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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    I don't have clinical diagnosis, because I didn't have positive bloodwork and I didn't get a biopsy. However, I have a family history and all of my symptoms resolved on a gluten-free diet, so I've been deemed "probably Celiac". I consider myself to be self-diagnosed. My family and friends have seen how sick I was, so it was really a relief when I told...
  2. leadmeastray88
    The fatigue was terrible for me. No matter how much sleep I got, I'd wake up feeling like I hadn't slept a wink. Then I'd go to school or work and barely be able to keep my eyes open, and not able to concentrate at all. It really took a toll on me. I'd have to agree that I was so worried that I was suffering from a terminal illness as well, I was convinced...
  3. leadmeastray88
    I've noticed the past couple of days that I've had some 'stringy' looking things in my stool...sorry if TMI. I just wanted to know if anyone thought it might be, and if I should get it checked out? Otherwise I have normal BMS. Thanks in advance!
  4. leadmeastray88
    Hi there, I would say Celiac is a definite possibility for you. However, to know for sure you need to be eating gluten and have the official testing done. I can see how that would be difficult for you because like me, you're a college student and don't have insurance. However, I would say that if you're serious about getting a diagnosis, it's worth the...
  5. leadmeastray88
    The value of a concrete diagnosis depends on the person. The most important thing is that you're going to stay loyal to the gluten-free diet. Lots of people can't/won't be faithful to the diet without a real diagnosis. But if you think you can stick to it without one, then definitely go for it! Prior to going gluten-free, I had terrible hyperhidrosis....
  6. leadmeastray88
    I just bought a similar movie last week, it's called "Food Matters", you can watch the trailer here: Open Original Shared Link It talks about the correlation between the food we eat and chronic illness. I can't wait to watch it. It's about time something as important as this starts getting circulated.
  7. leadmeastray88
    I have never heard of that before, someone will correct me if I'm wrong, but I believe the testing is more prone to be correlated with the years of damage (more likely to be positive the longer you've had damage). However, the testing is far from where we'd like it to be, in terms of accuracy and reliability. We've had biopsy-diagnosed Celiacs here who had...
  8. leadmeastray88
    Hi! I don't know anything about the prep part because I've never had a colonoscopy before...however I think the 3 day liquid diet is a good idea, makes sense! Crystal Light, to my most recent knowledge, is gluten free. It's a Kraft brand and they will clearly state ingredients so you should be okay with that...it IS yummy stuff! Good luck...
  9. leadmeastray88
    Thanks for your reply. I know getting him to go is going to be like pulling teeth. I know I'll have some convincing to do and perhaps telling him what the complications would be of anything undiagnosed would work. What I really wanted to know though is if it's possible to develop an intolerance to something simply by not eating it for awhile?
  10. leadmeastray88
    Just a quick question... I've been noticing that my boyfriend has started having some kind of reaction...like frequent D, stomach aches, fatigue and whatnot. He has been largely eating gluten-free because my house is completely gluten-free and his family is partially gluten-free because they do the "Eat Right For Your Blood Type" and 2 of them are O....
  11. leadmeastray88
    Thank you all for the replies The cherry thing is interesting! Never heard of that one. Maybe I'll try that and then melatonin...I've been taking yoga classes which has actually helped a lot.
  12. leadmeastray88
    I really don't know anything about MSG intolerance, and I don't know how severe the symptoms can be. As far as I know, MSG is mostly gluten-free in the US and Canada, but I could be wrong. It could definitely be an additional intolerance you may have in addition to gluten intolerance. To do an elimination diet, you need to eliminate 1 thing at a time...
  13. leadmeastray88
    Hi there If you look in Yellowlilax's thread on "Enterolab results" I answered your question there.
  14. leadmeastray88
    Hi there, I would only recommend Enterolab testing if you've already had other testing done - for example: 1) The Celiac bloodwork panel, which includes: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA 2) An endoscopy with biopsy Reason being, Enterolab's testing...
  15. leadmeastray88
    Pre-ground black pepper could have gluten in it, believe it or not, as a filler! I've found this with certain pre-ground peppers. I buy the pepper corns and put them in a grinder.
  16. leadmeastray88
    Have you spoken to your doctor since your last visit? If you're very concerned about your health I would definitely recommend revisiting the issue, and discuss further testing. The longer you wait, the more your health will deteriorate. If you're not getting anywhere with the doctor you have now you should maybe consider finding a new one. Your health is...
  17. leadmeastray88
    Absolutely, that's what I was trying to say. I should have clarified that people who buy Enterolab tests usually have symptoms and have ruled out other things, so the chance is higher that they'll have a positive result, whereas if everyone in the general population got tested there would be more negative tests. Enterolab is great for that, I certainly...
  18. leadmeastray88
    Unfortunately, I wouldn't recommend that. The villi in your intestines could heal very quickly and therefore your tests would be invalid. You may be surprised and get in very early, then you wouldn't have been eating enough gluten for the testing to be accurate. Also, only a couple of days on the diet isn't necessarily long enough to notice a difference...
  19. leadmeastray88
    Most definitely. Mine was triggered from the post-traumatic stress from a surgery that I endured without anesthetic. Moreover, your mom has Celiac which makes it even more likely since it's hereditary. The iron deficiency is common in Celiacs. Have you had any testing done? This is the complete Celiac blood panel, you should take it in to your...
  20. leadmeastray88
    I'm sure you're right. Too much money
  21. leadmeastray88
    That is my belief too. If you're willing to spend nearly $400 on getting tested, you probably have enough evidence of having a problem with gluten in the first place. And we do know for a fact that there have been negative tests posted on here before - there's probably even more, but people move on to another thing once they learn gluten isn't a problem...
  22. leadmeastray88
    To biopsy, they do a procedure called an endoscopy - basically they insert a small tube down your throat with a little camera on it, they descend into your small intestine and take small biopsies through the tube. Many people here have had this done and say it's a breeze - I know there's anesthetic/sedation options as well.
  23. leadmeastray88
    Not sure. To know, we'd have to see exactly what they tested. You can ask your doctor for a copy of the lab results and post them here so we can help. It could mean that you were 'borderline positive', (which is still positive) but your doc didn't think that it means you have Celiac... Again, we'd need to see the lab results
  24. leadmeastray88
    I would say it's worth it. However, that one test is not enough. It's only one of many tests included in the complete Celiac panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA It's better to get all of these tests together so they can see the big picture...
  25. leadmeastray88
    Chronic dry eyes/mouth is a symptom of Sjogren's syndrome, have you ever been tested for that? It could be linked to Celiac because it is also an autoimmune disease: Open Original Shared Link This particular autoimmune illness features inflammation in certain glands of the body. Inflammation of the glands that produce tears (lacrimal glands) leads to...
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