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climbmtwhitney

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by climbmtwhitney

  1. climbmtwhitney
    Hi. We are GFCFSF and live on Pamela's Wheat Free (GFCFSF) Bread Mix. We also like Pamela's frosting & cake mixes. No problems. Ever. We are disappointed that their Pancake Mix isn't CF as well. Jill
  2. climbmtwhitney
    Alia, We love Bell & Evans. We get them at Whole Foods. They're delicious! And, I too, have a chicken nugget connoisseur at home. They come in tenders and nuggets, just be sure to get the BLACK box. The blue box isn't gluten free. They bake 28 minutes because the chicken isn't pre-cooked. Also, the chicken is raised w/o antibiotics. Plus they're casein...
  3. climbmtwhitney
    Hi and Happy New Year! I have to share.......I found a gluten-free, casein-free AND soy-free cream substitute. It's Mimiccreme. It has no saturated fat or trans fat either. It's made from water, almonds, cashews and rice starch. Sounds weird, but I tried it and LOVE it. It looks and tastes like cream. I made beef stroganoff yesterday and sub'd the...
  4. climbmtwhitney
    Hi Shay, My daughter and I are DQ1 (sub 5), DQ3 (sub 7). We also have the alpha portion of DQ2 (Celiac gene). Other than gluten here's our intolerances: Me Dairy, soy, cranberries Dx. Plus I know corn & peas too. I'm still trying to figure what the heck else. I'm SO sensitive -- debating the Specific Carb Diet. Of all my intolerances, soy hits...
  5. climbmtwhitney
    Wow! Super idea! I would happily sign the letter. My whole family, my sister's family and my mom all tested thru Enterolab in addition to blood tests & biopsies for some. Thanks to everyone who put the letter together. --Sonya
  6. climbmtwhitney
    Hi. Oh crap. I've been reading several posts today eluding to the fact that meat from animals fed corn or wheat may actually be contaminated with the corn or wheat. Can you get glutened by beef or chicken? I try to buy organic, grass fed meats, but I'm definitely not diligent about it. Does the same go for things like turkey bacon, hot dogs and sausages...
  7. climbmtwhitney
    Hi Laura, We will get the results on Tuesday. I'm not sure if the doctor also tested the genes. Which ones are associated? I couldn't find an easy explanation online. We have tested him genetically for Celiac and gluten intolerance, so we do have some gene results. And I read that Celiac and Type 1 diabetes genes are on the same chromosome, but that...
  8. climbmtwhitney
    Laura, That's the best info I've read. Thank you very much for sharing! Sonya
  9. climbmtwhitney
    Hi. Can't be sure (we never can, huh?), but Frito-lay Fritos, and potato chips had to go. I believe myself and daughter were getting sick from them. Then again maybe I just ate too many. Ha! Seriously, though, we replaced them with Kettle Brand chips and won't eat any Frito-lay products anymore. It's so frustrating that we never know these things with...
  10. climbmtwhitney
    I'm pretty sure I read a post a few weeks ago about Starbuck's Pumpkin Spice Lattes CONTAINING gluten. Try a search here and see what you find. Hope you're feeling better today! Sonya
  11. climbmtwhitney
    Hi. We've had a really rough week. I took my 5 year old gluten-intolerant son to the ER at 4 am Sunday morning because he woke up, yet again, slightly out of it, crying and nauseous. I took his blood sugar for the first time and got a 299 (way too high). So, I called the ped advice line and they said to take him in. Before we even left he began throwing...
  12. climbmtwhitney
    Hi. Are you using the same toaster? Same old spatulas, wooden spoons, cutting boards, old scratched plastic measuring cups? Or the same scratched pans? Are you sharing the same margarine tub, same jelly, same PB, etc? Cross-contamination is a big issue. And, it is very difficult to use separate everything in gluten / gluten-free kitchen. I've found that...
  13. climbmtwhitney
    Hello. Another idea.....Have you noticed a pattern with soy or corn? Many of the gluten free/casein free breads contain them. Also, if you're eating pizza, are you using a soy cheese? I, myself a Celiac, am in horrible pain from soy in any amount. (And, I think corn is about to go too.) And, my 10 yr old daughter, also Celiac, gets horrible stomach pain...
