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MarsupialMama

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Everything posted by MarsupialMama

  1. MarsupialMama
    My daughter ended up in the hospital ER due to a stomach virus and dehydration (very common) which had gotten really bad. While there, they take the history, etc. Wouldn't have mentioned the gluten thing, except I didnt want them giving her any meds with gluten in it (not that they would know if it had it anyway I guess). In any case, some smart-ass nutrtionist...
  2. MarsupialMama
    I guess I'm here to rant!! And ask a question. Are there any tests out there for celiac disease where you DONT have to currently be on gluten to have positive results? Our family went gluten free 2 1/2 years ago and we had phenomenal turn around with me and two of my children's health issues. The difference was like night and day, almost immediately. All...
  3. MarsupialMama
    We all went gluten free for my one daughter (age 4) who showed signs, and ended up finding out that my second daughter's big belly (age 6) and my own 24 years of digestive/health problems disappeared in going gluten free (24 years of suffering, GONE!). In having "gluten" and "non-gluten" food in the house, my daughter kept getting glutened. Containing crumbs...
  4. MarsupialMama
    Most people i have found have a quick growth catch up time of a few months up to about a year. We have been gluten free for a year, minus 6 months in there where we had accidents that set us back for those months. So no accidents for 6 months. We had an initial growth spurtand my daughter (who is almost 3) at the beginning and went from 16 pounds to 20 pounds...
  5. MarsupialMama
    Hi, We had the same problem - weight loss staring at 9 months, and 18 pounds at 20 months. We didn't do any testing before putting her on the gluten free diet because I didn't even know much about it when I took her off gluten. And I didn't want to wait one more day before working on a possible solution. We could see major changes in 3 weeks that I never...
  6. MarsupialMama
    Oh wow - be glad she asked! I had a friend hand over a bread roll to my child WITHOUT asking. This will put us back for a month! I think I've said something along the lines of "Thank you, but unfortunately she is VERY sensitive to certain food ingredients and we have to be sooooo careful with her." Most people won't sit and argue with you if they think your...
  7. MarsupialMama
    well we have a super super sensitive child and if we could just keep her from getting glutened, she might gain a little! i've played the weight game constantly - on the scale - to give myself peace of mind but it did the opposite, since one day she would be 19 pounds and other times 17. Weight can greatly fluctuate depending on bowel movements, fluid intake...
  8. MarsupialMama
    Well I would have been one of those people who would think "There's no way it can be that serious" if I hadn't gone through it with my daughter. It is INSANELY ridiculous. And to find out where she has got glutened is really hard since we are so careful It's like....there is some invisible boogey-man out there that attacks and we never know it - how, when...
  9. MarsupialMama
    Okay, so i know that certain spices (onion, garlic, etc) are are mixed with flour to keep them from sticking together, but do they do this with tumeric too? Or would it have gluten from c/c? I feel like there is nothing left for us to eat, simply because she is SO sensitive to the slightest thing. Like, how do people even live like this? Thank you for...
  10. MarsupialMama
    Thanks for all the posts. I am having a hard time finding out how my daughter keeps getting glutened, and this was the only possible thing I could think of when I came across it. The whole gluten issue for us has been a total nightmare of ups and downs. I've dealt with chronic health problems my whole life (most likely related to celiac from malnutrition...
  11. MarsupialMama
    WOW!! This is awesome information! I feel like we have some kind of hope now! I have not been able to find the source of my daughter's glutenings, but I just read a post about the playground where goldfish-contaminated hands get all over the playground equipment. Sheesh.......How do you even LIVE in this world and let kids be kids with celiac issues? It...
  12. MarsupialMama
    Looking for a place to buy gluten-free grains in bulk that are 100% NOT cross contaminated. Does anybody know of a place? I can't even trust the expensive little bags in the health food store that say gluten free because of the deceptive labeling. Besides the fact that we will go broke.... But my daughter is so sensitive to cross contamination that the...
