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gfb1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gfb1

  1. gfb1
    right on. positive is positive and negative is negative. there are no inbetweens. it is not unusual to be overwhelmed by the voluminous, and sometimes confliciting, information available (not to mention all the scams, hoaxes and greedy sob's out there). mostly, no matter how smart you are, evaluating all the information is a matter of 'context'. ...
  2. gfb1
    again, sorry to be the harbinger of skepticism... but, acu-cell is a scam. while there are certainly examples of asymmetry in the body (and related physiology/biochemistry) -- their discussion of 'handedness' of receptors (as with their so-called 'cellular analysis') is hooey...
  3. gfb1
    i'm sure you'll get other replies; but, since i'm here... since you are on a gluten-free diet, it will be very difficult to get 'clinical correlation'. that means blood tests to determine the cause of the 'villous blunting'. lots of threads around here that talk about eating gluten until AFTER all testing. otherwise all tests (blood/biopsy/etc) are...
  4. gfb1
    as others have said, your case is (sadly) not unusual. being a diedinthewoolwordparsingacademic, imho, i do disagree that you had a 'false negative'. blood tests just measure stuff in the blood, and there is a lower limit of detection. your body, health and wellbeing are much more sensitive to changes in 'state' than any blood test. however...
  5. gfb1
    my wife has had to have parenteral iron (i.e., iron infusions) for the last 6.5 yrs to keep fe, ferritin, & hb levels up to normal. for some unknown reason, although she has been diagnosed as being celiac for ~10 yrs and her gi tract is apparently 'healed' - she has been unable to absorb iron normally. this may have had something to do with her...
  6. gfb1
    just an aside, go to a REAL nutritionist. as in, a registered dietician (american dietetic association) or some other professional. there are a lot of scams out there (because there is little certification of who can call them a nutritionist...) if you see degrees/certificates/etc from these organizations -- run away. # American Health Sciences...
  7. gfb1
    i am not, as some have surmised, opposed to genetic testing. both as a human being AND as a geneticist, i think genetic testing will be extremely important. however, i AM opposed to HLA testing for the purposes of diagnosing diseases. HLA haplotypes are directly relevant to a variety of medical issues (tissue typing, being one). but, are of no more...
  8. gfb1
    MY COMMENTS IN CAPS: Here are ten facts you should know and remember about Celiac genetic testing. 1.Genetic testing can help determine your risk as well as your children's risk. NONSENSE. AT THIS POINT THE ONLY GENETIC TESTING THAT CAN BE DONE TAKES INTO ACCOUNT HLA HAPLOTYPES. YOU HAVE MORE GENETIC INFORMATION ABOUT RISK, IF YOU HAVE A PRIMARY...
  9. gfb1
    sometimes humor can help make a point....
  10. gfb1
    another day of only one post... very busy (which means business is good!!) do not feel stupid or guilty. here's my (nonMD, though experienced in clinical labs) view of your post. #1 assuming that your reference ranges are correct; your IgG antigliadin is POSITIVE and was on the previous test as well. this should NOT HAPPEN. gliadin (a digestive...
  11. gfb1
    another short day for posts... however, this one might actually be important... 23andMe -- one of the new 'personal' genomics companies -- is beginning to build a large-scale database of major human diseases for research. they are trying to incorporate a 'social network'-flavor to identifying important genetic diseases (obviously, one's where they can...
  12. gfb1
    whew. you (all) have been through a lot. not sure what your expectation of the 'genetic' test is?? also, are you paying for it out of pocket?? the genetic panel cannot diagnose celiac; and, as noted in the previous post, sometimes folks that lack the 'risky' MHC genes -- actually have celiac (or, at least, some form of gluten intolerance). btw...
  13. gfb1
    a bit busy this week; not much time to post... but, always enough time to get a link out there, especially for scams/quacks/pseudoscience. Open Original Shared Link The American Academy of Allergists and other reputable medical organizations have pointed out, candida can cause an occasional infection or allergy. But no one has shown it causes depression...
  14. gfb1
    imho, 'puzzle' is the correct word. buried on p2 of the u.chicago celiac disease center publication: it certainly puzzles me.
  15. gfb1
    it depends on the test and your personal biology. your topic post says something about "anti tissue transglutaminase tests" -- is this the ONLY test or is it the entire celiac panel?? it is entirely possible, based on your diet (i.e., how much gluten you usually consume prior to being gluten-free), how long you've been having celiac-like symptoms, and...
  16. gfb1
    yes indeed. the biology is certainly the fun part! based on my (very loose) plan for these little posts, i hope to discuss your last 2 statements in post #3. clinical labs and diagnosis have a very cozy, yet (imho) uncomfortable relationship. on the one hand, doctors make diagnoses based on the normal curve. yet for the individual being tested they...
  17. gfb1
    absolutely. way back; when i was helping to develop an analytical/clinical lab for hoffman-laroche (to assay dinosaur blood samples.... ) the linear portion of the standard curve had to have an R^2 value of 0.9999 (as in 99.99%). techniques have gotten better since the abacus, and using modern QC, the PRECISION of the assays might be 10-100 times better...
  18. gfb1
    if your insurance will pay for the genetic testing and it will make you feel better... go ahead and do it. however, if it will cost you out-of-pocket $$$, save your cash. you really won't get helpful diagnostic information. the HLA-gene typing is not based on a causal relationship with celiac disease and will not provide additional information or risk...
  19. gfb1
    Everybody gets their blood test results back in a haze of unreadable numbers and words. For all the cost, you'd think that the labs would invest in some decent printers, a legible font and maybe even a decently designed graphic (or two) -- [more on this to follow]. There is no reason that any person who can successfully navigate a newspaper or website should...
  20. gfb1
    by your description you did not have the entire celiac panel. if that is the case your high TTG is suspicious. if your doc didn't 'believe' the test -- he should have redone the test. imho, not very good advice. endoscopies "can" be inconclusive -- but, i also note that you did not say it was perfectly normal. again, suspicious. with the diagnostics...
  21. gfb1
    since all the ab's indicative of intestinal damage were of the 'IgA' variety and you had been off gluten for several weeks -- i might not expect the gliadin IgA/IgG to be positive. you MIGHT have tested positive for the others .... but, impossible to say. further, while only a small percentage of the population are IgA low/deficient -- you MIGHT be, therefore...
  22. gfb1
    not necessarily. it really depends on which test. more than likely gliadin antibodies will be present in your blood as long as you are consuming gluten (whether wheat/rye/barley/spelt). there does, however, need to be sufficient intestinal damage to result in the breakdown of the endomysium (hence, endomysial antibodies) or TTG (tissue transglutaminase...
  23. gfb1
    good luck; just a few thoughts. 1) you are indeed low in IgA; however being "IgA deficien" has very specific clinical meaning. with only that info, there is not telling if you are clinically deficient... or just low. 2) msg (monosodium glutamate) is NOT gluten and should not present a problem for most celiacs (due to gluten issues)... however some...
  24. gfb1
    your tests indicate that you PROBABLY don't have celiac disease. that word 'probably' is the stickler. there are plenty of folks in the forums (and probably one of the big reasons that they are here) that were told they PROBABLY didn't have celiac disease... yet they did. if you, or your doctor, have reason to believe that you are having reactions...
  25. gfb1
    without commenting on the use of probiotics... for which it is really difficult to restrain myself. yes, there is gluten in barley grass; probably not oat grass. but, of course, it depends on whether they were classified correctly imho, nutraceuticals are insufficiently regulated.
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