  14. climbmtwhitney
    We absolutely LOVE Pamela's "Wheat - Free Bread Mix". (Don't know why they call it "wheat-free" since it says elsewhere on the pkg that it's gluten-free and dairy free too.) It's a mix that you add eggs, oil, yeast (provided) and water to. It's awesome baked fresh or kept in the fridge for a few days. Often I make 2 loaves and freeze 1 for later. What...
  15. climbmtwhitney
    Hi. I used both Enterolab and Kimball and I have BlueCross PPO. I ordered the "Gluten Sensitivity Stool and Gene Panel Complete" from Enterolab for $369. Of that, BlueCross paid $271 with no issues for all 5 of us. I also ordered the Kimbal test because I was looking for the Celiac gene on the alpha chain when Enterolab's tests only turned up 2 gluten...
  16. climbmtwhitney
    Hi. From what I know it goes like this....Starbursts, Skittles, Nerds, Runts, & Laffy Taffy's are gluten-free. Lifesaver Gummies are gluten-free. Not sure about regular kind. I'm also not sure about 3 Musketeers. My memory says it's not though. Milky Way Midnight (not regular kind) are gluten-free. Some Hershey's minis are gluten-free are and some...
  17. climbmtwhitney
  18. climbmtwhitney
    Hi. Curious. I keep hearing that they recognize 7 or 8 Celiac genes in Europe. But, I searched and can't find the info. Does anyone have a link to those 7 or 8 genes (one that the average Joe can understand)? Or, can someone list them? I'm curious because 2 of my children and my husband are double DQ1 and have been diagnosed gluten intolerant. And...
  19. climbmtwhitney
    Hi everyone. Thanks for chiming in. You are all right. I just wish the "traditional" doctors didn't raise an eyebrow when seeing the labs. It's definitely annoying, but in the end it doesn't matter. The diet is the ultimate proof. Sonya
  20. climbmtwhitney
    Hi. I need a sanity check. I'm starting to wonder about Enterolab's validity. Myself and ALL of my 3 kids were all diagnosed gluten intolerant (turns out 2 of us are actually Celiac). O.K. fine. But, then my husband tested gluten intolerant with NO symptoms. O.K., now that's weird. A coincidence? Then, my niece tested positive. Each one of us...
  21. climbmtwhitney
    Hi Bonnie, This may be a crazy question, but CAN she eat? She was about 18 months when you put in the G tube, right? I am wondering if eating was painful for her. I ask because I suffer from gastroparesis (paralyzed stomach) occasionally. At my worst I was terribly sick for 9 months and eating hurt. After the smallest amount I would be in pain. I couldn...
  22. climbmtwhitney
    Hello. My daughter and I both have the same genes as you (Enterolab: Serologic equivalent DQ 1,3) We ALSO carry the more rare Celiac gene on the alpha chain. We found that out through Kimball Genetics. We are both very symptomatic and have been diagnosed as Celiac. I agree with Nora, have your ability to produce IgA antibodies checked because some...
  23. climbmtwhitney
    I think I was glutened by wine last Thursday at Bunco. On Friday I felt like I was flattened by a truck. (And, no, it wasn't from enjoying my "grapes" a little too much. I couldn't think of anything else it could be. So I got online and did a little research. I also read about French oak barrels being sealed with a flour paste. Sure enough, the wine...
  24. climbmtwhitney
    Hi Jen, I'm so very sorry all this is happening to you. I, too, have a long sorted medical history so I can relate. Definitely no fun, huh? I am a recently diagnosed Celiac, so I'm no expert. Having said that, it sure sounds possible that you have Celiac or gluten intolerance from your symptoms. For your biopsy on Monday....Do some reading...
  25. climbmtwhitney
    Hilarious! Thanks for sharing! #1000. How about when your doctor sits you down and says that "Sometimes we think we have these symptoms. They seem perfectly real to us. But, actually they are all just in our head." Gotta love that one!
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