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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Help! Excessive Weight Loss
ShayFL replied to mom2cash's topic in Related Issues & Disorders
My case was extreme. There are lesser degrees of PPT. Do get it checked. You can save yourself some possible suffering. Good you are gaining weight. But watch that you dont swing into hypo-thyroid. I would really have a doctor monitoring me. That is just me. -
ARCHIVED Treating Oi/nmh Associated With Cfs/me/fm Or Cfids
ShayFL replied to marciab's topic in Related Issues & Disorders
I have these. I have been getting them since highschool. I have had 4 removed. And right now, I have 5 of them on my head. 2 are big and time to remove. I have done parasite cleanses a few times. I never saw anything in the toilet. No die-off. And didnt change my symptoms at all. And I still have the cysts. Wonder if something else you are doing... -
ARCHIVED Ate A Bunch Of Gluten And Nothing... Questioning And Confused
ShayFL replied to CuriousOne's topic in Coping with Celiac Disease
It sounds exactly like conversations I have had with myself. Questioning is natural. We all do it. For instance, I have cut out gluten, but I have also cut out dairy, yeast, eggs, legumes, nightshades and now citrus. Maybe one of them is the problem. Or none of them. If I get completely better then I can challenge each one to try to determine which... -
ARCHIVED Treating Oi/nmh Associated With Cfs/me/fm Or Cfids
ShayFL replied to marciab's topic in Related Issues & Disorders
I add a pinch of sea salt to my drinking water. It has really helped me. -
There are many places that help explain this. I bought "Cooking Free" cookbook and it is awesome at helping to figure out exchanges. There are also some websites: Open Original Shared Link Open Original Shared Link
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The grapeseed and quercitin are not a "quick fix". It takes a few weeks to a month to build up enough in your system. Front load and then get down to a "maintenance" dose. Double what every the bottle recommends for a week or two and then go down to the recommendation. Both are non-toxic.
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ARCHIVED Vitamin Deficiencies And Growth
ShayFL replied to cyberprof's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A perfect example is Osteoprosis. The bones are brittle and weak. But the worst thing you could do is "rest" them. What you have to do is put some "stress" on the bones and then it will set of a cascade of bio-chemical process (enzymes and hormones) that tell the body to "build bone"!! You will actually absorb more calcium and Vitamin D when you put stress... -
ARCHIVED Vitamin Deficiencies And Growth
ShayFL replied to cyberprof's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
We are all preaching moderation with the workouts. But moving the muscles and working them sets off a chain reaction that tells the body to absorb nutrients better. So if you dont work out, you are telling your body the opposite. It might sound logical to not work out if you are deficient, but it works the other way really. Our whole bodies are a looped... -
ARCHIVED So Confused!
ShayFL replied to runnerkat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I tested negative with Kimball, but postitive with Enterolab DQ1 and DQ3 (Subtype 6 and 7 respectively). I wonder if Kimball messed up mine too. Or if Enterolab would have found DQ2 or DQ8 if they existed...... -
ARCHIVED Right Lower Abdo Pain.. Help!
ShayFL replied to nikky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Im sorry. But why on earth would you want to "mask this pain" so you can go on that walk? You will just further injure your body. Pain is your body's way of telling you to "slow down", "rest", "take it easy". Pushing yourself physically beyond what your body allows might give you a mental high, but it is destroying the vessel that carries your brain around... -
ARCHIVED Gluten-corn-lactose-egg-sulfites-sulfate-sulfa-sulfure Free Meals What Do I Eat
ShayFL replied to Gerri's topic in Food Intolerance & Leaky Gut
Go to the bookstore and look at "Cooking Free". I have to avoid most of those things too. This cookbook is excellent for us. -
ARCHIVED Why So Tired After Going gluten-free?
ShayFL replied to MLB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I crash on too many carbs too. Go into a coma. So I disagree with adding a bunch of carbs. I do best with meats, veggies, fats (nuts and oils) and small amounts of carbs (whole grains and fruit). -
Grapeseed extract and Quercitin keep mine away. Both are natural anti-histimines. Our allergy season starts around February. I used to start taking them then. I now just take them year around and dont get the allergies anymore and I used to live off "Allerest".
