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my3monkees

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by my3monkees

  1. my3monkees
    Adalaide- I am so mad at myself about the dish rag. I have been doing this long enough to know better. I usually do have a dishwasher though. Mine broke in July. I've talked to my husband many times! He listens for awhile, then gradually starts all over again. My daughter is a minor but an older one. She is almost 17, graduating this year. So unfortunately...
  2. my3monkees
    Hello, My daughter has been diagnosed for 5 1/2 years, since she was 11. She is great with the diet, that is not a problem. Unfortunately over the years we have had to eliminate many more foods. But each time she accepts it and moves on. She is one of the few people I know who literally eat to live, not live to eat! LOL She has been having more problems...
  3. my3monkees
    My dd didn't get diagnosed until 11. But she had food issues from birth. I had to avoid all dairy while she nursed. She always had trouble with gas. We had to delay all food until 6 mo. because she just didn't handle it well. She had never had an antibiotic, but had yeast infections from just a few months of age. By age 3 had huge cavities in all her molars...
  4. my3monkees
    Thats awesome that you were able to get in and get tested so quickly! Unfortunately for some of us its not so easy. Especially without GI symptoms First you have to convince the primary to run the blood test. Which mine was reluctant to do, despite 3 first degree relatives! Then if that blood test comes back negative, there is no chance in hades of getting...
  5. my3monkees
    When my mother had open heart surgery 2 yrs. ago. The food was horrible and she wasn't really hungry anyway. So the dietician came up to see why she wasn't eating. My mom told her that she was having a hard time eating, but maybe if she could just have bowl of mashed potatoes that would go down well. At that point the dietician informed her, that no she...
  6. my3monkees
    I can't say my dd had a huge growth spurt after diagnosis, but she was older 11. Even now at 15 she is very thin. But even without a huge change in size, she was healthier. Before diagnoses she actually looked sickly, toothpick arms and bloated stomach. Looked like those pictures of malnourished children. Which actually she was, come to think of it! LOL...
  7. my3monkees
    I have to admit, I don't always see the need for all the testing. Maybe for children, too allow for school accomodations. But for an adult, if you feel better while gluten-free, you have your answer! Why put yourself thru misery just to receive the "official" diagnoses. Its not going to change anything, the outcome will be the same. Besides what if it is...
  8. my3monkees
    Another thought, shared items like butter, peanut butter, mayonaise etc.. My dd kept getting sick and I realized we had all gotten lax, about keeping her items seperate. Although everyone was careful, enough cc was getting into these types of items to cause problems.
  9. my3monkees
    When my dd was first diagnosed, a friend warned me to be careful when reintroducing oats. Remember gluten free diets can often be lacking in fiber. Unless you make sure to get enough from fruits and veggies. So a large bowl of oatmeal on an unsuspecting intestines, can make you a tad uncomfortable! LOL As long as your are not having a true reaction, just...
  10. my3monkees
    I'm not very familiar with Zoloft, but I have taken both Paxil and Effexor. I would wait at least a few more weeks to a couple of months into the diet. The diet is enough of s stress right now. What doctors don't often tell you with anti-depressents, is that they are a awful to back off of. It took me almost 6 mo. to come off the Effexor and I was on...
  11. my3monkees
    My 9 yr. old, always LOVED Kraft Mac and Cheese. It was always a special treat. He doesn't like good mac & cheese. Only powdered cheese for him! LOL So every so often I will buy a box, throw away the noodles and use the cheese with gluten free noodles! I have heard that you can buy the cheese packets from Kraft without the noodles. But I don't do it...
  12. my3monkees
    Some people do seem to have issues with the urinary tract that is related to Celiac. I am actually trialing gluten free, to see if I can clear up the same problem. I always have trace blood in my urine and abnormal cells. They tell me the cells are probably due to inflammation somewhere. Celiac can cause inflammation. I was thoroughly checked, to make sure...
  13. my3monkees
    Just an FYI, that is a sugar alcohol which can cause tummy trouble in alot of people!
  14. my3monkees
    Better yet, cook up a couple pie pumpkins, scoop out the filling and throw in the freezer. Beats the canned stuff hands down! If you have kids let them roast the seeds.
  15. my3monkees
    The pediatrician diagnosed my daughter without the endoscopy. Technically I think her chart reads "probable Celiac". She improved so drastically when we did a food trial, the doctor was willing to work with that. The ped. GI was 2 hours away and my daughter didn't want to go back to eating the gluten for the challenge. The doctor even told me, what was the...
  16. my3monkees
    The exact same pediatrician who had diagnosed my dd a 2 yr. earlier. When I mentioned that her younger brother was starting to show the same symptoms. She said it would be really hard having 2 gluten free children, especially considering how expensive it was. So I should just give him a tums before each meal. Apparently I was supposed to let him get...
  17. my3monkees
    Thanks for the reply's. I am going to go for the scope tomorrow. I had it 2 years ago and it was fine. I forgot to mention that before taking my son off gluten, he was running to the bathroom to pee constantly. I just have such vague issues, microscopic blood and the atypical cells. But no discomfort or burning, unless I drink to much coffee. Or maybe...
  18. my3monkees
    Nope, I have never been tested! I have asked, but been told without gastro symptoms, forget it! I don't have diarrhea, I'm not thin, I'm as far from thin as you can get! LOL So of course I don't have it, despite family history. I should try and find a new GP, but in this area, they all seem to be the same. Not the most progressive, forward thinking part of...
  19. my3monkees
    Hi, I am wondering if anyone has ever experienced urinary tract issues and Celiac. I have never been diagnosed with Celiac. But my mother and 2 of my children have. My mother has also been a type 1 diabetic for 58 yr. Also suspect that dd may have Raynauds Syndrome. So obviously family history of autoimmune issues. I have no classic Celiac symptoms...
  20. my3monkees
    Hi, Can someone tell me what blood tests I need to ask for. My dd has Celiac, and I highly suspect my youngest does also. I have never been tested. But am due for a regular appt. so I thought I would ask my doc. to run a panel, just to see. I want to make sure she runs the correct ones. Especially since I don't have any classic symptoms of Celiac, I may...
  21. my3monkees
    When my dd went gluten free, she hated most everything! LOL For the first month I think she lived on eggs and Envirokid bars! But as she got used to things,her taste changed. She now insists that gluten free things, taste better than regular. I think its more that she can now eat without pain! LOL As far as testing, my dd doesn't have an official diagnosis...
  22. my3monkees
    My middle ds had reflex and he threw up constantly! The biggest fear for us was choking, we had one episode at a few days old where he was choking and stopped breathing on us. When we rushed into hospital, that's when we found out what it was. I learned I had to be sitting up to feed him, keep him up for 1/2 hr. after every feeding. He also side slept, never...
  23. my3monkees
    I think it is time for a serious talk with hubby, sons medical needs should come ahead of his food. Tell him he can develop his talents, by trying new gluten free "foodie" items.
  24. my3monkees
    I just use the one off the back of the chocolate chip bag. I use a flour mix of white rice, tapioca starch and potato starch. Sub it cup for cup, and add 1-2 tsp of xantham gum. The only other change I make is that I use all brown sugar, but I do that even with non-gluten free ones. Chocolate chip cookies are one of the easiest things to make gluten free...
  25. my3monkees
    I know Wegman's sells a non-dairy powdered milk replacement. I've heard it's really good but haven't tried it. My mother also used to use non-dairy coffee creamer as a powdered milk replacement. HTH
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