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wendstress

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by wendstress

  1. Apart from Gluten, I also have some issues with dairy and caffeine giving me diarrhea. I have have small amounts of each (2-3 cans of caffeinated soda a week, or a 'dollop' of sour cream with a meal), but too much has me headed to the bathroom. Me at Starbucks: "I'd like a venti, decaf, soy, caramel macchiato, please." Takes and eternity to order, but...
  2. I've been gluten-free since the beginning of 2009 and feel like I've been slowly and steadily healing. I never had DH rashes before diagnosis. (Nor do I now). Over the last 2-3 months my legs have been so itchy I am going crazy. No rash. Just itching. One time I itched so hard I caused my inner thigh to bruise. No changes to detergents, soaps,...
  3. DITTO! She said we don't see too many Celiacs.... Best advice she gave me was to join the local Celiac Support Group. THEY have been extraordinarily helpful!!!!!!
  4. Just got glutened last week..... I thought the pizza dough tasted way too good to be true! (It had been put in the wrong spot at the bakery and I didn't bother to check). It took 12-24 hours to hit me, but when it did: *Headaches - Persistent for 2-3 days *Fatigue *Brain Fog *Peripheral Neuropathy * Gas Funny, but I actually didn't get the...
  5. Everyone's journey is different - the disease affects us in different ways..... Here is a brief timeline of my recovery: Weeks 1 and 2 - I FELT AMAZING - Felt 75% better. Wow. Didn't last long. I think my body went from constantly being on the defensive (fighting gluten) to actually starting to heal, and that took a lot of energy. Weeks 3-1...
  6. Hi - welcome to the lovely Gluten Free World I found out I had celiac disease at the beginning of 2009. The learning curve is pretty steep. I think it probably took me 6 weeks before I was doing a decent job at eliminating the gluten.... Through forums like these I continue to learn. Most of all, I just wanted to say to you to have realistic...
  7. That is SO interesting. I've had these for years and years.... Even saw my Dr. about them once about 10 years ago and he told me it wasn't a big deal. I have also had a yellow or white coating on my tongue that gives me terrible breath. I have been so self concious. Ironically, just last week I picked up a new mouthwash and toothpaste that has helped...
  8. Tried it for lunch today with 1/3 cup of Pamela's Baking Mix in place of the rice/flax/almond ingredients (because it was what I had!). Turned out just fine.... Has potential for futher experimentation, too! Made a few baggies of just the dry ingredients for future needs. How easy can it be???? Thanks for making life just a little easier!
  9. I grew up in the Upper Peninsula of Michigan, in an area with a very strong Finnish influence. Pannukakku is a traditional Finnish breakfast that is sort of like a custardy baked pancake. This is one of the things I went through mourning for when I found out about my Celiac diagnosis. Anyway, tried it this weekend substituting Pamela's Baking Mix for...
  10. Can you share some of your symptoms?
  11. This is from my local CSA Group (Fox Valley, WI). It helped me tremendously in the first few weeks... I mentioned it several times in other posts..... It loses it's formatting when I cut and paste, but it is still very useful information. If you would like the nice, 1-page document, please PM me with your email and I'll get it off to you. (As always...
  12. Thanks for the suggestions. I don't drink wine very often (6-8 times a year?)....but was curious, so I had a glass of a different type of wine last night. No effect. Who knows. In the past (prior to my gluten free days), wine never bothered me. I had a headache for nearly 3 days.... Ouch! I am not aware of any other food intolerances... But...
  13. As a new celiac, here are a few pieces of advice: 1) Give it a try - you have nothing to lose and everything to gain. BUT, if you do it, you need to do it 100% because even a little gluten will mitigate the positive effects you may otherwise have. 2) I felt substantially better in 2-3 weeks. Give yourself this long. Then, I'll admit, I went back...
  14. Went shopping this weekend - my Mom was in town visiting - first time we've seen each other since I found out I have celiac disease.... Anyway, I picked up some Rice Chex and she said, "what about those" and pointed to the clearly labeled Gluten Free Honey Nut Corn Chex. Needless to say, I bought a box! They are sooo good.... Thank you, General Mills...
  15. Just curious.... I'm new to this and trying to identify when I've come in contact with gluten, or if I'm just experiencing a "down" associated with the healing process.... Last night I am sure I got glutened - it was either fruit dip or wine. Had a near-migraine that came out of no where and my belly blew up to 4x normal. Didn't get any D, but I still...
  16. Hi Krystal, I am new to gluten-free as well - started in January. I just wanted to share that the first 6-8 weeks were EXTREMELY agrevating for me... I had plent of days that I knew I was eating gluten-free foods, but I was still feeling iss or having D. It took a solid 2 months before my health started to feel consistently better..... So many ups...
  17. Your experience sounds so similar to mine!!! Symptoms started after childbirth, weight loss, fatigue. Everyone here has given you good advice.... One other thing to consider is microscopic colitis. When I had my endoscopy/colonoscopy to confirm the celiac, the GI also discovered I had microscopic colitis (MC). The symptoms are nearly identical to...
  18. I believe you, too. Did you mention epilepsy in your original post? Celiac can lead to neurological issues, including seizures. I'm new to Celiac, but the things you have described certainly ring true to me. PM me your email, and I can send you a list of "Things a Celiac can eat Right Away." It is a list of 80-90 name brand items that are gluten...
  19. Easter this year is at my MIL's house. She is a great cook, and is planning a gluten-free meal (she loves a challenge, as she says). She's consulted with me on many ingredients to make sure they are OK. I offered to bring the bread, but being new to Celiac I just haven't had the time to try to many recipes. Any suggestions for a really good bread...
  20. I'm new to Celiac and can't answer your questions, but I can offer a few thoughts: 1) I believe my second pregnancy likely triggered Celiac Disease in me. 2) Go Gluten free for a few weeks and see how you feel..... Undestand though, that if you do have Celiac, there will be ups and downs as it takes a long time for the intestine to feel. 3) Specifically...
  21. Sweet! I'll have to check it out! Where do you live? I'm in Appleton....
  22. Coincidentally, I have a friend going through a very similar situation. Blood tests have been negative, biopsy was even negative. But she simply feels TERRIBLE when she eats gluten. So, she is stopping eating it. One other thought - I recently found out that in addition to the Celiac, I have lymphocytic colitis (aka microcolitis). I'm learning about...
  23. My initial thought is that you could also have something else going on??? I found the celiac disease in 12/08, and then had an EGD/Colonoscopy in March to confirm that nothing else was happening. Turns out i also have microcolitis, or specifically, lymphocytic colitis. The treatment for celiac disease is pretty clear - Gluten free. The treatment...
  24. Alex will be 2 in April.... I really started to notice my symptoms about 1 year ago. Weight loss, constant D, depression, stomach/abdominal pain. Took me awhile to put it together, but I saw my Dr. in Dec '08, and he ran the TTG IGA blood test right away, and I was diagnosed on 12/31/08.
  25. After a very positive blood test, I went gluten-free and had good results. PCP referred me to a specialist. I subsequently met with a gastroenterologist, who recommended the EGD and Colonoscopy to rule out any other conditions. Turns out I also have mild gastritis, and microcolitis (procedures were just a couple weeks ago. I'm happy I did it because...
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