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LDJofDenver

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  1. Just wanted to share, we know how we celiacs rarely get "safe" holiday gift baskets. My brother sent me the most beautiful GLUTEN FREE Gift Basket! Everything in it gluten-free and/or certified gluten-free. From Biscuits in a Basket -- in Denver CO area. Local, small company, that does one beautiful job. And gets the whole celiac gluten free thing...
  2. I too have osteopenia, not uncommon for celiacs. I agree seeing endocrinologist is key. Mine had me on prescription level Vitamin D for two years. Vitamin D promotes calcium absorption, among other things (so even if you're taking calcium it may not be absorbed properly if your Vit D is low). My endocrinologist looked at things at a much more finite level...
  3. I hope everything went well and you suffered no ill effects. We all (celiacs) experience those anxious feelings when we're going to someone else's home to eat. I cook Thanksgiving so I am in control of all of it, gluten free stuffing and gravy, every seasoning, handling, etc. I have a very dear friend who had us over this summer for bbq and was trying...
  4. Yes, Virginia, there IS a Santa Claus -- at least for me and other celiacs who love their fruitcake. I was delighted to discover that Old Cavendish makes a certified gluten free fruitcake (yes, certified!). Got mine last week and it is to die for. (my husband is really happy for me because now he can enjoy his fruitcake and not have me staring daggers of...
  5. Ataxia as adult celiac. Greetings. I had pretty significant "gluten ataxia" (from what I understand the antibodies that attack the small intestine also attack specific type of cells in the cerebellum - I'm not a medical person, I'm sure you can google this and get some info). I was not diagnosed with Celiac Disease until in my 50s. Among other problems...
  6. You may be able to have the endoscopy without adding gluten back, especially since you've only been gluten free for a month (my endoscopy was a couple months after going gluten-free and still showed extreme damage and confirmed celiac disease) - contact a G.I. doctor and see what they have to say about it. Also, given all the vitamin deficiencies we celiacs...
  7. Greetings. I had pretty significant "gluten ataxia" (from what I understand the antibodies that attack the small intestine also attack specific type of cells in the cerebellum - I'm not a medical person, I'm sure you can google this and get some info). I was not diagnosed with Celiac Disease until in my 50s. Among other problems, my ataxia indeed affected...
  8. DO NOT DESPAIR! There's a whole wonderful gluten free world out there. 14 yrs ago when my son was diagnosed we had to order everything via internet. Now there is an abundance of gluten free foods in the mainstream. Important article for you to read: Celiac Disease is a disability and recent ruling huge impact on Celiac students with meal plans Open...
  9. All good advice above. I always try to take as much of it into my own hands as possible, sometimes I will eat ahead of time - after all, it's really the company I'm interested in and not the food. I know what you mean about hurting feelings, and not get understanding on the other side (like your favorite auntie who says: "oh a little won't hurt you..." ...
  10. I'd like to suggest that (even though you wipe everything down that comes into contact with gluten) you get in the habit of NEVER putting any of your food down on a counter -- instead grab a plate, or paper plate, or piece of wax paper, etc. It's a good habit to get into and adds a pretty foolproof layer of protection in your food handling.
  11. I just had to share this recent find. Since my celiac diagnosis 4 years ago I have pined away at holiday time for a piece of fruitcake. While this fruitcake is not certified gluten free (I am VERY sensitive), I spoke to the owner about their handling, separation and baking process for the gluten-free version of their fruitcakes. The answers satisfied me enough...
  12. FDA needs all of our feedback: ppm is only half the battle the other is what will the FDA allow folks to print on their labels (should NOT be allowed to state gluten free on front product label, IMHO, if says 'processed in facility that also processes wheat' UNLESS there is testing) Was announced past week that the FDA will await more comments before...
  13. Was announced past week that the FDA will await more comments before finalizing regs on gluten free food labeling. One last chance to let them know your experience and what needs to be done to protect people with Celiac Disease. I submitted comment that if it were peanuts, they would not allow a product to state "Peanut Free" on the label, if on the...
  14. Here is a link to the University of Chicago Celiac Center, it has tons of information (treatment, factsheets, video, etc): Open Original Shared Link They state on their site that endoscopy biopsy is necessary to confirm the diagnosis. other sites with info on this: Open Original Shared Link Open Original Shared Link Open Original Shared Link
  15. I'm not a medical person, but my G.I. doc said that, aside for it being confirmation of celiac disease, that they are also looking for certain markers and baselines, plus examining for esophageal damage that may have resulted from GERD (many celiacs also suffer from this), etc. You should ask the GI doc to elaborate. It (the biopsy) may also be an...
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