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ARCHIVED Jessica-finding Out Diagnosis Of Celiac Sprue
ShayFL replied to NpfGCmusicgrl101's topic in Coping with Celiac Disease
Jessica what a relief for you!! I wish you healing and light. -
ARCHIVED Beer Enough For A Positive Result ?
ShayFL replied to MrsMH's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's tricky because even if he is gorging on gluten for months before the test, it can still be neg. The tests just arent always accurate. Blood tests are notoriously inaccurate. And biopsy is hard because often the damage is "patchy" and they could miss it. With this said, I would think to go ahead with he blood work. AND get genetic tests to see... -
ARCHIVED Anyone In Tampa Fl? Dog Lovers A Plus :)
ShayFL replied to ShayFL's topic in Introduce Yourself / Share Stuff
This is me. Only my hair is even shorter now. http://www.terracegallery.com/sharonnew.webp I did send an email to Janet to make sure I would be welcomed. Someone said that some Celiac groups are very particular about who they allow. Some require "gold standard" diagnosis. Which isnt me. So Ive asked. On the off chance she says that I am... -
You can get chia for 8.95 a lb here: Open Original Shared Link Keep in mind that you dont use A LOT of them for baking. I have a pound I bought 4 months ago and I was eating a 1/2 scoop every few days in my smoothies (and now with baking) and I still have not finished it. Chia do not go rancid quickly like most nuts and seeds. Can be stored in...
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ARCHIVED Anyone In Tampa Fl? Dog Lovers A Plus :)
ShayFL replied to ShayFL's topic in Introduce Yourself / Share Stuff
Hi Leslie!! I live in Temple Terrace. I will be going to the meeting tomorrow at 1 pm at Jimmie Keel library. It is only about 10 minutes from me. Is that the one you are going to??? It will be my first time too. -
ARCHIVED Vegan And Now Gluten Free! Help!
ShayFL replied to givenupgluten's topic in Coping with Celiac Disease
You could get genetic tests through Enterolab. You might feel even more confident if you have the celiac genes that you are making the right decision. For eating out. You can always take a veggie burger (gluten-free). I like Sunshine Burgers. Order a salad and a baked potato and be safe. This allows you to be social with your restrictions. I have... -
ARCHIVED Vitamin Deficiencies And Growth
ShayFL replied to cyberprof's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I will add what I know. I have a Phd in Holistic Nutrition, but I do not claim to be an expert. I studied to find a solution to my own health problems. I am also an ACE certified personal trainer (not practicing right now). Since Vitamin A and Iron are both "stored" in the body and can easily become "toxic" supplementing with higher than the RDA might... -
ARCHIVED Unquenchable Thirst & Chemical Exposure?
ShayFL replied to Chevelle's topic in Coping with Celiac Disease
You do need to be evaluated for diabetes. There is a connection between celiac and diabetes. And a lot of people are dx after going gluten-free. Dont let this scare you, just get checked out. If all o.k. with your blood sugar, then it is possible you are "detoxing" from gluten and one way the body "flushes" that crap out is to drink a lot and urinate... -
It seems there are a fair number of us who tried vegan and did not do well. And are back on meat gain. It is not a moral "failing" to go back to meat. You eat what works for your body. Meatless did not work for MY body, so I eat meat now and feel better. I have no trouble digesting it. No pains after I eat it. No D. Do cramps. No gas. I cannot say...
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ARCHIVED Does The Spouse Really Understand
ShayFL replied to Mally-bug's topic in Parents, Friends and Loved Ones of Celiacs
My husband and daughter have been very supportive. I could not ask for more. Had a dinner party and explained gluten-free, but someone still brought a baked good. It had "semilina" which they thought was gluten-free. I dont fault them for their ignorance, but we said if you must bring something, wine or flowers would be lovely. Anyway, when... -
ARCHIVED Unquenchable Thirst & Chemical Exposure?
ShayFL replied to Chevelle's topic in Coping with Celiac Disease
You should see a doctor. Have them run some standard bloodwork to include fasting glucose. I wouldnt ignore these symptoms. -
Very well said Bully.