  13. MarsupialMama
    My first child showed no symptoms. My second child was devastated by celiac (failure to thrive type thing) and was REALLY bad off. We discovered the gluten connection and went gluten-free. She got better. We put the first child on gluten free as well (we all are gluten-free now) to make meal prep easier. Surprisingly, her belly slimmed down. We had not thought...
  14. MarsupialMama
    I just found out that wheat gluten is used to coat fruits and vegetables. We are vegetarian and blow through boxes and boxes of produce. Does this mean my child can never eat strawberries or cherries (or the like) because I can't peel them?? Has anyone heard of sensitivities to eating fruits and veggies without peeling them? I know its a good idea and all...
  15. MarsupialMama
    Let me ask this: If the biopsy turns out positive, what will you do differently? If the biopsy turns out negative, what will you do differently? Common sense has to play its part in any decision. To counteract an above poster, to blindly trust somebody else, dr or otherwise, without factoring in anything else, is always DANGEROUS. We turned down a biospsy...
  16. MarsupialMama
    Just a side note - both my daughters had chronic constipation since newborn - they would have a BM once a week. Now my newborn son goes about once every 3 days. After we went gluten free it has improved - Dughter #1 goes several times a day, Daughter #2 at lest once a day, and newborn going once every 3 days instead of every week like the last two (although...
  17. MarsupialMama
    Two things that are not really connected, but just some thoughts. May be good to do a parasite cleanse. I had parasites for years and I acted this same way. When they were hungry, I would be an absolute grouch. Also suffered malnutrition from them, which contributes to funky attitudes. Felt shaky if I didn't eat RIGHT AWAY. This problem (as well as parasite...
  18. MarsupialMama
    I'm so glad to have found these posts today because my daughter just had a gluten accident recently, and has turned white as a ghost. It really bothered me, but she is not normally like this - only when she gets glutened. She did start getting color in her cheeks after being gluten-free for awhile. Is nice to have these reassurances and reminders that these...
  19. MarsupialMama
    Oh yeah, she is dairy and soy and egg free too. Seems like everyone in the house has one allergy or another. Am praising God that we are not allergic to nuts/beans/rice/corn/potatoes. Food gets limited with all these restrictions! Sometimes we eat rice and potatoes three times a day! lol!
  20. MarsupialMama
    We have been soo careful with her - no new drugs or supplement, no toys or playdoh, etc. Remodeling???? Good grief, have to say I never heard of that. Oh nuts! My husband works in construction - drywall, painting, etc! We haven't done anything new around here that I can possibly come up with, but have to re-look over everything. Sometimes I feel like we...
  21. MarsupialMama
    Our daughter was ridiculously tiny for age.......long long story made short here, but we took her off gluten. She has been gluten-free since July, minus a few gluten accidents. During the gluten accidents, we noticed all her symptoms (bloated belly, dark circles under eyes, trouble sleeping, HORRIBLE attitude, etc) come back, and they last about 3 weeks....
  22. MarsupialMama
    Hi, I make my own herbal extracts and am supposed to use 100 proof vodka. Does anybody know if this will have reactions?
  23. MarsupialMama
    Hi, I was wondering if anybody has tried Suzanne's Ricemellow Creme and if so has anybody had allergic reactions to it? I wanted to make a special treat for everybody (ahead of time) since we will have a new baby born in a few weeks. I know it says Gluten-free on the front of the package, but many times that doesn't mean squat.
  24. MarsupialMama
    Within 3 months of going gluten free my daughter went from being bald (1 1/2 years old) to be so full of hair that she almost needs a haircut. I wondered if this was related to being gluten-free and many people have resounded with a definite YES.
  25. MarsupialMama
    Oh boy,....I think everyone who has started this route has done this numerous times. I was in a very bad situation of having to prove to doctors that gluten was the problem with my dd (with the threat of CPS) - and yet I kept accidentally glutening her!! Every gluten accident SET US BACK 3 weeks!!! Every time she would start to improve, I would send her back...
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