate. I am just wondering if my nerves might be "healing" and if others have experienced similar. -
ARCHIVED Neurological Symptoms - Strange Sensations - Healing?
ShayFL posted a topic in Related Issues & Disorders
I have migraines, neuropathy and vertigo. These are my main symptoms. Migraines are gone. Yeah!!! The imbalance/vertigo/ataxia are unchanged. My normal numb/tingly feelings have been replaced with that sensation you get when a foot was asleep but you wake it back up. It is different than my normal tingling. It is exactly like my arms/hands/legs... -
Try to look at it this way. They caught you early. Your disease requires a change of diet. That's all. Be thankful that your disease does not require, surgery, chemotherapy, dialysis, transplant or such.
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I was EXACTLY like you in that I had an amazing appetite and ate like a horse and stayed thin. I was hungry a lot for the first 3-4 weeks and then it evened out. I eat mostly whole foods now: meats, veggies, fruits, nuts and some alternative grains. I keep a variety of oils and spices to cook with. It is the way we are meant to eat anyway. A period...
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Ive only had 2 periods since gluten-free, but both came late. This last one was 4 days late. I am not on the pill.
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ARCHIVED Does Anyone Make Their Own Almond Milk?
ShayFL replied to sickchick's topic in Gluten-Free Recipes & Cooking Tips
I love my homemade almond milk. I have a Vita-Mix blender and honestly if I could only keep one appliance, this would be it! I love it. I use raw almonds. You can soak them overnight to get rid of the enzyme inhibitors. I put them in the blender with water, a pinch of sea salt, vanilla and stevia. Then blend until ultra smooth. I then strain... -
Taboule made with quinoa, add pre-cooked chicken.
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ARCHIVED Recently Diagnosed And 5 Weeks Pregnant...help!
ShayFL replied to kprince's topic in Related Issues & Disorders
First relax. I also had a baby undiagnosed. If your baby is meant to come into this world at this time he/she will. Start talking to the baby. Tell them that you love them no matter what and that you will do everything you can to make sure they are healthy. And tell yourself what a good Mommy you will be and that celiac is not your fault. They can... -
ARCHIVED Pumpkin Cake With Rum-maple Glaze
ShayFL replied to sickchick's topic in Gluten-Free Recipes & Cooking Tips
Ok....so I tried to make some rum balls. I couldnt find any cookies that didnt have some of my no no's. So I just used walnuts and pecans very finely ground, ground chia, dark rum, honey and spices (cinn, nutmeg, cardamon) and pinch of salt. It tastes yummy, but not like the rum balls I remember. So I didnt ball them up. But I baked a sweet potato...